Autistic begging Sia for representation are #literally not patrons of the arts

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If performance artist Sia is autistic, she too has a right to tell her story. If a thousand volatile people want to project their feelings of job inequity, then go ahead, don’t watch the damn movie.
👉Sia has Ehlers-Danlos syndrome, and #EDS is tenfold in the #autistic population, including myself.
👉Nearly 100% of autistic people have #perfectpitch (97%, read my study). Sia’s clarity in her vocal range is very impressive to my trained ear.
👉Hiding the face with extreme costumery is a brilliant stunt to create social distance between fan chitchat, eye contact demands, and any interaction outside of the live performance.
I offer this clip where you can decide if you can spot an autistic on Ellen DeGeneres. Can you see the 🕶️ masking, the forced speech, the hand fidgets, the tight ankle cross, the scripting from lyrics, and the use of stress laughter to make conversation? How would you act if you are #autistic and are on the Ellen Show? The costume deterred Ellen from hugging and petting, which we all know is a part of live TV. Score!
The outrage by #autistics begging for “authentic representation” by way of #actuallyautistic talent is an old cry. It stems from lack of #inclusion in training programs, which I advocate for on an hourly basis.
When I was studying music therapy, I was regarded as an imposter and hacker, someone who had to be defeated. My art has been misunderstood, my talent 🎹 has been blamed on scammery, and my inclusion was blocked through denial of #accommodations. I pulled through 🎓 because I paid more attention to my goals than they gave to destroying my soul.
The arts requires stellar 🎩 representation to a storyline. Any media attention is positive attention (so go ahead and + hate me too +).
I would much rather have 25 more Rain Man movies come out this year, than none at all.
Thank you Sia for selecting seasoned and talented actress to portray the gifts and capacities, the use of #AAC typed communication (which is the law), and above all, the story of  ❤️❤️❤️INCLUSION IN THE ARTS.
Signed,
An #actuallyautistic artist who is delighted that you choose to tell your story in your unique and artful way.

Elissa Milne

Wow. Lots of people calling Henny “sweetie”.

Lots of big feelings.

Feeling outraged is a choice we’re all quite good at these days.

It takes a bit more work to actually engage with ideas, and it’s perfectly understandable that a lot of people in late November 2020 are a bit too emotionally wrung out for that kind of engagement.

This whole question is about what representation is in the performing arts.

https://www.pinterest.ph/pin/224687468885941223/Does the stage musical of the Lion King require a lion in the lead role? Is it wrong for the story of a lion to be told with a human in the role?

Is it wrong to perform Shakespeare in a historically accurate manner, with men playing all the parts?

Would it be wrong for a woman to play Richard III?

Is it wrong for an Asian opera singer to play the part of Violetta in La Traviata? And is it appropriate for any singer to take that part unless they have already died of tuberculosis?

Henny Kupferstein, Ph.D.

Here I am sitting on my fainting couch, laughing way too loudly. It’s about time we see a lion on stage!!

Elissa Milne

WE COULD GO FURTHER.

Is it wrong to depict assault on stage, if the actor is not actually assaulted?

Is it wrong to use stage craft to communicate plot points THAT ARE NOT ACTUALLY HAPPENING TO THE ACTORS?

etc etc

Representation in the community is a completely different kind of representation to what we talk about when we refer to “representation” in the performing and recorded arts.

Vocalists have all kinds of effects added to their tracks – their voices are a part of the finished “representation” that is a song on Spotify, but we’re not literally hearing that person’s voice and that alone – it’s all adjusted, treated, transformed, compressed, amplified, all kinds of things.

The product you consume in the arts is made up. It’s not a naturally occurring thing. Duh.

Henny Kupferstein, Ph.D.

The only naturally occurring thing in this post is natural selection.

Elissa Milne wins the internet. Maybe covid20 will be all the #autistics searching for tuberculosis to be authentically represented in the arts. Natural selection is naturally self evident. 

Elissa Milne

Is it wrong for an Asian opera singer to play the part of Violetta in La Traviata? I don’t think so.

Is it wrong for a woman to play Richard III? I don’t think so.

There is so much missing from an understanding of the performing arts in any take that says that the character must be portrayed by an actor with the same characteristics, it’s really hard to see a place to start with helping develop a more informed perspective.

Look at the work of Caryl Churchill (link below) for an example of creating work where distancing (in a Brechtian kind of way) is accomplished by casting characters into unexpected bodies, and where the impact is a subversion of power and a highlighting of abuses of power.

Consider theatrical traditions where roles are cast very deliberately against physical types.

The profundity of human theatrical expression that relies on the performer not being the thing being performed is immense.

Elissa Milne

Is it wrong for an Asian opera singer to play the part of Violetta in La Traviata? I don’t think so.

Is it wrong for a woman to play Richard III? I don’t think so.

There is so much missing from an understanding of the performing arts in any take that says that the character must be portrayed by an actor with the same characteristics, it’s really hard to see a place to start with helping develop a more informed perspective.

Look at the work of Caryl Churchill (link below) for an example of creating work where distancing (in a Brechtian kind of way) is accomplished by casting characters into unexpected bodies, and where the impact is a subversion of power and a highlighting of abuses of power.

Consider theatrical traditions where roles are cast very deliberately against physical types.

The profundity of human theatrical expression that relies on the performer not being the thing being performed is immense.

Henny Kupferstein, Ph.D.

Elissa Milne Even the Jews had to wear a penis prosthetic to fill the role of perfect human form for athleticism during the olympic games, because their circumcision represented mutilation or lameness.

Elissa Milne

Gosh – I’m not quite sure what to do with that information!

But now you have mentioned penises…

Hugh Sheridan musical Hedwig and the Angry Inch cancelled after outrage from transgender activists

Henny Kupferstein, Ph.D.

Elissa MilneOf course we must mention penises. A star’s show gets ‘cancelled’ (the show biz kind, not the online kind) because he is the wrong rainbow on the flag? Well, as we’ve learned from Orange is the New Black, not every Laverne has a Cox to play her pre- and post-.

#goals

Resources
  1. If you need help, try reading Karma Can Crush Creeps Autistics – AUTISTICS FTW! My Autistic Brain has at least 4 Logical Ways tot End Cyberbullying

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[Music] —   —  how are you you okay are you okay do you —   —  want to write hi —   —  anyone all right if you can’t hear me do —   —  you want to write I can hear you you can —   —  hear me okay what’s going on they caught —   —  the police —   —  they caught the police what’s going on —   —  yes I came here two o’clock the —   —  procedure I’ve been waiting a very long —   —  time and every time that the staff is —   —  telling me a different reason why they —   —  cannot yet start the procedure they —   —  brought the doctor out the doctor the —   —  two questions about the procedure and he —   —  was answering them for me and then —   —  afterwards this staff has told me —   —  different things —   —  first of nurse supervisor said that we —   —  don’t have to worry about the —   —  transportation that issue has been —   —  resolved and then someone came after her —   —  and said no the transportation is an —   —  issue I have asked them multiple times —   —  to see if the social worker can help —   —  them to organize so that they can —   —  communicate adequately with me and they —   —  have not yet provided that for me I am —   —  not in a position to medically able to —   —  access medical treatment like all other —   —  patients and I have been arbitrarily —   —  overlooked first many for the whole day —   —  I have also been fasting and I am still —   —  fasting —   —  I have no other way to access medical —   —  care oh I say come here for my —   —  appointment which I did and then I —   —  registered and I have not yet on the —   —  first feature which I was approved by my —   —  insurance is scheduled for this facility —   —  is the only facility that will do this —   —  procedure for my medical plan I don’t —   —  have any other option okay I don’t know —   —  what else I need to do to access medical —   —  care okay so so what’s gonna happen so —   —  this is the police department can you —   —  hear me okay the police department and —   —  and and the security guards here we have —   —  zero control over that —   —  you understand that we have zero control —   —  so when the nurses tell us that there’s —   —  nothing else they can do for you there —   —  is nothing else that we can do for you —   —  as well I understand you believe you —   —  need treatment and I don’t doubt that —   —  you do but when they tell you that they —   —  cannot provide treatment that’s where —   —  the problem comes in because they’re not —   —  going to treat you it’s all sitting here —   —  and waiting is not the solution okay you —   —  have to go to your primary care provider —   —  and you have to go through your your —   —  your doctor in order to get those —   —  treatments and not the emergency room —   —  orders for the vascular port placement —   —  so I could have ID access over here I —   —  understand the procedure to be approved —   —  by the insurance I got a phone call —   —  yesterday confirming that I will be —   —  registered at 2 o’clock and that I —   —  understand I have to fast for 6 hours ok —   —  in my charts in the portal indicating —   —  the name of the physician doctor who was —   —  assigned the procedure yes came to talk —   —  to me two times yes and after he loved —   —  some other people came in and they they —   —  told me not because I’m hard of hearing —   —  I am they are not able to provide the —   —  disability accommodation I told them —   —  that I am waiving my right for a —   —  translator in the interest of —   —  prioritizing my medical care I also —   —  informed the physician that I will be —   —  happy to sign the forms I am capable of —   —  signing the consent forms and I also —   —  indicated to the team whoever was here —   —  that I will they offered me the —   —  procedure with anesthesia without —   —  anesthesia they said that because I —   —  because I live alone —   —  they cannot let me go with the uber car —   —  so they will do it without the —   —  anesthesia and I said that I cannot —   —  consent to that did not know that was an —   —  option so I have provided everything for —   —  them and instead of bringing the social —   —  worker here to assist in finalizing —   —  everything I have been poorly treated —   —  here before in the past there at this —   —  time —   —  it is was purely denying me treatment on —   —  the basis of a disability they decided —   —  that I am deaf and therefore cannot —   —  provide consent I have told them I can —   —  hear from my right ear and I can provide —   —  consent and there is nothing warranting —   —  me holding me here for two almost 12 —   —  hours fasting without the procedure —   —  I’m not medically safe to go another day —   —  without the procedure and nobody has —   —  provided information guaranteeing for me —   —  this procedure if there is a reschedule —   —  this reschedule nobody has rescheduled —   —  nobody has told me how I can access it —   —  and this is like I said earlier the only —   —  facility that does this procedure in San —   —  Diego for patients with Molina for —   —  keeping the appointment okay man there’s —   —  a procedure is a way you have to go —   —  about doing these things okay because —   —  you can’t just because you’re upset that —   —  they haven’t helped you today there’s a —   —  procedure you have to go through you —   —  have a social worker you have a doctor —   —  you have to go through these persons and —   —  then make an appointment to get that —   —  procedure scheduled stay in okay so that —   —  has nothing to do with this right now —   —  okay they meet this role okay they need —   —  this room if you need a ride home we —   —  could give you a ride home but you can’t —   —  sit here and occupy a room because they —   —  cannot help you at this time they cannot —   —  and you sitting here is not going to be —   —  able to help or is not gonna be able to —   —  do anything you know somebody else need —   —  services they’ve helped you today you’ve —   —  been here 12 hours and I understand —   —  you’re not happy with the service but I —   —  checked in I have not yet she said you —   —  spoken to the doctors already and they —   —  told you that they cannot do it I spoke —   —  to the doctor to ask him about the two —   —  questions that I was supposed to ask —   —  about the procedure okay finding out —   —  technicalities about the type of port —   —  that whether it needs to be covered in —   —  water or not and whether he will be able —   —  to provide the clearance for the home —   —  health nurse to be able to access the —   —  port okay but that has nothing that has —   —  nothing to do with right now because —   —  we’re here the police are here so at —   —  this point it’s past that UCSD tends to —   —  solve problems with police that doesn’t —   —  serve the community is on it —   —  resources okay guys zero control over —   —  that okay so what we have to do is we —   —  have to ask you to leave okay I actually —   —  have a legal right to access medical —   —  care —   —  there was a point to to me and if there —   —  is any reason why the medical care —   —  cannot be provided to me then I need to —   —  be informed about that and I will no —   —  longer be poorly treated I understand —   —  nothing to do with the police department —   —  okay you’re gonna do with the police —   —  department because there’s only two —   —  options here alright I just want you to —   —  understand that okay either you have to —   —  step outside or gonna have to get your —   —  medical treatment at Las Colinas all —   —  right and I don’t want it have to do —   —  that’s the woman’s the attention —   —  facility okay it’s at the jail all right —   —  and that’s where if you’re trespassing —   —  which is this can be considered because —   —  the nurses have told you that you you’re —   —  gone clearly okay you have to leave I —   —  also have to be here for my procedure —   —  where should I go well you have to talk —   —  to your doctor and your social worker —   —  about that I have doctor’s orders and —   —  the social what their procedures are not —   —  today and they are not in here who did —   —  not bring the social worker I asked if —   —  they need help that is your job that is —   —  not their job that is your job you’re —   —  trying to put your job on to them your —   —  job is to get the social worker and the —   —  doctor and to come to the hospital for —   —  your appointment I do not have a social —   —  worker who will come to the hospital —   —  that’s not a social worker —   —  okay well you have to figure that out —   —  you can’t stay in here because you’re —   —  upset with your treatment —   —  you cannot alright I don’t I don’t know —   —  I can’t keep explaining that to you I —   —  understand that either you have to leave —   —  or we have to arrest you I don’t want to —   —  arrest you I come here to comply with —   —  our medical orders okay information okay —   —  I have a right to medical treatment yes —   —  approved by insurance well I’m just —   —  letting you know you’re gonna get your —   —  medical treatment in jail if you don’t —   —  step out and we you’re occupying this —   —  room when they’ve already cleared —   —  we’ve asked you guys what is the problem —   —  with receiving medical care at this —   —  facility you have to do it the right way —   —  that is it you can’t just sit here and —   —  wait for medical treatment because the —   —  whole city would do that you have to go —   —  through proper procedures to get your to —   —  get your treatment yes and thank you no —   —  no are you sitting in here it’s not the —   —  right way when they’ve asked you to —   —  leave you have to go to your primary —   —  care doctor okay your primary care —   —  doctor yes and get that settled to where —   —  you could walk in and have your —   —  procedure done and that’s it in the —   —  emergency room yes I registered in the —   —  admissions office and I signed the —   —  consent for treatment any clock can you —   —  take a seat primary hurt can you take a —   —  seat your hands are shaking I can tell —   —  you’re upset just take a seat while we —   —  talk about Gloria come over here come —   —  over here I’m pretty loud come over here —   —  come to me take a seat —   —  you’re telling me you can’t hear me —   —  right now Annie can you not hear me you —   —  can hear me yes okay take a seat please —   —  take a seat on the end of the bed so —   —  that would be the opposite way at the —   —  end of the bed but if you want to take a —   —  seat over there that’s fine I want you —   —  to take a look easier for me okay —   —  there is nobody outside right now there —   —  are no doctors there is no nurses if you —   —  look at this Bay over here the staff has —   —  asked you to leave police are asking you —   —  to leave at this point it’s considered —   —  trespassing where do I ready if you —   —  think you’re being refused medical —   —  treatment go to a different hospital but —   —  this hospital has cleared you medically —   —  cleared you yes this is the only —   —  facility that does the procedure under —   —  the medical insurance plan bag right and —   —  you will have to follow up with medical —   —  or the hospital a later date but there —   —  is nobody in this whole Bay to treat you —   —  it’s empty the only people here is us —   —  and security there’s nobody else here to —   —  treat you today and they’re asking you —   —  to leave which you have refused which is —   —  why the police are here —   —  we are asking you to —   —  and you seem to be going in circles —   —  about your treatment that we have no —   —  control over so there’s a nurse that’s —   —  going to come explain it to you one last —   —  time about why your treatment or —   —  procedure cannot be done today and if —   —  you continue to refuse past that you’ll —   —  be taken to jail is this person able to —   —  we have no control over who comes in —   —  here we have zero control the person —   —  able to provide information for me on —   —  how I can access this procedure I I —   —  imagine it would be following up with —   —  your primary care physician again but —   —  you feel free to ask the nurse because —   —  this is your last chance when the nurse —   —  comes in here and explains it you can —   —  ask questions but once that part is done —   —  you have to leave and I already told you —   —  what happens if you don’t leave and I —   —  don’t want to do that I really don’t —   —  it’s a waste of our resources to have to —   —  do that because it’s something you —   —  should do voluntarily —   —  where do you live penny penny where do —   —  you live you said you live alone right —   —  you live alone —   —  do you have an apartment yes I live —   —  independently okay where what part of —   —  the city what part of the city downtown —   —  Claremont what part of the city do you —   —  live independently —   —  I live in University City okay we’re —   —  gonna give you a ride home once we clear —   —  here okay —   —  all right so remember we told you that —   —  we’re all set okay you can go home now —   —  you’re all done there’s we didn’t do any —   —  procedure so you don’t need to stay —   —  anymore all the doctors have went home —   —  so you’re done and the supervisor —   —  remember she came and talked to you and —   —  said the same thing you’re all done okay —   —  you’re a different person yes I was here —   —  when you were when they were in here —   —  talking to you —   —  I just wasn’t over here talking to you I —   —  was just over here with some other —   —  patients Derek there has been one female —   —  she said that she was the house —   —  supervisor he has all supervisor and she —   —  I asked her if maybe she can bring a —   —  social worker to be able to coordinate —   —  for me and she did not know she said —   —  that the staff this um the people that —   —  are scheduling the appointment will talk —   —  to you about all that stuff but today —   —  the only thing she could offer you was —   —  to go to the ER or to leave yes I have —   —  informed her that I have not been able —   —  to schedule the translator service —   —  because the super director of DCs is on —   —  maternity leave and I will not be able —   —  to schedule with the translator services —   —  anytime soon so because I do not have a —   —  system in place —   —  I still do need the medical here and the —   —  procedure and that is why I told the —   —  doctor that I am consenting through the —   —  procedure without the translator service —   —  but there was a lot more to it than that —   —  and I don’t want to get them into it —   —  because you’ve been there over it about —   —  20 times already but if you need an IV —   —  in the meantime you can go to your —   —  doctors they can put a temporary IV in —   —  you until you can come back and have the —   —  proper stuff going okay yeah the hole it —   —  won’t be today though the Holmen health —   —  bridge home hell —   —  that said they advocated for the —   —  procedure with a primary doctor because —   —  they’ve been blowing all the veins ever —   —  yeah so you definitely need it but it —   —  needs to be done the proper way okay —   —  today was not the proper way you didn’t —   —  have a ride home and yes it wasn’t set —   —  up properly with the translator so this —   —  stud needs happen it needs to happen yes —   —  both of those barriers were already —   —  resolved but not our physician our —   —  physician had questions about the order —   —  to the house supervisor has already been —   —  over all of this it’s not happening —   —  today you need to understand that okay —   —  that’ll be the easiest for you to —   —  understand well okay that’s it all right —   —  how am I going to access this treatment —   —  so you’re gonna have to reschedule okay —   —  in the meantime instead of taking you to —   —  jail I’m just gonna take you home to —   —  your apartment all right oh they —   —  canceled your appointment how do I have —   —  information that I showed up and I came —   —  here and I provided all of them once —   —  again what I am a police officer I have —   —  no control or no knowledge of that —   —  however they have asked you to leave —   —  this entire medical bay is empty you —   —  cannot have the procedure done today —   —  you’ll have to call back and reschedule —   —  and find out I cannot answer your —   —  questions because they are medical —   —  related I don’t know anything about that —   —  however I am asking you to leave —   —  security has asked you to leave if you —   —  refuse to leave you go to jail I’m —   —  trying to just offer you a ride home a —   —  free ride home is the only facility that —   —  I know personnel once a week but we —   —  cannot keep going in circles in —   —  conversation right now you cannot —   —  continue to monopolize our time hospital —   —  security crime and nurses time I’ll —   —  continue to come talk we’re trying to —   —  explain the situation that is not going —   —  to happen I need you to make a decision —   —  right now whether you would like me to —   —  drive you home —   —  and drop you off or would you like to go —   —  to jail for trespassing —   —  I don’t need your assistance because you —   —  said you cannot assist me with the okay —   —  okay I’ve already asked for that and I —   —  there you go all right we have to go —   —  kami no longer stay here okay after you —   —  do you want me to drop you off —   —  you can walk out on your own we have to —   —  go no more conversation okay I need to —   —  work with to be able to guarantee that I —   —  can access the kheer call the hospital —   —  again before you come in next time and —   —  schedule it properly I have no control —   —  or no knowledge over we’re going to —   —  leave now we’re not gonna continue to go —   —  in sure already completed all those —   —  steps —   —  I got cancelled we have to do it again —   —  all right we have to go honey okay let’s —   —  go we have to vote we have a walk let’s —   —  go let’s go let’s go let’s go let’s go —   —  we have to go come on let’s go okay well —   —  we’re gonna we’re going to touch you —   —  I’ll take you to jail if you do not —   —  leave you understand that so if you —   —  don’t leave we’re gonna have to take you —   —  with us we don’t want to do that we want —   —  to take you home we can’t stand here —   —  talking it wasting resources okay you —   —  went to the room you waited us you —   —  wasting their time we have to go alright —   —  there’s no more conversation okay well —   —  let’s go are you coming or no are you —   —  gonna come or not I’m gonna put you in —   —  handcuffs if you don’t come with us okay —   —  I’m gonna talk about that are you gonna —   —  leave are you gonna are you gonna have —   —  to be put in handcuffs —   —  okay but right now you’re gonna be —   —  detained because you’re not leaving okay —   —  you’re going to be detained and I’m —   —  gonna put you in handcuffs because —   —  you’re not leaving you’re trespassing at —   —  this point at this moment you’re early —   —  okay we’re talking okay well all right —   —  all right okay you’re on your own —   —  I cannot balance like this okay let’s go —   —  we made you options you know what so we —   —  have to go —   —  [Music] —   —  [Music] —   —  right here right here —   —  [Music] —   —  [Music] —   —  [Music] —   —  [Music] —   —  [Music] —   —  okay 1x now that you’re out of the —   —  hospital what you gonna do now that —   —  you’re out of the hospital what are you —   —  going —   —  you need a ride home —   —  back —   —  so right now I’m evaluating you I want —   —  to see what you’re gonna do an hour out —   —  of the hospital you have you back yeah —   —  what are you going to do now can you —   —  hear me what are you going to do now —   —  that you have your belongings because —   —  you were removed from the hospital for —   —  trespassing now that you are out of the —   —  hospital what are you going to do they —   —  like to say things like that —   —  no honey it’s a question what are you —   —  going to do now to try the hospital —   —  where are you going —   —  [Music] —   —  maybe answer the question well I’m going —   —  to start thinking you’re gravely —   —  disabled the direct number from the —   —  operator from the two-on-one that they —   —  had at health outreach team get the —   —  funds for the override for me —   —  Jimmy we talked about this though I am —   —  willing to give you a free ride I didn’t —   —  even want to remove you from the —   —  hospital I asked you nicely to walk out —   —  of the hospital so we can give you a —   —  ride there no there doesn’t need to be —   —  at two one one you don’t need funds for —   —  the uber I’m willing to give you a ride —   —  and I explained that several times so —   —  I’m gonna ask you again —   —  can I give you a ride home —   —  oh I give you a ride home yeah no I —   —  don’t need a ride —   —  thank you but you just said you don’t —   —  know how to get an uber here you don’t —   —  know whether to dial 2-1-1 you don’t —   —  sure if the funds are there you’re not —   —  speaking clear and coherent sentences I —   —  don’t know what to do with you honey I’m —   —  offering to give you a ride home the —   —  easiest solution I do understand your —   —  question I’m asking where you gonna go —   —  you cannot sit out front of the hospital —   —  you were already removed from the inside —   —  of the hospital I know that we’re not —   —  but we’re not gonna go back into that it —   —  took us 20 minutes at least at least to —   —  have a nurse come and explain everything —   —  to you again something that security —   —  already did that’s why they called us —   —  that’s why you were physically removed —   —  from the hospital and now that you’re —   —  outside of the hospital I’m asking what —   —  are you going to do do you have a cell —   —  phone that you’re gonna call to have —   —  someone pick you up or am I gonna take —   —  you home —   —  I apparently have been denied medical —   —  care at UCSD —   —  and now I have to figure out what I need —   —  to do next because I do not have any —   —  resources because I have already waited —   —  five and a half months on the waiting —   —  list for this procedure —   —  I had unfortunately other medical —   —  treatment has to wait until they do the —   —  procedure to put into port in the vein —   —  so that I can have direct access to the —   —  vein I’m not able to get the treatment —   —  until they complete the procedures so I —   —  don’t know where to go if they cannot do —   —  it and I have not been able so now that —   —  you have been removed from the hospital —   —  I’m gonna watch you and I’m gonna see —   —  what you do I’m gonna see if you don’t —   —  want to ride home for me I’m going to —   —  watch you and I’m gonna see if you’re —   —  able to take care of yourself and —   —  provide transportation for yourself and —   —  walk away or whatever you’re gonna do to —   —  sustain yourself I offered you a ride —   —  home yes it’s really here filled with —   —  now refused it’s been really difficult —   —  without the port because of the the home —   —  health agency is not able to access the —   —  veins they keep blowing my veins with —   —  all the bullets like I said you can go —   —  to another hospital you can seek —   —  treatment elsewhere but this hospital —   —  had nobody to help you today and they —   —  politely asked you to leave and he —   —  refused instead you wanted to monopolize —   —  our time and their time going round and —   —  round in circles explaining why and we —   —  politely explained to you with that we —   —  cannot help you we did not stop you from —   —  going to another hospital we did not —   —  stop you from leaving so I’m gonna step —   —  back I’m gonna watch what you do because —   —  now that you’re already monopolizing my —   —  time I’m gonna evaluate you for being —   —  greatly to save it —   —  basically you could leave on your own or —   —  you’re going to be brought to a facility —   —  somewhere else —   —  I want to touch basis with you again you —   —  are free to leave hi you are free to —   —  leave —   —  what are you going to do I see you have —   —  a cell phone if you want to call an uber —   —  to go back to your apartment you can you —   —  are not being detained anymore now I’m —   —  trying to see if you can’t even take —   —  care of yourself and I was offering to —   —  try and help you and you are refusing —   —  for reasons that I do not understand —   —  yeah my partner’s do not understand that —   —  this hospital does not understand they —   —  have requested the assistance of the —   —  social worker because the the nurses —   —  were telling me that they could not —   —  understand me —   —  I had waived my rights for the —   —  translator services because the —   —  translation service is out maternity —   —  leave —   —  Oh —   —  okay I just you know we’re just in the —   —  present state all right —   —  are you ready to leave penny can you —   —  take off your glasses for me will you —   —  take off your sunglasses —   —  yeah take off your sunglasses I just —   —  want to see your eyes can I see your —   —  eyes can you take them on cement —   —  can you remove them so I can see your —   —  eyes —   —  [Music] —   —  [Music] —   —  any you cannot stay outside here you —   —  should probably head home —   —  you’re welding with their fingers —   —  football rain tonight you cannot stay —   —  out there anything April and I’m waiting —   —  to see what you’re going to do you have —   —  a cellphone I see you have a smartphone —   —  right on their backpack what are you —   —  going to do it I’m going to wheel you to —   —  the bus stop and you’re going to make a —   —  call to get picked up what are you gonna —   —  do —   —  [Music] —   —  I’m gonna wait this is the hospital’s —   —  chair is the hospital chair you want to —   —  walk off that way or I’ll put you on a —   —  bus stop to me —   —  [Music] —   —  I’m asking what are you going to do this —   —  is the hospital’s chair either said you —   —  don’t need assistance right with a half —   —  ball of a micro chair back yeah you can —   —  leave you’ve been free to leave for a —   —  while man go ahead and stand up and just —   —  leave you’re free to go —   —  you said you don’t need assistance from —   —  anyone so not sure what you’re doing —   —  we’re about to stand up and go —   —  [Applause] —   —  [Music] —   —  [Music] —   —  [Music] —   — 

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[Music]

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how<00:00:08.670> are<00:00:08.880> you<00:00:09.059> you<00:00:09.360> okay<00:00:11.900> are<00:00:12.900> you<00:00:12.929> okay<00:00:13.490> do<00:00:14.490> you

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how are you you okay are you okay do you

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how are you you okay are you okay do you
want<00:00:14.730> to<00:00:14.759> write<00:00:14.940> hi

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want to write hi

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want to write hi
anyone<00:00:15.990> all<00:00:16.080> right<00:00:16.490> if<00:00:17.490> you<00:00:17.640> can’t<00:00:17.850> hear<00:00:18.029> me<00:00:18.090> do

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anyone all right if you can’t hear me do

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anyone all right if you can’t hear me do
you<00:00:18.359> want<00:00:18.539> to<00:00:18.600> write<00:00:18.900> I<00:00:19.970> can<00:00:20.970> hear<00:00:21.180> you<00:00:21.330> you<00:00:21.480> can

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you want to write I can hear you you can

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you want to write I can hear you you can
hear<00:00:21.660> me<00:00:21.990> okay<00:00:22.369> what’s<00:00:23.369> going<00:00:23.609> on<00:00:23.789> they<00:00:24.000> caught

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hear me okay what’s going on they caught

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hear me okay what’s going on they caught
the<00:00:24.180> police

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they<00:00:27.750> caught<00:00:28.019> the<00:00:28.050> police<00:00:28.529> what’s<00:00:28.800> going<00:00:29.039> on

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yes<00:00:32.820> I<00:00:34.610> came<00:00:35.610> here<00:00:35.910> two<00:00:36.390> o’clock<00:00:36.750> the

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yes I came here two o’clock the

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yes I came here two o’clock the
procedure<00:00:39.050> I’ve<00:00:40.050> been<00:00:40.379> waiting<00:00:40.739> a<00:00:40.829> very<00:00:40.860> long

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procedure I’ve been waiting a very long

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procedure I’ve been waiting a very long
time<00:00:41.610> and<00:00:41.969> every<00:00:42.739> time<00:00:43.739> that<00:00:43.770> the<00:00:44.190> staff<00:00:44.520> is

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time and every time that the staff is

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time and every time that the staff is
telling<00:00:46.920> me<00:00:47.219> a<00:00:47.250> different<00:00:47.550> reason<00:00:48.090> why<00:00:48.570> they

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telling me a different reason why they

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telling me a different reason why they
cannot<00:00:49.410> yet<00:00:49.920> start<00:00:50.730> the<00:00:50.879> procedure<00:00:51.300> they

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cannot yet start the procedure they

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cannot yet start the procedure they
brought<00:00:52.050> the<00:00:52.170> doctor<00:00:52.680> out<00:00:53.190> the<00:00:53.399> doctor<00:00:53.789> the

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brought the doctor out the doctor the

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brought the doctor out the doctor the
two<00:00:54.149> questions<00:00:54.600> about<00:00:54.780> the<00:00:55.110> procedure<00:00:55.320> and<00:00:56.190> he

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two questions about the procedure and he

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two questions about the procedure and he
was<00:00:57.090> answering<00:00:57.989> them<00:00:58.170> for<00:00:58.469> me<00:00:58.739> and<00:00:58.980> then

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was answering them for me and then

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was answering them for me and then
afterwards<00:01:00.390> this<00:01:01.140> staff<00:01:01.440> has<00:01:01.770> told<00:01:02.160> me

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afterwards this staff has told me

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afterwards this staff has told me
different<00:01:03.420> things

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different things

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different things
first<00:01:04.920> of<00:01:05.189> nurse<00:01:05.909> supervisor<00:01:06.540> said<00:01:06.960> that<00:01:09.049> we

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first of nurse supervisor said that we

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first of nurse supervisor said that we
don’t<00:01:10.200> have<00:01:10.409> to<00:01:10.560> worry<00:01:10.740> about<00:01:10.890> the

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don’t have to worry about the

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don’t have to worry about the
transportation<00:01:11.790> that<00:01:12.330> issue<00:01:12.630> has<00:01:12.990> been

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transportation that issue has been

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transportation that issue has been
resolved<00:01:13.830> and<00:01:14.040> then<00:01:14.790> someone<00:01:15.450> came<00:01:15.689> after<00:01:15.900> her

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resolved and then someone came after her

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resolved and then someone came after her
and<00:01:16.590> said<00:01:16.830> no<00:01:17.430> the<00:01:17.700> transportation<00:01:18.540> is<00:01:18.689> an

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and said no the transportation is an

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and said no the transportation is an
issue<00:01:19.020> I<00:01:19.560> have<00:01:19.979> asked<00:01:20.280> them<00:01:20.369> multiple<00:01:20.880> times

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issue I have asked them multiple times

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issue I have asked them multiple times
to<00:01:21.540> see<00:01:21.810> if<00:01:21.960> the<00:01:22.110> social<00:01:22.530> worker<00:01:22.710> can<00:01:23.070> help

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to see if the social worker can help

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to see if the social worker can help
them<00:01:23.670> to<00:01:24.420> organize<00:01:25.259> so<00:01:25.619> that<00:01:25.920> they<00:01:26.100> can

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them to organize so that they can

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them to organize so that they can
communicate<00:01:27.390> adequately<00:01:28.320> with<00:01:28.770> me<00:01:29.040> and<00:01:29.369> they

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communicate adequately with me and they

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communicate adequately with me and they
have<00:01:30.720> not<00:01:30.990> yet<00:01:31.229> provided<00:01:31.920> that<00:01:32.070> for<00:01:32.130> me<00:01:32.670> I<00:01:32.939> am

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have not yet provided that for me I am

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have not yet provided that for me I am
not<00:01:33.840> in<00:01:34.259> a<00:01:34.590> position<00:01:34.890> to<00:01:36.650> medically<00:01:39.920> able<00:01:40.920> to

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not in a position to medically able to

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not in a position to medically able to
access<00:01:41.310> medical<00:01:41.970> treatment<00:01:42.479> like<00:01:42.689> all<00:01:42.899> other

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access medical treatment like all other

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access medical treatment like all other
patients<00:01:43.799> and<00:01:44.549> I<00:01:44.729> have<00:01:45.060> been<00:01:45.390> arbitrarily

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patients and I have been arbitrarily

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patients and I have been arbitrarily
overlooked<00:01:47.970> first<00:01:48.420> many<00:01:48.930> for<00:01:49.229> the<00:01:49.350> whole<00:01:49.619> day

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overlooked first many for the whole day

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overlooked first many for the whole day
I<00:01:49.890> have<00:01:50.280> also<00:01:50.490> been<00:01:50.790> fasting<00:01:51.390> and<00:01:52.140> I<00:01:52.290> am<00:01:52.470> still

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I have also been fasting and I am still

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I have also been fasting and I am still
fasting

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fasting

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fasting
I<00:01:53.719> have<00:01:54.439> no<00:01:54.619> other<00:01:54.799> way<00:01:55.070> to<00:01:55.130> access<00:01:55.340> medical

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I have no other way to access medical

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I have no other way to access medical
care<00:01:56.479> oh<00:01:56.840> I<00:01:57.079> say<00:01:57.530> come<00:01:57.799> here<00:01:57.829> for<00:01:58.429> my

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care oh I say come here for my

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care oh I say come here for my
appointment<00:01:58.939> which<00:01:59.749> I<00:01:59.929> did<00:02:00.140> and<00:02:00.499> then<00:02:00.710> I

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appointment which I did and then I

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appointment which I did and then I
registered<00:02:01.520> and<00:02:01.819> I<00:02:01.969> have<00:02:02.149> not<00:02:02.359> yet<00:02:02.390> on<00:02:02.899> the

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registered and I have not yet on the

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registered and I have not yet on the
first<00:02:03.289> feature<00:02:03.679> which<00:02:04.520> I<00:02:04.729> was<00:02:05.719> approved<00:02:06.200> by<00:02:06.409> my

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first feature which I was approved by my

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first feature which I was approved by my
insurance<00:02:06.770> is<00:02:07.340> scheduled<00:02:07.959> for<00:02:08.959> this<00:02:09.349> facility

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insurance is scheduled for this facility

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insurance is scheduled for this facility
is<00:02:10.129> the<00:02:10.160> only<00:02:10.429> facility<00:02:11.209> that<00:02:11.510> will<00:02:12.440> do<00:02:12.769> this

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is the only facility that will do this

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is the only facility that will do this
procedure<00:02:13.640> for<00:02:13.790> my<00:02:14.360> medical<00:02:14.900> plan<00:02:15.260> I<00:02:15.950> don’t

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procedure for my medical plan I don’t

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procedure for my medical plan I don’t
have<00:02:16.760> any<00:02:17.150> other<00:02:17.480> option<00:02:18.049> okay<00:02:18.890> I<00:02:19.099> don’t<00:02:19.459> know

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have any other option okay I don’t know

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have any other option okay I don’t know
what<00:02:22.250> else<00:02:22.519> I<00:02:22.819> need<00:02:22.879> to<00:02:23.209> do<00:02:23.330> to<00:02:23.510> access<00:02:23.989> medical

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what else I need to do to access medical

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what else I need to do to access medical
care<00:02:25.239> okay<00:02:26.239> so<00:02:26.950> so<00:02:27.950> what’s<00:02:28.129> gonna<00:02:28.250> happen<00:02:28.340> so

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care okay so so what’s gonna happen so

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care okay so so what’s gonna happen so
this<00:02:29.510> is<00:02:29.750> the<00:02:29.870> police<00:02:30.140> department<00:02:30.200> can<00:02:31.099> you

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this is the police department can you

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this is the police department can you
hear<00:02:31.310> me<00:02:32.860> okay<00:02:33.860> the<00:02:34.160> police<00:02:34.370> department<00:02:35.090> and

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hear me okay the police department and

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hear me okay the police department and
and<00:02:35.540> and<00:02:35.900> the<00:02:36.379> security<00:02:36.890> guards<00:02:37.160> here<00:02:37.400> we<00:02:37.910> have

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and and the security guards here we have

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and and the security guards here we have
zero<00:02:38.540> control<00:02:38.810> over<00:02:39.440> that

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zero control over that

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zero control over that
you<00:02:40.010> understand<00:02:40.400> that<00:02:41.950> we<00:02:42.950> have<00:02:43.129> zero<00:02:43.400> control

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you understand that we have zero control

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you understand that we have zero control
so<00:02:44.420> when<00:02:44.599> the<00:02:44.720> nurses<00:02:44.959> tell<00:02:45.500> us<00:02:45.829> that<00:02:46.549> there’s

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so when the nurses tell us that there’s

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so when the nurses tell us that there’s
nothing<00:02:47.629> else<00:02:47.930> they<00:02:48.140> can<00:02:48.200> do<00:02:48.500> for<00:02:48.829> you<00:02:50.109> there

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nothing else they can do for you there

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nothing else they can do for you there
is<00:02:51.260> nothing<00:02:51.470> else<00:02:51.799> that<00:02:52.099> we<00:02:52.549> can<00:02:52.579> do<00:02:52.879> for<00:02:53.090> you

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is nothing else that we can do for you

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is nothing else that we can do for you
as<00:02:53.420> well<00:02:53.690> I<00:02:53.989> understand<00:02:54.620> you<00:02:54.890> believe<00:02:55.069> you

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as well I understand you believe you

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as well I understand you believe you
need<00:02:56.180> treatment<00:02:56.690> and<00:02:56.870> I<00:02:57.019> don’t<00:02:57.200> doubt<00:02:57.410> that

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need treatment and I don’t doubt that

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need treatment and I don’t doubt that
you<00:02:58.099> do<00:02:58.370> but<00:02:58.970> when<00:02:59.120> they<00:02:59.239> tell<00:02:59.450> you<00:02:59.599> that<00:02:59.780> they

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you do but when they tell you that they

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you do but when they tell you that they
cannot<00:03:00.319> provide<00:03:00.709> treatment<00:03:01.400> that’s<00:03:01.970> where

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cannot provide treatment that’s where

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cannot provide treatment that’s where
the<00:03:02.359> problem<00:03:02.840> comes<00:03:03.380> in<00:03:04.160> because<00:03:04.400> they’re<00:03:04.940> not

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the problem comes in because they’re not

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the problem comes in because they’re not
going<00:03:05.480> to<00:03:05.510> treat<00:03:05.840> you<00:03:06.049> it’s<00:03:06.470> all<00:03:06.620> sitting<00:03:07.010> here

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going to treat you it’s all sitting here

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going to treat you it’s all sitting here
and<00:03:07.489> waiting<00:03:08.209> is<00:03:08.859> not<00:03:09.859> the<00:03:10.190> solution<00:03:10.370> okay<00:03:10.940> you

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and waiting is not the solution okay you

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and waiting is not the solution okay you
have<00:03:12.260> to<00:03:12.380> go<00:03:12.500> to<00:03:12.560> your<00:03:12.769> primary<00:03:13.040> care<00:03:13.310> provider

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have to go to your primary care provider

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have to go to your primary care provider
and<00:03:14.269> you<00:03:14.660> have<00:03:14.810> to<00:03:14.930> go<00:03:15.079> through<00:03:15.319> your<00:03:15.560> your

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and you have to go through your your

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and you have to go through your your
your<00:03:18.260> doctor<00:03:18.680> in<00:03:18.889> order<00:03:19.310> to<00:03:19.579> get<00:03:19.760> those

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your doctor in order to get those

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your doctor in order to get those
treatments<00:03:20.510> and<00:03:20.660> not<00:03:20.870> the<00:03:21.470> emergency<00:03:22.099> room

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treatments and not the emergency room

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treatments and not the emergency room
orders<00:03:25.069> for<00:03:25.489> the<00:03:25.639> vascular<00:03:26.209> port<00:03:26.540> placement

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orders for the vascular port placement

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orders for the vascular port placement
so<00:03:27.260> I<00:03:27.290> could<00:03:27.590> have<00:03:27.769> ID<00:03:27.980> access<00:03:28.639> over<00:03:29.090> here<00:03:29.359> I

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so I could have ID access over here I

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so I could have ID access over here I
understand<00:03:32.200> the<00:03:33.200> procedure<00:03:33.829> to<00:03:34.040> be<00:03:34.190> approved

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understand the procedure to be approved

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understand the procedure to be approved
by<00:03:34.880> the<00:03:35.239> insurance<00:03:35.989> I<00:03:36.230> got<00:03:37.040> a<00:03:37.069> phone<00:03:37.519> call

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by the insurance I got a phone call

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by the insurance I got a phone call
yesterday<00:03:38.169> confirming<00:03:39.169> that<00:03:39.200> I<00:03:39.410> will<00:03:39.769> be

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yesterday confirming that I will be

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yesterday confirming that I will be
registered<00:03:40.519> at<00:03:41.209> 2<00:03:41.450> o’clock<00:03:41.599> and<00:03:41.900> that<00:03:42.349> I

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registered at 2 o’clock and that I

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registered at 2 o’clock and that I
understand<00:03:43.430> I<00:03:43.609> have<00:03:43.639> to<00:03:44.120> fast<00:03:44.329> for<00:03:44.599> 6<00:03:45.169> hours<00:03:45.590> ok

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in<00:03:50.510> my<00:03:50.690> charts<00:03:51.290> in<00:03:51.920> the<00:03:52.190> portal<00:03:52.780> indicating

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in my charts in the portal indicating

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in my charts in the portal indicating
the<00:03:54.020> name<00:03:54.320> of<00:03:54.590> the<00:03:54.850> physician<00:03:56.470> doctor<00:03:57.470> who<00:03:58.930> was

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the name of the physician doctor who was

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the name of the physician doctor who was
assigned<00:04:00.290> the<00:04:00.530> procedure<00:04:01.130> yes<00:04:01.520> came<00:04:01.820> to<00:04:02.000> talk

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assigned the procedure yes came to talk

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assigned the procedure yes came to talk
to<00:04:02.210> me<00:04:02.630> two<00:04:02.810> times<00:04:03.080> yes<00:04:03.740> and<00:04:04.070> after<00:04:04.580> he<00:04:04.820> loved

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to me two times yes and after he loved

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to me two times yes and after he loved
some<00:04:07.280> other<00:04:07.550> people<00:04:08.090> came<00:04:08.300> in<00:04:08.600> and<00:04:08.870> they<00:04:09.080> they

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some other people came in and they they

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some other people came in and they they
told<00:04:09.830> me<00:04:10.130> not<00:04:10.850> because<00:04:11.390> I’m<00:04:11.600> hard<00:04:11.990> of<00:04:12.170> hearing

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told me not because I’m hard of hearing

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told me not because I’m hard of hearing
I<00:04:13.010> am<00:04:13.480> they<00:04:14.480> are<00:04:14.510> not<00:04:14.870> able<00:04:15.080> to<00:04:15.290> provide<00:04:15.980> the

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I am they are not able to provide the

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I am they are not able to provide the
disability<00:04:17.630> accommodation<00:04:18.560> I<00:04:18.830> told<00:04:19.489> them

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disability accommodation I told them

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disability accommodation I told them
that<00:04:19.970> I<00:04:20.000> am<00:04:20.209> waiving<00:04:20.810> my<00:04:20.840> right<00:04:21.260> for<00:04:21.620> a

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that I am waiving my right for a

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that I am waiving my right for a
translator<00:04:22.250> in<00:04:22.940> the<00:04:23.180> interest<00:04:23.570> of

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translator in the interest of

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translator in the interest of
prioritizing<00:04:24.740> my<00:04:24.950> medical<00:04:25.580> care<00:04:25.940> I<00:04:26.210> also

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prioritizing my medical care I also

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prioritizing my medical care I also
informed<00:04:27.710> the<00:04:27.770> physician<00:04:28.520> that<00:04:28.790> I<00:04:29.060> will<00:04:29.960> be

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informed the physician that I will be

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informed the physician that I will be
happy<00:04:31.040> to<00:04:31.220> sign<00:04:31.460> the<00:04:32.210> forms<00:04:32.630> I<00:04:32.810> am<00:04:32.930> capable<00:04:33.140> of

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happy to sign the forms I am capable of

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happy to sign the forms I am capable of
signing<00:04:34.010> the<00:04:34.040> consent<00:04:34.370> forms<00:04:35.060> and<00:04:35.210> I<00:04:35.810> also

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signing the consent forms and I also

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signing the consent forms and I also
indicated<00:04:36.650> to<00:04:37.310> the<00:04:37.580> team<00:04:38.150> whoever<00:04:38.720> was<00:04:39.050> here

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indicated to the team whoever was here

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indicated to the team whoever was here
that<00:04:40.250> I<00:04:41.560> will<00:04:42.880> they<00:04:43.880> offered<00:04:44.420> me<00:04:44.450> the

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that I will they offered me the

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that I will they offered me the
procedure<00:04:46.340> with<00:04:46.640> anesthesia<00:04:47.150> without

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procedure with anesthesia without

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procedure with anesthesia without
anesthesia<00:04:48.320> they<00:04:49.100> said<00:04:49.340> that<00:04:49.910> because<00:04:50.300> I

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anesthesia they said that because I

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anesthesia they said that because I
because<00:04:53.090> I<00:04:53.120> live<00:04:53.480> alone

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because I live alone

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because I live alone
they<00:04:54.530> cannot<00:04:54.830> let<00:04:55.790> me<00:04:55.940> go<00:04:56.120> with<00:04:56.870> the<00:04:57.140> uber<00:04:57.530> car

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they cannot let me go with the uber car

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they cannot let me go with the uber car
so<00:04:58.280> they<00:04:58.910> will<00:04:59.120> do<00:04:59.270> it<00:04:59.420> without<00:04:59.600> the

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so they will do it without the

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so they will do it without the
anesthesia<00:05:00.530> and<00:05:00.770> I<00:05:00.920> said<00:05:01.550> that<00:05:01.820> I<00:05:02.030> cannot

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anesthesia and I said that I cannot

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anesthesia and I said that I cannot
consent<00:05:03.200> to<00:05:03.290> that<00:05:03.440> did<00:05:04.130> not<00:05:04.280> know<00:05:04.490> that<00:05:04.520> was<00:05:04.880> an

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consent to that did not know that was an

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consent to that did not know that was an
option<00:05:05.300> so<00:05:05.840> I<00:05:06.110> have<00:05:06.530> provided<00:05:06.950> everything<00:05:07.400> for

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option so I have provided everything for

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option so I have provided everything for
them<00:05:08.150> and<00:05:08.560> instead<00:05:09.560> of<00:05:09.830> bringing<00:05:10.610> the<00:05:11.030> social

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them and instead of bringing the social

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them and instead of bringing the social
worker<00:05:11.780> here<00:05:11.990> to<00:05:12.230> assist<00:05:12.650> in<00:05:13.390> finalizing

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worker here to assist in finalizing

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worker here to assist in finalizing
everything<00:05:14.919> I<00:05:15.919> have<00:05:16.610> been<00:05:17.169> poorly<00:05:18.169> treated

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everything I have been poorly treated

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everything I have been poorly treated
here<00:05:18.830> before<00:05:19.280> in<00:05:19.400> the<00:05:19.550> past<00:05:19.730> there<00:05:20.150> at<00:05:20.419> this

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here before in the past there at this

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here before in the past there at this
time

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time

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time
it<00:05:22.430> is<00:05:22.640> was<00:05:22.940> purely<00:05:25.180> denying<00:05:26.180> me<00:05:26.450> treatment<00:05:26.870> on

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it is was purely denying me treatment on

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it is was purely denying me treatment on
the<00:05:27.500> basis<00:05:27.919> of<00:05:28.070> a<00:05:28.190> disability<00:05:28.720> they<00:05:29.720> decided

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the basis of a disability they decided

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the basis of a disability they decided
that<00:05:30.710> I<00:05:30.890> am<00:05:31.220> deaf<00:05:31.640> and<00:05:32.380> therefore<00:05:33.380> cannot

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that I am deaf and therefore cannot

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that I am deaf and therefore cannot
provide<00:05:34.250> consent<00:05:34.820> I<00:05:35.210> have<00:05:36.020> told<00:05:36.260> them<00:05:36.440> I<00:05:36.560> can

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provide consent I have told them I can

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provide consent I have told them I can
hear<00:05:37.100> from<00:05:37.280> my<00:05:37.490> right<00:05:37.730> ear<00:05:38.030> and<00:05:38.210> I<00:05:38.330> can<00:05:38.570> provide

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hear from my right ear and I can provide

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hear from my right ear and I can provide
consent<00:05:39.530> and<00:05:39.980> there<00:05:40.430> is<00:05:40.550> nothing<00:05:41.000> warranting

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consent and there is nothing warranting

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consent and there is nothing warranting
me<00:05:41.960> holding<00:05:42.860> me<00:05:43.070> here<00:05:43.340> for<00:05:44.060> two<00:05:44.540> almost<00:05:44.930> 12

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me holding me here for two almost 12

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me holding me here for two almost 12
hours<00:05:46.120> fasting<00:05:47.120> without<00:05:47.960> the<00:05:48.200> procedure

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hours fasting without the procedure

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hours fasting without the procedure
I’m<00:05:49.400> not<00:05:49.640> medically<00:05:50.270> safe<00:05:50.540> to<00:05:50.810> go<00:05:50.960> another<00:05:51.290> day

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I’m not medically safe to go another day

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I’m not medically safe to go another day
without<00:05:51.830> the<00:05:52.310> procedure<00:05:52.760> and<00:05:53.180> nobody<00:05:53.990> has

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without the procedure and nobody has

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without the procedure and nobody has
provided<00:05:54.620> information<00:05:55.090> guaranteeing<00:05:56.090> for<00:05:56.660> me

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provided information guaranteeing for me

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provided information guaranteeing for me
this<00:05:57.080> procedure<00:05:57.940> if<00:05:58.940> there<00:05:59.360> is<00:05:59.510> a<00:05:59.539> reschedule

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this procedure if there is a reschedule

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this procedure if there is a reschedule
this<00:06:01.300> reschedule<00:06:02.440> nobody<00:06:02.800> has<00:06:03.040> rescheduled

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this reschedule nobody has rescheduled

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this reschedule nobody has rescheduled
nobody<00:06:05.050> has<00:06:05.290> told<00:06:05.530> me<00:06:05.800> how<00:06:05.980> I<00:06:06.370> can<00:06:06.730> access<00:06:07.180> it

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nobody has told me how I can access it

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nobody has told me how I can access it
and<00:06:07.630> this<00:06:07.780> is<00:06:07.990> like<00:06:08.200> I<00:06:08.350> said<00:06:08.590> earlier<00:06:09.100> the<00:06:09.370> only

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and this is like I said earlier the only

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and this is like I said earlier the only
facility<00:06:10.270> that<00:06:10.990> does<00:06:11.200> this<00:06:11.440> procedure<00:06:11.740> in<00:06:12.400> San

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facility that does this procedure in San

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facility that does this procedure in San
Diego<00:06:13.150> for<00:06:13.420> patients<00:06:13.930> with<00:06:14.110> Molina<00:06:17.370> for

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Diego for patients with Molina for

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Diego for patients with Molina for
keeping<00:06:18.880> the<00:06:19.060> appointment<00:06:19.870> okay<00:06:20.560> man<00:06:20.710> there’s

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keeping the appointment okay man there’s

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keeping the appointment okay man there’s
a<00:06:20.950> procedure<00:06:21.400> is<00:06:21.670> a<00:06:21.700> way<00:06:22.180> you<00:06:22.240> have<00:06:22.450> to<00:06:22.570> go

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a procedure is a way you have to go

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a procedure is a way you have to go
about<00:06:22.900> doing<00:06:23.110> these<00:06:23.440> things<00:06:23.620> okay<00:06:23.980> because

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about doing these things okay because

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about doing these things okay because
you<00:06:24.640> can’t<00:06:24.880> just<00:06:25.210> because<00:06:26.080> you’re<00:06:26.320> upset<00:06:26.890> that

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you can’t just because you’re upset that

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you can’t just because you’re upset that
they<00:06:27.490> haven’t<00:06:27.670> helped<00:06:28.450> you<00:06:28.600> today<00:06:28.930> there’s<00:06:29.920> a

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they haven’t helped you today there’s a

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they haven’t helped you today there’s a
procedure<00:06:30.460> you<00:06:30.700> have<00:06:30.850> to<00:06:30.970> go<00:06:31.090> through<00:06:31.360> you

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procedure you have to go through you

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procedure you have to go through you
have<00:06:31.540> a<00:06:31.720> social<00:06:32.200> worker<00:06:32.410> you<00:06:33.100> have<00:06:33.250> a<00:06:33.280> doctor

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have a social worker you have a doctor

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have a social worker you have a doctor
you<00:06:34.390> have<00:06:34.420> to<00:06:34.660> go<00:06:34.780> through<00:06:35.080> these<00:06:35.460> persons<00:06:36.460> and

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you have to go through these persons and

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you have to go through these persons and
then<00:06:37.270> make<00:06:37.540> an<00:06:37.660> appointment<00:06:37.780> to<00:06:38.320> get<00:06:38.440> that

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then make an appointment to get that

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then make an appointment to get that
procedure<00:06:38.980> scheduled<00:06:39.580> stay<00:06:40.210> in<00:06:44.790> okay<00:06:45.790> so<00:06:46.860> that

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procedure scheduled stay in okay so that

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procedure scheduled stay in okay so that
has<00:06:48.580> nothing<00:06:48.790> to<00:06:49.000> do<00:06:49.240> with<00:06:49.360> this<00:06:49.570> right<00:06:49.870> now

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has nothing to do with this right now

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has nothing to do with this right now
okay<00:06:50.920> they<00:06:51.100> meet<00:06:51.310> this<00:06:51.550> role<00:06:51.820> okay<00:06:52.240> they<00:06:52.690> need

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okay they meet this role okay they need

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okay they meet this role okay they need
this<00:06:53.260> room<00:06:53.470> if<00:06:53.770> you<00:06:54.040> need<00:06:54.160> a<00:06:54.190> ride<00:06:54.400> home<00:06:54.700> we

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this room if you need a ride home we

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this room if you need a ride home we
could<00:06:55.150> give<00:06:55.270> you<00:06:55.360> a<00:06:55.390> ride<00:06:55.540> home<00:06:55.780> but<00:06:56.110> you<00:06:56.440> can’t

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could give you a ride home but you can’t

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could give you a ride home but you can’t
sit<00:06:56.920> here<00:06:57.130> and<00:06:57.280> occupy<00:06:57.670> a<00:06:57.700> room<00:06:57.940> because<00:06:58.120> they

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sit here and occupy a room because they

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sit here and occupy a room because they
cannot<00:06:58.690> help<00:06:58.960> you<00:06:59.140> at<00:06:59.410> this<00:06:59.890> time<00:07:00.160> they<00:07:00.910> cannot

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cannot help you at this time they cannot

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cannot help you at this time they cannot
and<00:07:01.680> you<00:07:02.680> sitting<00:07:02.950> here<00:07:03.310> is<00:07:03.520> not<00:07:04.240> going<00:07:04.450> to<00:07:04.540> be

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and you sitting here is not going to be

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and you sitting here is not going to be
able<00:07:04.750> to<00:07:04.900> help<00:07:05.170> or<00:07:05.830> is<00:07:05.950> not<00:07:06.070> gonna<00:07:06.160> be<00:07:06.310> able<00:07:06.400> to

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able to help or is not gonna be able to

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able to help or is not gonna be able to
do<00:07:06.850> anything<00:07:07.120> you<00:07:07.510> know<00:07:07.630> somebody<00:07:07.930> else<00:07:08.110> need

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do anything you know somebody else need

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do anything you know somebody else need
services<00:07:08.890> they’ve<00:07:09.850> helped<00:07:10.480> you<00:07:10.540> today<00:07:10.690> you’ve

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services they’ve helped you today you’ve

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services they’ve helped you today you’ve
been<00:07:11.170> here<00:07:11.290> 12<00:07:11.530> hours<00:07:11.710> and<00:07:12.160> I<00:07:12.550> understand

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been here 12 hours and I understand

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been here 12 hours and I understand
you’re<00:07:13.030> not<00:07:13.150> happy<00:07:13.480> with<00:07:13.510> the<00:07:13.630> service<00:07:14.100> but<00:07:15.100> I

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you’re not happy with the service but I

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you’re not happy with the service but I
checked<00:07:17.740> in<00:07:18.040> I<00:07:18.280> have<00:07:18.550> not<00:07:18.760> yet<00:07:19.380> she<00:07:20.380> said<00:07:20.590> you

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checked in I have not yet she said you

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checked in I have not yet she said you
spoken<00:07:21.100> to<00:07:21.220> the<00:07:21.370> doctors<00:07:21.790> already<00:07:22.540> and<00:07:22.840> they

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spoken to the doctors already and they

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spoken to the doctors already and they
told<00:07:23.200> you<00:07:23.350> that<00:07:23.500> they<00:07:23.590> cannot<00:07:23.890> do<00:07:24.130> it<00:07:24.310> I<00:07:24.520> spoke

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told you that they cannot do it I spoke

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told you that they cannot do it I spoke
to<00:07:25.660> the<00:07:25.780> doctor<00:07:26.230> to<00:07:26.410> ask<00:07:26.620> him<00:07:26.950> about<00:07:27.100> the<00:07:27.520> two

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to the doctor to ask him about the two

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to the doctor to ask him about the two
questions<00:07:28.990> that<00:07:29.080> I<00:07:29.260> was<00:07:29.770> supposed<00:07:30.160> to<00:07:30.220> ask

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questions that I was supposed to ask

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questions that I was supposed to ask
about<00:07:30.730> the<00:07:31.060> procedure<00:07:31.780> okay<00:07:32.440> finding<00:07:32.890> out

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about the procedure okay finding out

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about the procedure okay finding out
technicalities<00:07:34.540> about<00:07:34.870> the<00:07:35.050> type<00:07:35.260> of<00:07:35.290> port

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technicalities about the type of port

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technicalities about the type of port
that<00:07:36.010> whether<00:07:36.490> it<00:07:36.940> needs<00:07:36.970> to<00:07:37.360> be<00:07:37.450> covered<00:07:37.660> in

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that whether it needs to be covered in

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that whether it needs to be covered in
water<00:07:38.200> or<00:07:38.470> not<00:07:38.970> and<00:07:39.970> whether<00:07:40.390> he<00:07:40.750> will<00:07:40.930> be<00:07:41.110> able

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water or not and whether he will be able

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water or not and whether he will be able
to<00:07:41.530> provide<00:07:41.980> the<00:07:42.780> clearance<00:07:43.780> for<00:07:44.140> the<00:07:44.320> home

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to provide the clearance for the home

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to provide the clearance for the home
health<00:07:45.070> nurse<00:07:45.670> to<00:07:46.090> be<00:07:46.240> able<00:07:46.420> to<00:07:46.570> access<00:07:47.170> the

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health nurse to be able to access the

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health nurse to be able to access the
port<00:07:47.620> okay<00:07:48.040> but<00:07:48.220> that<00:07:48.340> has<00:07:48.790> nothing<00:07:49.030> that<00:07:49.390> has

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port okay but that has nothing that has

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port okay but that has nothing that has
nothing<00:07:49.840> to<00:07:49.870> do<00:07:50.080> with<00:07:54.630> right<00:07:55.630> now<00:07:55.810> because

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nothing to do with right now because

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nothing to do with right now because
we’re<00:07:56.500> here<00:07:56.710> the<00:07:56.830> police<00:07:57.100> are<00:07:57.250> here<00:07:57.400> so<00:07:58.150> at

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we’re here the police are here so at

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we’re here the police are here so at
this<00:07:58.990> point<00:07:59.260> it’s<00:07:59.710> past<00:08:00.040> that<00:08:00.570> UCSD<00:08:01.570> tends<00:08:01.930> to

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this point it’s past that UCSD tends to

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this point it’s past that UCSD tends to
solve<00:08:02.530> problems<00:08:03.630> with<00:08:04.630> police<00:08:05.140> that<00:08:05.560> doesn’t

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solve problems with police that doesn’t

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solve problems with police that doesn’t
serve<00:08:06.190> the<00:08:06.220> community<00:08:07.090> is<00:08:07.330> on<00:08:07.600> it

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serve the community is on it

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serve the community is on it
resources<00:08:09.830> okay<00:08:10.580> guys<00:08:10.790> zero<00:08:11.060> control<00:08:11.330> over

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resources okay guys zero control over

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resources okay guys zero control over
that<00:08:11.810> okay<00:08:11.930> so<00:08:12.110> what<00:08:12.470> we<00:08:12.560> have<00:08:12.710> to<00:08:12.830> do<00:08:13.010> is<00:08:13.280> we

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that okay so what we have to do is we

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that okay so what we have to do is we
have<00:08:14.120> to<00:08:14.240> ask<00:08:14.390> you<00:08:14.630> to<00:08:15.500> leave<00:08:16.040> okay<00:08:16.880> I<00:08:17.600> actually

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have to ask you to leave okay I actually

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have to ask you to leave okay I actually
have<00:08:18.350> a<00:08:18.380> legal<00:08:19.070> right<00:08:19.250> to<00:08:19.310> access<00:08:19.730> medical

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have a legal right to access medical

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have a legal right to access medical
care

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care

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care
there<00:08:21.710> was<00:08:21.860> a<00:08:21.890> point<00:08:22.280> to<00:08:22.460> to<00:08:22.700> me<00:08:22.880> and<00:08:23.030> if<00:08:23.210> there

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there was a point to to me and if there

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there was a point to to me and if there
is<00:08:23.690> any<00:08:23.930> reason<00:08:24.260> why<00:08:24.620> the<00:08:24.680> medical<00:08:25.370> care

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is any reason why the medical care

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is any reason why the medical care
cannot<00:08:25.910> be<00:08:26.060> provided<00:08:26.480> to<00:08:26.870> me<00:08:27.020> then<00:08:27.530> I<00:08:27.560> need<00:08:27.770> to

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cannot be provided to me then I need to

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cannot be provided to me then I need to
be<00:08:28.220> informed<00:08:28.790> about<00:08:29.000> that<00:08:29.450> and<00:08:29.780> I<00:08:30.590> will<00:08:31.460> no

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be informed about that and I will no

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be informed about that and I will no
longer<00:08:32.030> be<00:08:32.390> poorly<00:08:32.720> treated<00:08:33.230> I<00:08:34.840> understand

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longer be poorly treated I understand

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longer be poorly treated I understand
nothing<00:08:36.800> to<00:08:36.980> do<00:08:37.100> with<00:08:37.190> the<00:08:37.310> police<00:08:37.550> department

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nothing to do with the police department

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nothing to do with the police department
okay<00:08:38.330> you’re<00:08:38.900> gonna<00:08:38.990> do<00:08:39.110> with<00:08:39.230> the<00:08:39.290> police

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okay you’re gonna do with the police

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okay you’re gonna do with the police
department<00:08:39.980> because<00:08:40.160> there’s<00:08:40.370> only<00:08:40.490> two

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department because there’s only two

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department because there’s only two
options<00:08:40.730> here<00:08:41.390> alright<00:08:41.930> I<00:08:41.990> just<00:08:42.020> want<00:08:42.170> you<00:08:42.350> to

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options here alright I just want you to

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options here alright I just want you to
understand<00:08:42.860> that<00:08:42.980> okay<00:08:43.190> either<00:08:44.590> you<00:08:45.590> have<00:08:45.860> to

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understand that okay either you have to

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understand that okay either you have to
step<00:08:46.220> outside<00:08:46.430> or<00:08:47.000> gonna<00:08:47.330> have<00:08:47.510> to<00:08:47.570> get<00:08:47.720> your

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step outside or gonna have to get your

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step outside or gonna have to get your
medical<00:08:48.560> treatment<00:08:48.770> at<00:08:49.160> Las<00:08:49.310> Colinas<00:08:49.850> all

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medical treatment at Las Colinas all

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medical treatment at Las Colinas all
right<00:08:50.330> and<00:08:50.600> I<00:08:50.750> don’t<00:08:50.810> want<00:08:51.080> it<00:08:51.200> have<00:08:51.350> to<00:08:51.500> do

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right and I don’t want it have to do

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right and I don’t want it have to do
that’s<00:08:52.070> the<00:08:52.220> woman’s<00:08:52.580> the<00:08:53.270> attention

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that’s the woman’s the attention

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that’s the woman’s the attention
facility<00:08:54.290> okay<00:08:54.980> it’s<00:08:55.760> at<00:08:56.120> the<00:08:56.240> jail<00:08:56.450> all<00:08:57.320> right

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facility okay it’s at the jail all right

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facility okay it’s at the jail all right
and<00:08:57.740> that’s<00:08:57.920> where<00:08:58.070> if<00:08:58.310> you’re<00:08:58.490> trespassing

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and that’s where if you’re trespassing

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and that’s where if you’re trespassing
which<00:08:59.360> is<00:08:59.480> this<00:08:59.780> can<00:09:00.020> be<00:09:00.050> considered<00:09:00.560> because

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which is this can be considered because

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which is this can be considered because
the<00:09:00.980> nurses<00:09:01.370> have<00:09:02.150> told<00:09:02.420> you<00:09:02.600> that<00:09:02.780> you<00:09:02.990> you’re

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the nurses have told you that you you’re

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the nurses have told you that you you’re
gone<00:09:04.510> clearly<00:09:05.620> okay<00:09:06.620> you<00:09:07.160> have<00:09:07.370> to<00:09:07.550> leave<00:09:07.730> I

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gone clearly okay you have to leave I

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gone clearly okay you have to leave I
also<00:09:10.820> have<00:09:11.270> to<00:09:11.450> be<00:09:11.600> here<00:09:11.840> for<00:09:11.870> my<00:09:12.350> procedure

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also have to be here for my procedure

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also have to be here for my procedure
where<00:09:13.490> should<00:09:13.730> I<00:09:13.820> go<00:09:14.030> well<00:09:14.510> you<00:09:14.600> have<00:09:14.750> to<00:09:14.870> talk

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where should I go well you have to talk

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where should I go well you have to talk
to<00:09:15.080> your<00:09:15.260> doctor<00:09:15.440> and<00:09:15.680> your<00:09:16.040> social<00:09:16.460> worker

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to your doctor and your social worker

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to your doctor and your social worker
about<00:09:17.180> that<00:09:17.630> I<00:09:17.810> have<00:09:18.520> doctor’s<00:09:19.520> orders<00:09:20.000> and

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about that I have doctor’s orders and

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about that I have doctor’s orders and
the<00:09:20.840> social<00:09:21.380> what<00:09:21.530> their<00:09:21.740> procedures<00:09:22.340> are<00:09:22.730> not

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the social what their procedures are not

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the social what their procedures are not
today<00:09:23.120> and<00:09:23.570> they<00:09:24.080> are<00:09:24.170> not<00:09:24.350> in<00:09:24.560> here<00:09:24.860> who<00:09:25.550> did

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today and they are not in here who did

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today and they are not in here who did
not<00:09:25.970> bring<00:09:26.300> the<00:09:26.570> social<00:09:26.780> worker<00:09:27.170> I<00:09:27.410> asked<00:09:27.710> if

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not bring the social worker I asked if

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not bring the social worker I asked if
they<00:09:28.250> need<00:09:28.490> help<00:09:28.730> that<00:09:28.850> is<00:09:29.180> your<00:09:29.420> job<00:09:29.450> that<00:09:30.080> is

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they need help that is your job that is

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they need help that is your job that is
not<00:09:30.350> their<00:09:30.590> job<00:09:30.830> that<00:09:31.190> is<00:09:31.340> your<00:09:31.580> job<00:09:31.610> you’re

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not their job that is your job you’re

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not their job that is your job you’re
trying<00:09:32.750> to<00:09:32.810> put<00:09:32.960> your<00:09:32.990> job<00:09:33.350> on<00:09:33.560> to<00:09:33.740> them<00:09:33.950> your

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trying to put your job on to them your

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trying to put your job on to them your
job<00:09:34.790> is<00:09:34.970> to<00:09:35.000> get<00:09:35.210> the<00:09:35.300> social<00:09:35.480> worker<00:09:35.780> and<00:09:36.050> the

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job is to get the social worker and the

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job is to get the social worker and the
doctor<00:09:36.710> and<00:09:36.980> to<00:09:37.220> come<00:09:37.370> to<00:09:37.490> the<00:09:37.580> hospital<00:09:38.120> for

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doctor and to come to the hospital for

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doctor and to come to the hospital for
your<00:09:38.690> appointment<00:09:39.260> I<00:09:39.470> do<00:09:40.070> not<00:09:40.310> have<00:09:40.640> a<00:09:40.700> social

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your appointment I do not have a social

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your appointment I do not have a social
worker<00:09:41.630> who<00:09:41.960> will<00:09:42.140> come<00:09:42.410> to<00:09:42.590> the<00:09:42.710> hospital

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worker who will come to the hospital

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worker who will come to the hospital
that’s<00:09:43.580> not<00:09:43.850> a<00:09:43.880> social<00:09:44.450> worker

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that’s not a social worker

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that’s not a social worker
okay<00:09:45.170> well<00:09:45.320> you<00:09:45.470> have<00:09:45.500> to<00:09:45.770> figure<00:09:45.920> that<00:09:46.040> out

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okay well you have to figure that out

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okay well you have to figure that out
you<00:09:46.460> can’t<00:09:46.700> stay<00:09:46.970> in<00:09:47.000> here<00:09:47.210> because<00:09:47.870> you’re

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you can’t stay in here because you’re

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you can’t stay in here because you’re
upset<00:09:48.440> with<00:09:48.740> your<00:09:48.920> treatment

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upset with your treatment

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upset with your treatment
you<00:09:49.520> cannot<00:09:49.820> alright<00:09:50.780> I<00:09:51.140> don’t<00:09:51.440> I<00:09:51.740> don’t<00:09:51.800> know

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you cannot alright I don’t I don’t know

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you cannot alright I don’t I don’t know
I<00:09:52.010> can’t<00:09:52.760> keep<00:09:52.940> explaining<00:09:53.270> that<00:09:53.600> to<00:09:53.660> you<00:09:53.900> I

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I can’t keep explaining that to you I

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I can’t keep explaining that to you I
understand<00:09:54.530> that<00:09:54.710> either<00:09:55.220> you<00:09:55.460> have<00:09:55.490> to<00:09:55.670> leave

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understand that either you have to leave

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understand that either you have to leave
or<00:09:56.330> we<00:09:57.020> have<00:09:57.230> to<00:09:57.380> arrest<00:09:57.740> you<00:09:57.920> I<00:09:58.190> don’t<00:09:58.310> want<00:09:58.610> to

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or we have to arrest you I don’t want to

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or we have to arrest you I don’t want to
arrest<00:09:59.090> you<00:09:59.270> I<00:09:59.620> come<00:10:00.620> here<00:10:01.330> to<00:10:02.330> comply<00:10:02.900> with

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arrest you I come here to comply with

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arrest you I come here to comply with
our<00:10:03.230> medical<00:10:03.920> orders<00:10:04.340> okay<00:10:08.020> information<00:10:09.020> okay

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our medical orders okay information okay

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our medical orders okay information okay
I<00:10:09.640> have<00:10:10.640> a<00:10:10.670> right<00:10:11.000> to<00:10:11.360> medical<00:10:11.810> treatment<00:10:12.020> yes

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I have a right to medical treatment yes

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I have a right to medical treatment yes
approved<00:10:13.700> by<00:10:13.970> insurance<00:10:14.630> well<00:10:15.050> I’m<00:10:15.110> just

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approved by insurance well I’m just

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approved by insurance well I’m just
letting<00:10:15.350> you<00:10:15.500> know<00:10:15.530> you’re<00:10:15.680> gonna<00:10:15.800> get<00:10:15.950> your

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letting you know you’re gonna get your

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letting you know you’re gonna get your
medical<00:10:16.400> treatment<00:10:16.550> in<00:10:17.150> jail<00:10:17.810> if<00:10:18.230> you<00:10:18.740> don’t

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medical treatment in jail if you don’t

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medical treatment in jail if you don’t
step<00:10:19.310> out<00:10:19.550> and<00:10:19.820> we<00:10:20.300> you’re<00:10:20.630> occupying<00:10:20.810> this

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step out and we you’re occupying this

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step out and we you’re occupying this
room<00:10:21.560> when<00:10:21.950> they’ve<00:10:22.070> already<00:10:22.220> cleared

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room when they’ve already cleared

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room when they’ve already cleared
we’ve<00:10:23.360> asked<00:10:23.570> you<00:10:23.690> guys<00:10:23.950> what<00:10:24.950> is<00:10:25.130> the<00:10:25.310> problem

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we’ve asked you guys what is the problem

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we’ve asked you guys what is the problem
with<00:10:26.000> receiving<00:10:26.570> medical<00:10:26.990> care<00:10:27.050> at<00:10:27.410> this

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with receiving medical care at this

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with receiving medical care at this
facility<00:10:27.830> you<00:10:28.610> have<00:10:28.640> to<00:10:28.880> do<00:10:29.000> it<00:10:29.120> the<00:10:29.240> right<00:10:29.450> way

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facility you have to do it the right way

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facility you have to do it the right way
that<00:10:30.560> is<00:10:30.770> it<00:10:31.420> you<00:10:32.420> can’t<00:10:32.660> just<00:10:32.900> sit<00:10:33.020> here<00:10:33.080> and

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that is it you can’t just sit here and

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that is it you can’t just sit here and
wait<00:10:33.620> for<00:10:33.680> medical<00:10:34.100> treatment<00:10:34.490> because<00:10:35.000> the

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wait for medical treatment because the

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wait for medical treatment because the
whole<00:10:35.360> city<00:10:36.020> would<00:10:36.560> do<00:10:36.740> that<00:10:36.950> you<00:10:37.550> have<00:10:37.730> to<00:10:37.760> go

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whole city would do that you have to go

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whole city would do that you have to go
through<00:10:38.180> proper<00:10:38.330> procedures<00:10:39.020> to<00:10:39.440> get<00:10:39.620> your<00:10:39.770> to

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through proper procedures to get your to

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through proper procedures to get your to
get<00:10:40.370> your<00:10:40.520> treatment<00:10:40.790> yes<00:10:41.590> and<00:10:42.590> thank<00:10:43.370> you<00:10:43.490> no

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get your treatment yes and thank you no

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get your treatment yes and thank you no
no<00:10:44.060> are<00:10:44.360> you<00:10:44.540> sitting<00:10:44.930> in<00:10:45.050> here<00:10:45.110> it’s<00:10:45.770> not<00:10:45.980> the

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no are you sitting in here it’s not the

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no are you sitting in here it’s not the
right<00:10:46.340> way<00:10:46.550> when<00:10:46.850> they’ve<00:10:46.970> asked<00:10:47.240> you<00:10:47.330> to

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right way when they’ve asked you to

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right way when they’ve asked you to
leave<00:10:47.630> you<00:10:48.290> have<00:10:48.440> to<00:10:48.530> go<00:10:48.650> to<00:10:48.710> your<00:10:48.890> primary

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leave you have to go to your primary

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leave you have to go to your primary
care<00:10:49.340> doctor<00:10:49.550> okay<00:10:50.360> your<00:10:50.750> primary<00:10:51.110> care

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care doctor okay your primary care

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care doctor okay your primary care
doctor<00:10:53.440> yes<00:10:54.440> and<00:10:54.680> get<00:10:54.920> that<00:10:55.100> settled<00:10:55.400> to<00:10:55.880> where

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doctor yes and get that settled to where

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doctor yes and get that settled to where
you<00:10:56.180> could<00:10:56.300> walk<00:10:56.510> in<00:10:56.810> and<00:10:57.080> have<00:10:57.290> your

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you could walk in and have your

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you could walk in and have your
procedure<00:10:57.860> done<00:10:58.160> and<00:10:58.460> that’s<00:10:58.670> it<00:10:58.970> in<00:10:59.180> the

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procedure done and that’s it in the

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procedure done and that’s it in the
emergency<00:10:59.930> room<00:11:00.110> yes<00:11:00.650> I<00:11:00.860> registered<00:11:01.490> in<00:11:01.850> the

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emergency room yes I registered in the

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emergency room yes I registered in the
admissions<00:11:03.260> office<00:11:03.530> and<00:11:04.160> I<00:11:04.280> signed<00:11:04.610> the

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admissions office and I signed the

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admissions office and I signed the
consent<00:11:05.000> for<00:11:05.390> treatment<00:11:05.630> any<00:11:06.170> clock<00:11:06.590> can<00:11:06.920> you

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consent for treatment any clock can you

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consent for treatment any clock can you
take<00:11:07.130> a<00:11:07.160> seat<00:11:07.340> primary<00:11:07.700> hurt<00:11:08.020> can<00:11:09.020> you<00:11:09.080> take<00:11:09.200> a

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take a seat primary hurt can you take a

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take a seat primary hurt can you take a
seat<00:11:09.290> your<00:11:09.590> hands<00:11:09.770> are<00:11:09.950> shaking<00:11:10.310> I<00:11:10.520> can<00:11:10.970> tell

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seat your hands are shaking I can tell

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seat your hands are shaking I can tell
you’re<00:11:11.300> upset<00:11:11.330> just<00:11:11.720> take<00:11:11.930> a<00:11:11.960> seat<00:11:12.140> while<00:11:12.290> we

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you’re upset just take a seat while we

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you’re upset just take a seat while we
talk<00:11:12.590> about<00:11:12.710> Gloria<00:11:14.350> come<00:11:15.350> over<00:11:15.560> here<00:11:15.740> come

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talk about Gloria come over here come

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talk about Gloria come over here come
over<00:11:16.220> here<00:11:16.460> I’m<00:11:16.730> pretty<00:11:17.000> loud<00:11:17.180> come<00:11:17.930> over<00:11:18.170> here

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over here I’m pretty loud come over here

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over here I’m pretty loud come over here
come<00:11:19.040> to<00:11:19.220> me<00:11:19.370> take<00:11:19.880> a<00:11:19.940> seat

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come to me take a seat

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come to me take a seat
you’re<00:11:22.160> telling<00:11:22.370> me<00:11:22.430> you<00:11:22.550> can’t<00:11:22.760> hear<00:11:22.880> me

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you’re telling me you can’t hear me

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you’re telling me you can’t hear me
right<00:11:23.060> now<00:11:24.370> Annie<00:11:25.370> can<00:11:25.760> you<00:11:25.820> not<00:11:26.030> hear<00:11:26.210> me<00:11:26.360> you

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right now Annie can you not hear me you

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right now Annie can you not hear me you
can<00:11:27.020> hear<00:11:27.170> me<00:11:27.290> yes<00:11:27.710> okay<00:11:27.890> take<00:11:28.520> a<00:11:28.550> seat<00:11:28.640> please

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can hear me yes okay take a seat please

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can hear me yes okay take a seat please
take<00:11:29.960> a<00:11:29.990> seat<00:11:30.230> on<00:11:30.320> the<00:11:30.440> end<00:11:30.560> of<00:11:30.590> the<00:11:30.680> bed<00:11:33.850> so

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take a seat on the end of the bed so

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take a seat on the end of the bed so
that<00:11:34.970> would<00:11:35.060> be<00:11:35.150> the<00:11:35.270> opposite<00:11:35.690> way<00:11:35.840> at<00:11:35.990> the

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that would be the opposite way at the

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that would be the opposite way at the
end<00:11:36.200> of<00:11:36.260> the<00:11:36.320> bed<00:11:36.500> but<00:11:36.860> if<00:11:36.950> you<00:11:37.040> want<00:11:37.190> to<00:11:37.250> take<00:11:37.370> a

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end of the bed but if you want to take a

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end of the bed but if you want to take a
seat<00:11:37.610> over<00:11:37.730> there<00:11:37.820> that’s<00:11:38.120> fine<00:11:38.360> I<00:11:39.140> want<00:11:39.890> you

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seat over there that’s fine I want you

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seat over there that’s fine I want you
to<00:11:40.070> take<00:11:40.250> a<00:11:40.280> look<00:11:40.490> easier<00:11:41.120> for<00:11:41.540> me<00:11:42.550> okay

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to take a look easier for me okay

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to take a look easier for me okay
there<00:11:44.690> is<00:11:44.870> nobody<00:11:45.320> outside<00:11:45.770> right<00:11:46.010> now<00:11:46.130> there

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there is nobody outside right now there

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there is nobody outside right now there
are<00:11:47.270> no<00:11:47.480> doctors<00:11:48.350> there<00:11:48.830> is<00:11:48.920> no<00:11:49.070> nurses<00:11:49.370> if<00:11:50.060> you

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are no doctors there is no nurses if you

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are no doctors there is no nurses if you
look<00:11:50.450> at<00:11:50.600> this<00:11:50.750> Bay<00:11:50.930> over<00:11:51.080> here<00:11:52.960> the<00:11:53.960> staff<00:11:54.260> has

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look at this Bay over here the staff has

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look at this Bay over here the staff has
asked<00:11:54.890> you<00:11:54.950> to<00:11:55.010> leave<00:11:55.270> police<00:11:56.270> are<00:11:56.450> asking<00:11:56.600> you

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asked you to leave police are asking you

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asked you to leave police are asking you
to<00:11:56.930> leave<00:11:57.230> at<00:11:57.710> this<00:11:58.040> point<00:11:58.280> it’s<00:11:58.610> considered

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to leave at this point it’s considered

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to leave at this point it’s considered
trespassing<00:12:02.770> where<00:12:03.770> do<00:12:04.130> I<00:12:04.900> ready<00:12:05.900> if<00:12:06.230> you

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trespassing where do I ready if you

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trespassing where do I ready if you
think<00:12:06.560> you’re<00:12:06.680> being<00:12:06.800> refused<00:12:07.220> medical

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think you’re being refused medical

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think you’re being refused medical
treatment<00:12:07.610> go<00:12:07.970> to<00:12:08.030> a<00:12:08.120> different<00:12:08.360> hospital<00:12:08.750> but

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treatment go to a different hospital but

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treatment go to a different hospital but
this<00:12:09.680> hospital<00:12:09.860> has<00:12:10.280> cleared<00:12:10.670> you<00:12:10.960> medically

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this hospital has cleared you medically

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this hospital has cleared you medically
cleared<00:12:12.290> you<00:12:12.470> yes<00:12:13.160> this<00:12:13.460> is<00:12:13.670> the<00:12:13.790> only

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cleared you yes this is the only

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cleared you yes this is the only
facility<00:12:14.660> that<00:12:15.380> does<00:12:15.620> the<00:12:15.830> procedure<00:12:16.220> under

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facility that does the procedure under

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facility that does the procedure under
the<00:12:16.910> medical<00:12:17.390> insurance<00:12:17.900> plan<00:12:18.440> bag<00:12:18.800> right<00:12:19.250> and

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the medical insurance plan bag right and

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the medical insurance plan bag right and
you<00:12:19.820> will<00:12:19.970> have<00:12:20.120> to<00:12:20.270> follow<00:12:20.420> up<00:12:20.720> with<00:12:20.870> medical

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you will have to follow up with medical

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you will have to follow up with medical
or<00:12:21.770> the<00:12:21.980> hospital<00:12:22.460> a<00:12:22.550> later<00:12:22.760> date<00:12:23.000> but<00:12:23.540> there

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or the hospital a later date but there

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or the hospital a later date but there
is<00:12:23.840> nobody<00:12:24.080> in<00:12:24.410> this<00:12:24.500> whole<00:12:24.680> Bay<00:12:24.890> to<00:12:24.950> treat<00:12:25.310> you

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is nobody in this whole Bay to treat you

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is nobody in this whole Bay to treat you
it’s<00:12:25.670> empty<00:12:26.000> the<00:12:26.510> only<00:12:26.690> people<00:12:26.840> here<00:12:27.290> is<00:12:27.440> us

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it’s empty the only people here is us

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it’s empty the only people here is us
and<00:12:28.100> security<00:12:28.730> there’s<00:12:29.480> nobody<00:12:29.840> else<00:12:29.990> here<00:12:30.170> to

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and security there’s nobody else here to

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and security there’s nobody else here to
treat<00:12:30.470> you<00:12:30.650> today<00:12:30.770> and<00:12:31.160> they’re<00:12:31.520> asking<00:12:31.970> you

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treat you today and they’re asking you

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treat you today and they’re asking you
to<00:12:32.089> leave<00:12:32.300> which<00:12:32.660> you<00:12:32.750> have<00:12:32.870> refused<00:12:33.320> which<00:12:33.710> is

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to leave which you have refused which is

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to leave which you have refused which is
why<00:12:33.980> the<00:12:34.040> police<00:12:34.520> are<00:12:34.700> here

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why the police are here

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why the police are here
we<00:12:35.540> are<00:12:35.660> asking<00:12:36.050> you<00:12:36.110> to

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we are asking you to

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we are asking you to
and<00:12:36.870> you<00:12:37.560> seem<00:12:38.250> to<00:12:38.340> be<00:12:38.460> going<00:12:38.580> in<00:12:38.760> circles

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and you seem to be going in circles

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and you seem to be going in circles
about<00:12:39.330> your<00:12:39.510> treatment<00:12:39.720> that<00:12:40.350> we<00:12:40.530> have<00:12:41.070> no

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about your treatment that we have no

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about your treatment that we have no
control<00:12:41.490> over<00:12:41.790> so<00:12:42.720> there’s<00:12:42.900> a<00:12:42.960> nurse<00:12:43.170> that’s

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control over so there’s a nurse that’s

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control over so there’s a nurse that’s
going<00:12:43.560> to<00:12:43.620> come<00:12:43.740> explain<00:12:44.130> it<00:12:44.250> to<00:12:44.340> you<00:12:44.430> one<00:12:44.610> last

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going to come explain it to you one last

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going to come explain it to you one last
time<00:12:44.910> about<00:12:45.420> why<00:12:46.230> your<00:12:46.440> treatment<00:12:46.890> or

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time about why your treatment or

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time about why your treatment or
procedure<00:12:47.340> cannot<00:12:47.850> be<00:12:48.000> done<00:12:48.210> today<00:12:48.390> and<00:12:48.750> if

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procedure cannot be done today and if

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procedure cannot be done today and if
you<00:12:49.440> continue<00:12:49.890> to<00:12:49.920> refuse<00:12:50.190> past<00:12:51.030> that<00:12:51.330> you’ll

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you continue to refuse past that you’ll

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you continue to refuse past that you’ll
be<00:12:51.960> taken<00:12:52.260> to<00:12:52.320> jail<00:12:52.500> is<00:12:53.430> this<00:12:53.790> person<00:12:54.450> able<00:12:54.750> to

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be taken to jail is this person able to

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be taken to jail is this person able to
we<00:12:56.850> have<00:12:57.000> no<00:12:57.150> control<00:12:57.540> over<00:12:57.570> who<00:12:57.960> comes<00:12:58.230> in

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we have no control over who comes in

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we have no control over who comes in
here<00:12:58.620> we<00:12:58.890> have<00:12:59.010> zero<00:12:59.220> control<00:12:59.550> the<00:12:59.820> person

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here we have zero control the person

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here we have zero control the person
able<00:13:00.480> to<00:13:00.900> provide<00:13:01.320> information<00:13:01.620> for<00:13:02.280> me<00:13:02.910> on

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able to provide information for me on

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able to provide information for me on
how<00:13:04.350> I<00:13:04.380> can<00:13:04.830> access<00:13:05.280> this<00:13:05.900> procedure<00:13:06.900> I<00:13:08.300> I

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how I can access this procedure I I

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how I can access this procedure I I
imagine<00:13:10.050> it<00:13:10.140> would<00:13:10.200> be<00:13:10.260> following<00:13:10.620> up<00:13:10.800> with

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imagine it would be following up with

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imagine it would be following up with
your<00:13:11.040> primary<00:13:11.220> care<00:13:11.640> physician<00:13:11.670> again<00:13:12.270> but

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your primary care physician again but

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your primary care physician again but
you<00:13:12.780> feel<00:13:13.500> free<00:13:13.710> to<00:13:13.770> ask<00:13:13.980> the<00:13:14.160> nurse<00:13:14.340> because

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you feel free to ask the nurse because

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you feel free to ask the nurse because
this<00:13:14.760> is<00:13:14.880> your<00:13:15.030> last<00:13:15.180> chance<00:13:15.300> when<00:13:15.960> the<00:13:16.050> nurse

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this is your last chance when the nurse

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this is your last chance when the nurse
comes<00:13:16.470> in<00:13:16.560> here<00:13:16.740> and<00:13:16.800> explains<00:13:17.160> it<00:13:17.340> you<00:13:17.790> can

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comes in here and explains it you can

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comes in here and explains it you can
ask<00:13:18.090> questions<00:13:18.440> but<00:13:19.440> once<00:13:19.650> that<00:13:19.890> part<00:13:20.370> is<00:13:20.550> done

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ask questions but once that part is done

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ask questions but once that part is done
you<00:13:21.750> have<00:13:21.900> to<00:13:22.050> leave<00:13:22.230> and<00:13:23.160> I<00:13:23.310> already<00:13:23.490> told<00:13:23.670> you

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you have to leave and I already told you

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you have to leave and I already told you
what<00:13:24.030> happens<00:13:24.360> if<00:13:24.450> you<00:13:24.540> don’t<00:13:24.690> leave<00:13:24.840> and<00:13:25.230> I

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what happens if you don’t leave and I

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what happens if you don’t leave and I
don’t<00:13:25.440> want<00:13:25.740> to<00:13:25.800> do<00:13:25.920> that<00:13:26.130> I<00:13:26.280> really<00:13:26.730> don’t

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don’t want to do that I really don’t

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don’t want to do that I really don’t
it’s<00:13:28.440> a<00:13:28.530> waste<00:13:28.710> of<00:13:28.890> our<00:13:28.950> resources<00:13:29.010> to<00:13:29.550> have<00:13:29.640> to

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it’s a waste of our resources to have to

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it’s a waste of our resources to have to
do<00:13:29.910> that<00:13:30.090> because<00:13:31.080> it’s<00:13:31.260> something<00:13:31.800> you

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do that because it’s something you

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do that because it’s something you
should<00:13:32.220> do<00:13:32.340> voluntarily

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where<00:13:55.200> do<00:13:55.260> you<00:13:55.350> live<00:13:55.500> penny<00:14:01.250> penny<00:14:02.250> where<00:14:02.460> do

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where do you live penny penny where do

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where do you live penny penny where do
you<00:14:02.640> live<00:14:02.790> you<00:14:03.240> said<00:14:03.570> you<00:14:03.660> live<00:14:03.840> alone<00:14:04.080> right

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you live you said you live alone right

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you live you said you live alone right
you<00:14:04.860> live<00:14:05.010> alone

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you live alone

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you live alone
do<00:14:05.760> you<00:14:05.820> have<00:14:05.910> an<00:14:06.000> apartment<00:14:06.380> yes<00:14:07.380> I<00:14:07.620> live

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do you have an apartment yes I live

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do you have an apartment yes I live
independently<00:14:08.490> okay<00:14:09.210> where<00:14:09.420> what<00:14:09.750> part<00:14:09.930> of

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independently okay where what part of

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independently okay where what part of
the<00:14:10.050> city<00:14:10.820> what<00:14:11.820> part<00:14:12.030> of<00:14:12.060> the<00:14:12.180> city<00:14:12.500> downtown

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the city what part of the city downtown

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the city what part of the city downtown
Claremont<00:14:15.270> what<00:14:15.510> part<00:14:15.750> of<00:14:15.810> the<00:14:15.870> city<00:14:16.080> do<00:14:16.200> you

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Claremont what part of the city do you

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Claremont what part of the city do you
live<00:14:16.470> independently

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live independently

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live independently
I<00:14:17.430> live<00:14:18.210> in<00:14:18.360> University<00:14:19.170> City<00:14:19.440> okay<00:14:21.980> we’re

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I live in University City okay we’re

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I live in University City okay we’re
gonna<00:14:23.070> give<00:14:23.280> you<00:14:23.370> a<00:14:23.400> ride<00:14:23.580> home<00:14:23.760> once<00:14:24.060> we<00:14:24.210> clear

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gonna give you a ride home once we clear

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gonna give you a ride home once we clear
here<00:14:24.630> okay

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all<00:14:46.750> right<00:14:46.900> so<00:14:47.770> remember<00:14:47.920> we<00:14:48.340> told<00:14:48.490> you<00:14:48.730> that

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all right so remember we told you that

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all right so remember we told you that
we’re<00:14:49.150> all<00:14:49.210> set<00:14:49.540> okay<00:14:49.720> you<00:14:50.680> can<00:14:50.890> go<00:14:51.130> home<00:14:51.400> now

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we’re all set okay you can go home now

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we’re all set okay you can go home now
you’re<00:14:52.000> all<00:14:52.150> done<00:14:52.360> there’s<00:14:52.690> we<00:14:53.050> didn’t<00:14:53.260> do<00:14:53.350> any

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you’re all done there’s we didn’t do any

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you’re all done there’s we didn’t do any
procedure<00:14:53.980> so<00:14:54.910> you<00:14:55.000> don’t<00:14:55.360> need<00:14:55.510> to<00:14:55.660> stay

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procedure so you don’t need to stay

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procedure so you don’t need to stay
anymore<00:14:56.230> all<00:14:56.770> the<00:14:56.890> doctors<00:14:57.280> have<00:14:57.400> went<00:14:57.610> home

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anymore all the doctors have went home

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anymore all the doctors have went home
so<00:14:59.230> you’re<00:14:59.530> done<00:14:59.740> and<00:15:00.660> the<00:15:01.660> supervisor

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so you’re done and the supervisor

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so you’re done and the supervisor
remember<00:15:02.830> she<00:15:03.010> came<00:15:03.190> and<00:15:03.340> talked<00:15:03.520> to<00:15:03.550> you<00:15:03.760> and

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remember she came and talked to you and

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remember she came and talked to you and
said<00:15:04.060> the<00:15:04.180> same<00:15:04.390> thing<00:15:04.660> you’re<00:15:04.960> all<00:15:05.140> done<00:15:05.410> okay

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said the same thing you’re all done okay

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said the same thing you’re all done okay
you’re<00:15:08.320> a<00:15:08.350> different<00:15:08.740> person<00:15:09.430> yes<00:15:09.700> I<00:15:09.940> was<00:15:10.150> here

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you’re a different person yes I was here

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you’re a different person yes I was here
when<00:15:10.600> you<00:15:10.810> were<00:15:10.840> when<00:15:11.590> they<00:15:11.680> were<00:15:11.770> in<00:15:11.920> here

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when you were when they were in here

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when you were when they were in here
talking<00:15:12.250> to<00:15:12.550> you

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talking to you

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talking to you
I<00:15:13.650> just<00:15:14.650> wasn’t<00:15:14.890> over<00:15:15.220> here<00:15:15.430> talking<00:15:15.820> to<00:15:15.940> you<00:15:16.000> I

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I just wasn’t over here talking to you I

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I just wasn’t over here talking to you I
was<00:15:16.300> just<00:15:16.330> over<00:15:16.750> here<00:15:16.930> with<00:15:17.500> some<00:15:17.680> other

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was just over here with some other

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was just over here with some other
patients<00:15:18.660> Derek<00:15:19.660> there<00:15:19.900> has<00:15:20.170> been<00:15:20.380> one<00:15:20.650> female

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patients Derek there has been one female

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patients Derek there has been one female
she<00:15:21.820> said<00:15:22.060> that<00:15:22.240> she<00:15:22.480> was<00:15:22.660> the<00:15:23.020> house

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she said that she was the house

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she said that she was the house
supervisor<00:15:24.130> he<00:15:24.430> has<00:15:24.550> all<00:15:24.910> supervisor<00:15:25.630> and<00:15:26.020> she

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supervisor he has all supervisor and she

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supervisor he has all supervisor and she
I<00:15:27.490> asked<00:15:28.270> her<00:15:28.420> if<00:15:28.720> maybe<00:15:29.680> she<00:15:30.130> can<00:15:30.370> bring<00:15:30.610> a

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I asked her if maybe she can bring a

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I asked her if maybe she can bring a
social<00:15:32.140> worker<00:15:32.440> to<00:15:32.860> be<00:15:33.130> able<00:15:33.340> to<00:15:33.610> coordinate

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social worker to be able to coordinate

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social worker to be able to coordinate
for<00:15:34.780> me<00:15:34.930> and<00:15:35.200> she<00:15:36.160> did<00:15:36.640> not<00:15:36.990> know<00:15:37.990> she<00:15:38.020> said

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for me and she did not know she said

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for me and she did not know she said
that<00:15:38.530> the<00:15:38.860> staff<00:15:39.190> this<00:15:39.550> um<00:15:39.940> the<00:15:40.840> people<00:15:40.990> that

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that the staff this um the people that

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that the staff this um the people that
are<00:15:41.320> scheduling<00:15:41.890> the<00:15:42.010> appointment<00:15:42.040> will<00:15:42.760> talk

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are scheduling the appointment will talk

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are scheduling the appointment will talk
to<00:15:43.270> you<00:15:43.360> about<00:15:43.540> all<00:15:43.780> that<00:15:43.810> stuff<00:15:44.080> but<00:15:44.530> today

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to you about all that stuff but today

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to you about all that stuff but today
the<00:15:45.190> only<00:15:45.310> thing<00:15:45.520> she<00:15:45.700> could<00:15:45.820> offer<00:15:46.000> you<00:15:46.300> was

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the only thing she could offer you was

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the only thing she could offer you was
to<00:15:47.260> go<00:15:47.380> to<00:15:47.410> the<00:15:47.560> ER<00:15:47.800> or<00:15:48.370> to<00:15:49.180> leave<00:15:49.890> yes<00:15:50.890> I<00:15:51.100> have

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to go to the ER or to leave yes I have

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to go to the ER or to leave yes I have
informed<00:15:51.910> her<00:15:52.240> that<00:15:52.270> I<00:15:52.780> have<00:15:53.140> not<00:15:53.380> been<00:15:53.410> able

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informed her that I have not been able

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informed her that I have not been able
to<00:15:54.070> schedule<00:15:54.730> the<00:15:55.150> translator<00:15:55.840> service

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to schedule the translator service

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to schedule the translator service
because<00:15:56.680> the<00:15:56.920> super<00:15:57.510> director<00:15:58.510> of<00:15:58.720> DCs<00:15:59.200> is<00:15:59.560> on

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because the super director of DCs is on

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because the super director of DCs is on
maternity<00:16:00.250> leave<00:16:00.370> and<00:16:00.850> I<00:16:01.360> will<00:16:01.540> not<00:16:01.720> be<00:16:01.930> able

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maternity leave and I will not be able

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maternity leave and I will not be able
to<00:16:02.440> schedule<00:16:03.040> with<00:16:03.700> the<00:16:04.000> translator<00:16:04.600> services

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to schedule with the translator services

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to schedule with the translator services
anytime<00:16:05.890> soon<00:16:06.370> so<00:16:06.670> because<00:16:07.540> I<00:16:07.690> do<00:16:07.750> not<00:16:08.020> have<00:16:08.260> a

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anytime soon so because I do not have a

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anytime soon so because I do not have a
system<00:16:09.550> in<00:16:09.670> place

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system in place

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system in place
I<00:16:10.330> still<00:16:10.960> do<00:16:11.230> need<00:16:11.470> the<00:16:11.650> medical<00:16:12.220> here<00:16:13.210> and<00:16:13.510> the

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I still do need the medical here and the

00:16:14.020 –> 00:16:16.260 align:start position:0%
I still do need the medical here and the
procedure<00:16:14.500> and<00:16:14.950> that<00:16:14.980> is<00:16:15.280> why<00:16:15.460> I<00:16:15.490> told<00:16:16.030> the

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procedure and that is why I told the

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procedure and that is why I told the
doctor<00:16:16.660> that<00:16:16.870> I<00:16:16.930> am<00:16:17.400> consenting<00:16:18.400> through<00:16:18.670> the

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doctor that I am consenting through the

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doctor that I am consenting through the
procedure<00:16:19.510> without<00:16:20.260> the<00:16:20.710> translator<00:16:21.520> service

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procedure without the translator service

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procedure without the translator service
but<00:16:22.090> there<00:16:22.270> was<00:16:22.420> a<00:16:22.450> lot<00:16:22.810> more<00:16:22.840> to<00:16:23.290> it<00:16:23.410> than<00:16:23.560> that

00:16:23.610 –> 00:16:23.620 align:start position:0%
but there was a lot more to it than that

00:16:23.620 –> 00:16:25.440 align:start position:0%
but there was a lot more to it than that
and<00:16:23.980> I<00:16:24.220> don’t<00:16:24.280> want<00:16:24.640> to<00:16:24.700> get<00:16:24.880> them<00:16:24.970> into<00:16:25.330> it

00:16:25.440 –> 00:16:25.450 align:start position:0%
and I don’t want to get them into it

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and I don’t want to get them into it
because<00:16:25.540> you’ve<00:16:25.750> been<00:16:25.870> there<00:16:26.020> over<00:16:26.170> it<00:16:26.410> about

00:16:26.640 –> 00:16:26.650 align:start position:0%
because you’ve been there over it about

00:16:26.650 –> 00:16:29.730 align:start position:0%
because you’ve been there over it about
20<00:16:26.980> times<00:16:27.130> already<00:16:27.400> but<00:16:27.820> if<00:16:28.660> you<00:16:28.810> need<00:16:29.080> an<00:16:29.350> IV

00:16:29.730 –> 00:16:29.740 align:start position:0%
20 times already but if you need an IV

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20 times already but if you need an IV
in<00:16:30.040> the<00:16:30.160> meantime<00:16:30.700> you<00:16:31.120> can<00:16:31.300> go<00:16:31.420> to<00:16:31.480> your

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in the meantime you can go to your

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in the meantime you can go to your
doctors<00:16:31.990> they<00:16:32.170> can<00:16:32.350> put<00:16:32.530> a<00:16:32.560> temporary<00:16:32.830> IV<00:16:33.430> in

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doctors they can put a temporary IV in

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doctors they can put a temporary IV in
you<00:16:33.730> until<00:16:34.360> you<00:16:34.480> can<00:16:34.660> come<00:16:34.690> back<00:16:35.020> and<00:16:35.260> have<00:16:35.860> the

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you until you can come back and have the

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you until you can come back and have the
proper<00:16:36.400> stuff<00:16:36.730> going<00:16:37.030> okay<00:16:37.330> yeah<00:16:37.600> the<00:16:37.840> hole<00:16:38.050> it

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proper stuff going okay yeah the hole it

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proper stuff going okay yeah the hole it
won’t<00:16:38.560> be<00:16:38.710> today<00:16:39.130> though<00:16:39.340> the<00:16:40.060> Holmen<00:16:40.540> health

00:16:43.310 –> 00:16:43.320 align:start position:0%

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bridge<00:16:44.320> home<00:16:44.650> hell

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bridge home hell

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bridge home hell
that<00:16:45.380> said<00:16:45.680> they<00:16:46.250> advocated<00:16:47.000> for<00:16:47.480> the

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that said they advocated for the

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that said they advocated for the
procedure<00:16:48.380> with<00:16:48.710> a<00:16:48.740> primary<00:16:49.160> doctor<00:16:49.460> because

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procedure with a primary doctor because

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procedure with a primary doctor because
they’ve<00:16:50.810> been<00:16:51.020> blowing<00:16:51.530> all<00:16:51.680> the<00:16:51.860> veins<00:16:52.100> ever

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they’ve been blowing all the veins ever

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they’ve been blowing all the veins ever
yeah<00:16:52.790> so<00:16:53.120> you<00:16:53.180> definitely<00:16:53.420> need<00:16:53.840> it<00:16:54.170> but<00:16:54.320> it

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yeah so you definitely need it but it

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yeah so you definitely need it but it
needs<00:16:54.590> to<00:16:54.770> be<00:16:54.860> done<00:16:55.040> the<00:16:55.130> proper<00:16:55.490> way<00:16:55.610> okay

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needs to be done the proper way okay

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needs to be done the proper way okay
today<00:16:56.510> was<00:16:56.660> not<00:16:56.780> the<00:16:56.840> proper<00:16:57.230> way<00:16:57.260> you<00:16:57.380> didn’t

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today was not the proper way you didn’t

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today was not the proper way you didn’t
have<00:16:57.860> a<00:16:57.890> ride<00:16:58.130> home<00:16:58.160> and<00:16:59.350> yes<00:17:00.350> it<00:17:00.560> wasn’t<00:17:00.950> set

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have a ride home and yes it wasn’t set

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have a ride home and yes it wasn’t set
up<00:17:01.220> properly<00:17:01.640> with<00:17:01.850> the<00:17:01.970> translator<00:17:02.450> so<00:17:02.720> this

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up properly with the translator so this

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up properly with the translator so this
stud<00:17:03.200> needs<00:17:03.410> happen<00:17:03.800> it<00:17:04.130> needs<00:17:04.310> to<00:17:04.430> happen<00:17:04.579> yes

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stud needs happen it needs to happen yes

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stud needs happen it needs to happen yes
both<00:17:05.240> of<00:17:05.270> those<00:17:05.690> barriers<00:17:06.470> were<00:17:07.010> already

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both of those barriers were already

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both of those barriers were already
resolved<00:17:08.360> but<00:17:09.320> not<00:17:09.589> our<00:17:09.800> physician<00:17:10.339> our

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resolved but not our physician our

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resolved but not our physician our
physician<00:17:11.240> had<00:17:11.390> questions<00:17:11.750> about<00:17:11.839> the<00:17:12.050> order

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physician had questions about the order

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physician had questions about the order
to<00:17:12.500> the<00:17:13.120> house<00:17:14.120> supervisor<00:17:14.570> has<00:17:14.720> already<00:17:14.900> been

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to the house supervisor has already been

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to the house supervisor has already been
over<00:17:15.320> all<00:17:15.410> of<00:17:15.560> this<00:17:15.709> it’s<00:17:15.980> not<00:17:16.160> happening

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over all of this it’s not happening

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over all of this it’s not happening
today<00:17:16.880> you<00:17:17.060> need<00:17:17.360> to<00:17:17.480> understand<00:17:17.930> that<00:17:17.990> okay

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today you need to understand that okay

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today you need to understand that okay
that’ll<00:17:19.490> be<00:17:19.520> the<00:17:19.670> easiest<00:17:19.699> for<00:17:20.300> you<00:17:20.449> to

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that’ll be the easiest for you to

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that’ll be the easiest for you to
understand<00:17:21.110> well<00:17:22.120> okay<00:17:23.120> that’s<00:17:23.510> it<00:17:23.780> all<00:17:24.170> right

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understand well okay that’s it all right

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understand well okay that’s it all right
how<00:17:25.550> am<00:17:25.820> I<00:17:25.970> going<00:17:26.209> to<00:17:26.360> access<00:17:27.140> this<00:17:27.380> treatment

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how am I going to access this treatment

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how am I going to access this treatment
so<00:17:28.580> you’re<00:17:29.570> gonna<00:17:29.660> have<00:17:29.780> to<00:17:29.810> reschedule<00:17:30.290> okay

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so you’re gonna have to reschedule okay

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so you’re gonna have to reschedule okay
in<00:17:31.160> the<00:17:31.310> meantime<00:17:31.520> instead<00:17:32.120> of<00:17:32.210> taking<00:17:32.510> you<00:17:32.570> to

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in the meantime instead of taking you to

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in the meantime instead of taking you to
jail<00:17:32.870> I’m<00:17:33.410> just<00:17:33.590> gonna<00:17:33.680> take<00:17:33.950> you<00:17:34.100> home<00:17:34.340> to

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jail I’m just gonna take you home to

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jail I’m just gonna take you home to
your<00:17:34.550> apartment<00:17:35.680> all<00:17:36.680> right<00:17:36.890> oh<00:17:39.070> they

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your apartment all right oh they

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your apartment all right oh they
canceled<00:17:40.580> your<00:17:40.700> appointment<00:17:40.970> how<00:17:41.450> do<00:17:41.510> I<00:17:41.690> have

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canceled your appointment how do I have

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canceled your appointment how do I have
information<00:17:43.070> that<00:17:43.550> I<00:17:43.850> showed<00:17:44.360> up<00:17:44.600> and<00:17:44.930> I<00:17:45.050> came

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information that I showed up and I came

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information that I showed up and I came
here<00:17:45.950> and<00:17:46.280> I<00:17:46.460> provided<00:17:46.970> all<00:17:47.450> of<00:17:47.480> them<00:17:47.900> once

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here and I provided all of them once

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here and I provided all of them once
again<00:17:48.590> what<00:17:48.890> I<00:17:49.040> am<00:17:49.220> a<00:17:49.250> police<00:17:49.610> officer<00:17:50.060> I<00:17:50.270> have

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again what I am a police officer I have

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again what I am a police officer I have
no<00:17:50.750> control<00:17:50.960> or<00:17:51.170> no<00:17:51.440> knowledge<00:17:51.650> of<00:17:51.890> that

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no control or no knowledge of that

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no control or no knowledge of that
however<00:17:52.610> they<00:17:53.420> have<00:17:53.540> asked<00:17:53.810> you<00:17:53.870> to<00:17:53.960> leave

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however they have asked you to leave

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however they have asked you to leave
this<00:17:54.440> entire<00:17:54.860> medical<00:17:55.310> bay<00:17:55.460> is<00:17:55.610> empty<00:17:56.030> you

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this entire medical bay is empty you

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this entire medical bay is empty you
cannot<00:17:57.050> have<00:17:57.230> the<00:17:57.290> procedure<00:17:57.620> done<00:17:57.890> today

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cannot have the procedure done today

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cannot have the procedure done today
you’ll<00:17:58.430> have<00:17:58.550> to<00:17:58.640> call<00:17:58.820> back<00:17:58.880> and<00:17:59.240> reschedule

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you’ll have to call back and reschedule

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you’ll have to call back and reschedule
and<00:17:59.930> find<00:18:00.170> out<00:18:00.350> I<00:18:00.620> cannot<00:18:01.100> answer<00:18:01.340> your

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and find out I cannot answer your

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and find out I cannot answer your
questions<00:18:02.200> because<00:18:03.200> they<00:18:03.290> are<00:18:03.380> medical

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questions because they are medical

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questions because they are medical
related<00:18:04.070> I<00:18:04.160> don’t<00:18:04.340> know<00:18:04.400> anything<00:18:04.670> about<00:18:04.730> that

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related I don’t know anything about that

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related I don’t know anything about that
however<00:18:05.660> I<00:18:05.900> am<00:18:06.050> asking<00:18:06.440> you<00:18:06.500> to<00:18:06.560> leave

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however I am asking you to leave

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however I am asking you to leave
security<00:18:07.910> has<00:18:08.000> asked<00:18:08.240> you<00:18:08.300> to<00:18:08.390> leave<00:18:08.510> if<00:18:08.990> you

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security has asked you to leave if you

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security has asked you to leave if you
refuse<00:18:09.470> to<00:18:09.500> leave<00:18:09.740> you<00:18:10.010> go<00:18:10.130> to<00:18:10.190> jail<00:18:10.460> I’m

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refuse to leave you go to jail I’m

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refuse to leave you go to jail I’m
trying<00:18:11.270> to<00:18:11.330> just<00:18:11.510> offer<00:18:11.660> you<00:18:11.840> a<00:18:11.930> ride<00:18:12.140> home<00:18:12.410> a

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trying to just offer you a ride home a

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trying to just offer you a ride home a
free<00:18:12.980> ride<00:18:13.190> home<00:18:13.220> is<00:18:13.670> the<00:18:14.060> only<00:18:14.320> facility<00:18:15.320> that

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free ride home is the only facility that

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free ride home is the only facility that
I<00:18:15.950> know<00:18:17.560> personnel<00:18:18.560> once<00:18:19.250> a<00:18:19.460> week<00:18:19.700> but<00:18:19.970> we

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I know personnel once a week but we

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I know personnel once a week but we
cannot<00:18:20.420> keep<00:18:20.660> going<00:18:20.720> in<00:18:21.050> circles<00:18:21.410> in

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cannot keep going in circles in

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cannot keep going in circles in
conversation<00:18:22.100> right<00:18:22.160> now<00:18:22.310> you<00:18:22.910> cannot

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conversation right now you cannot

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conversation right now you cannot
continue<00:18:23.600> to<00:18:23.750> monopolize<00:18:24.320> our<00:18:24.680> time<00:18:25.300> hospital

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continue to monopolize our time hospital

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continue to monopolize our time hospital
security<00:18:26.480> crime<00:18:27.080> and<00:18:27.560> nurses<00:18:28.040> time<00:18:28.220> I’ll

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security crime and nurses time I’ll

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security crime and nurses time I’ll
continue<00:18:28.610> to<00:18:28.760> come<00:18:28.970> talk<00:18:29.240> we’re<00:18:29.420> trying<00:18:29.660> to

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continue to come talk we’re trying to

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continue to come talk we’re trying to
explain<00:18:29.960> the<00:18:30.050> situation<00:18:30.230> that<00:18:31.160> is<00:18:31.280> not<00:18:31.460> going

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explain the situation that is not going

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explain the situation that is not going
to<00:18:31.850> happen<00:18:32.230> I<00:18:33.230> need<00:18:33.470> you<00:18:33.560> to<00:18:33.650> make<00:18:33.740> a<00:18:33.800> decision

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to happen I need you to make a decision

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to happen I need you to make a decision
right<00:18:34.340> now<00:18:34.370> whether<00:18:35.030> you<00:18:35.180> would<00:18:35.240> like<00:18:35.420> me<00:18:35.600> to

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right now whether you would like me to

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right now whether you would like me to
drive<00:18:35.900> you<00:18:35.930> home

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drive you home

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drive you home
and<00:18:37.040> drop<00:18:37.250> you<00:18:37.400> off<00:18:37.580> or<00:18:38.180> would<00:18:38.420> you<00:18:38.480> like<00:18:38.630> to<00:18:38.720> go

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and drop you off or would you like to go

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and drop you off or would you like to go
to<00:18:38.870> jail<00:18:39.140> for<00:18:39.530> trespassing

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to jail for trespassing

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to jail for trespassing
I<00:18:41.560> don’t<00:18:42.560> need<00:18:42.950> your<00:18:43.220> assistance<00:18:43.400> because<00:18:44.300> you

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I don’t need your assistance because you

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I don’t need your assistance because you
said<00:18:45.110> you<00:18:45.320> cannot<00:18:45.740> assist<00:18:46.280> me<00:18:46.550> with<00:18:46.580> the<00:18:48.220> okay

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said you cannot assist me with the okay

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said you cannot assist me with the okay
okay<00:18:50.360> I’ve<00:18:50.600> already<00:18:50.750> asked<00:18:51.650> for<00:18:51.860> that<00:18:51.980> and<00:18:52.310> I

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okay I’ve already asked for that and I

00:18:53.460 –> 00:18:56.970 align:start position:0%
okay I’ve already asked for that and I
there<00:18:54.460> you<00:18:54.549> go<00:18:55.440> all<00:18:56.440> right<00:18:56.530> we<00:18:56.620> have<00:18:56.740> to<00:18:56.830> go

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there you go all right we have to go

00:18:56.980 –> 00:19:02.570 align:start position:0%
there you go all right we have to go
kami<00:18:57.280> no<00:18:58.230> longer<00:18:59.230> stay<00:18:59.409> here<00:18:59.620> okay<00:19:00.659> after<00:19:01.659> you

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kami no longer stay here okay after you

00:19:02.580 –> 00:19:04.830 align:start position:0%
kami no longer stay here okay after you
do<00:19:03.580> you<00:19:03.669> want<00:19:03.820> me<00:19:03.880> to<00:19:03.970> drop<00:19:04.179> you<00:19:04.240> off

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do you want me to drop you off

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do you want me to drop you off
you<00:19:05.140> can<00:19:05.289> walk<00:19:05.470> out<00:19:05.620> on<00:19:05.770> your<00:19:05.890> own<00:19:08.220> we<00:19:09.220> have<00:19:09.400> to

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you can walk out on your own we have to

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you can walk out on your own we have to
go<00:19:09.640> no<00:19:09.880> more<00:19:10.030> conversation<00:19:10.630> okay<00:19:11.190> I<00:19:12.190> need<00:19:12.340> to

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go no more conversation okay I need to

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go no more conversation okay I need to
work<00:19:14.530> with<00:19:14.559> to<00:19:15.220> be<00:19:15.549> able<00:19:15.730> to<00:19:16.210> guarantee<00:19:16.630> that<00:19:16.990> I

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work with to be able to guarantee that I

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work with to be able to guarantee that I
can<00:19:17.500> access<00:19:18.010> the<00:19:18.280> kheer<00:19:19.169> call<00:19:20.169> the<00:19:20.289> hospital

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can access the kheer call the hospital

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can access the kheer call the hospital
again<00:19:21.010> before<00:19:21.520> you<00:19:21.610> come<00:19:21.789> in<00:19:21.909> next<00:19:22.150> time<00:19:22.270> and

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again before you come in next time and

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again before you come in next time and
schedule<00:19:23.169> it<00:19:23.230> properly<00:19:23.590> I<00:19:23.890> have<00:19:24.130> no<00:19:24.520> control

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schedule it properly I have no control

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schedule it properly I have no control
or<00:19:24.970> no<00:19:25.179> knowledge<00:19:25.539> over<00:19:25.690> we’re<00:19:26.289> going<00:19:26.409> to

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or no knowledge over we’re going to

00:19:26.559 –> 00:19:28.080 align:start position:0%
or no knowledge over we’re going to
leave<00:19:26.799> now<00:19:26.980> we’re<00:19:27.190> not<00:19:27.309> gonna<00:19:27.490> continue<00:19:27.669> to<00:19:27.909> go

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leave now we’re not gonna continue to go

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leave now we’re not gonna continue to go
in<00:19:28.210> sure<00:19:28.390> already<00:19:28.809> completed<00:19:29.409> all<00:19:29.650> those

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in sure already completed all those

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in sure already completed all those
steps

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steps

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steps
I<00:19:30.760> got<00:19:31.030> cancelled<00:19:31.539> we<00:19:31.720> have<00:19:31.870> to<00:19:32.020> do<00:19:32.140> it<00:19:32.230> again

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I got cancelled we have to do it again

00:19:32.850 –> 00:19:35.370 align:start position:0%
I got cancelled we have to do it again
all<00:19:33.850> right<00:19:33.970> we<00:19:34.059> have<00:19:34.179> to<00:19:34.299> go<00:19:34.450> honey<00:19:34.690> okay<00:19:35.110> let’s

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all right we have to go honey okay let’s

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all right we have to go honey okay let’s
go<00:19:35.530> we<00:19:36.130> have<00:19:36.159> to<00:19:36.340> vote<00:19:36.460> we<00:19:36.640> have<00:19:36.730> a<00:19:36.760> walk<00:19:36.970> let’s

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go we have to vote we have a walk let’s

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go we have to vote we have a walk let’s
go<00:19:37.390> let’s<00:19:38.260> go<00:19:38.380> let’s<00:19:38.590> go<00:19:38.710> let’s<00:19:38.740> go<00:19:39.039> let’s<00:19:39.390> go

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go let’s go let’s go let’s go let’s go

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go let’s go let’s go let’s go let’s go
we<00:19:40.570> have<00:19:40.659> to<00:19:40.780> go<00:19:40.890> come<00:19:41.890> on<00:19:42.010> let’s<00:19:42.070> go<00:19:43.380> okay<00:19:44.380> well

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we have to go come on let’s go okay well

00:19:44.559 –> 00:19:45.539 align:start position:0%
we have to go come on let’s go okay well
we’re<00:19:44.679> gonna<00:19:44.770> we’re<00:19:45.039> going<00:19:45.159> to<00:19:45.220> touch<00:19:45.400> you

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we’re gonna we’re going to touch you

00:19:45.549 –> 00:19:46.919 align:start position:0%
we’re gonna we’re going to touch you
I’ll<00:19:45.669> take<00:19:45.789> you<00:19:45.940> to<00:19:46.059> jail<00:19:46.240> if<00:19:46.510> you<00:19:46.570> do<00:19:46.809> not

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I’ll take you to jail if you do not

00:19:46.929 –> 00:19:49.289 align:start position:0%
I’ll take you to jail if you do not
leave<00:19:47.140> you<00:19:47.620> understand<00:19:48.039> that<00:19:48.220> so<00:19:48.970> if<00:19:49.179> you

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leave you understand that so if you

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leave you understand that so if you
don’t<00:19:49.510> leave<00:19:49.630> we’re<00:19:49.929> gonna<00:19:50.049> have<00:19:50.260> to<00:19:50.380> take<00:19:50.530> you

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don’t leave we’re gonna have to take you

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don’t leave we’re gonna have to take you
with<00:19:50.860> us<00:19:50.919> we<00:19:51.370> don’t<00:19:51.880> want<00:19:52.030> to<00:19:52.150> do<00:19:52.270> that<00:19:52.419> we<00:19:52.539> want

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with us we don’t want to do that we want

00:19:52.690 –> 00:19:54.570 align:start position:0%
with us we don’t want to do that we want
to<00:19:52.809> take<00:19:52.990> you<00:19:53.169> home<00:19:53.380> we<00:19:53.980> can’t<00:19:54.220> stand<00:19:54.400> here

00:19:54.570 –> 00:19:54.580 align:start position:0%
to take you home we can’t stand here

00:19:54.580 –> 00:19:56.250 align:start position:0%
to take you home we can’t stand here
talking<00:19:54.610> it<00:19:55.030> wasting<00:19:55.360> resources<00:19:55.390> okay<00:19:56.200> you

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talking it wasting resources okay you

00:19:56.260 –> 00:19:57.750 align:start position:0%
talking it wasting resources okay you
went<00:19:56.470> to<00:19:56.530> the<00:19:56.679> room<00:19:56.890> you<00:19:56.919> waited<00:19:57.400> us<00:19:57.549> you

00:19:57.750 –> 00:19:57.760 align:start position:0%
went to the room you waited us you

00:19:57.760 –> 00:20:00.360 align:start position:0%
went to the room you waited us you
wasting<00:19:58.059> their<00:19:58.179> time<00:19:58.330> we<00:19:58.900> have<00:19:59.140> to<00:19:59.350> go<00:19:59.530> alright

00:20:00.360 –> 00:20:00.370 align:start position:0%
wasting their time we have to go alright

00:20:00.370 –> 00:20:04.289 align:start position:0%
wasting their time we have to go alright
there’s<00:20:00.940> no<00:20:01.030> more<00:20:01.240> conversation<00:20:03.090> okay<00:20:04.090> well

00:20:04.289 –> 00:20:04.299 align:start position:0%
there’s no more conversation okay well

00:20:04.299 –> 00:20:06.779 align:start position:0%
there’s no more conversation okay well
let’s<00:20:04.480> go<00:20:04.600> are<00:20:04.720> you<00:20:04.840> coming<00:20:05.140> or<00:20:05.260> no<00:20:05.700> are<00:20:06.700> you

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let’s go are you coming or no are you

00:20:06.789 –> 00:20:08.130 align:start position:0%
let’s go are you coming or no are you
gonna<00:20:06.880> come<00:20:07.150> or<00:20:07.179> not<00:20:07.510> I’m<00:20:07.720> gonna<00:20:07.840> put<00:20:07.990> you<00:20:08.110> in

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gonna come or not I’m gonna put you in

00:20:08.140 –> 00:20:17.760 align:start position:0%
gonna come or not I’m gonna put you in
handcuffs<00:20:08.200> if<00:20:08.679> you<00:20:08.799> don’t<00:20:08.980> come<00:20:09.159> with<00:20:09.340> us<00:20:16.770> okay

00:20:17.760 –> 00:20:17.770 align:start position:0%
handcuffs if you don’t come with us okay

00:20:17.770 –> 00:20:19.620 align:start position:0%
handcuffs if you don’t come with us okay
I’m<00:20:17.890> gonna<00:20:18.220> talk<00:20:18.370> about<00:20:18.549> that<00:20:18.880> are<00:20:19.299> you<00:20:19.480> gonna

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I’m gonna talk about that are you gonna

00:20:19.630 –> 00:20:21.120 align:start position:0%
I’m gonna talk about that are you gonna
leave<00:20:19.870> are<00:20:20.200> you<00:20:20.230> gonna<00:20:20.409> are<00:20:20.799> you<00:20:20.830> gonna<00:20:20.950> have

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leave are you gonna are you gonna have

00:20:21.130 –> 00:20:24.980 align:start position:0%
leave are you gonna are you gonna have
to<00:20:21.220> be<00:20:21.309> put<00:20:21.490> in<00:20:21.549> handcuffs

00:20:24.980 –> 00:20:24.990 align:start position:0%

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okay<00:20:26.909> but<00:20:27.909> right<00:20:28.059> now<00:20:28.179> you’re<00:20:28.390> gonna<00:20:28.510> be

00:20:28.680 –> 00:20:28.690 align:start position:0%
okay but right now you’re gonna be

00:20:28.690 –> 00:20:30.360 align:start position:0%
okay but right now you’re gonna be
detained<00:20:29.080> because<00:20:29.440> you’re<00:20:29.770> not<00:20:29.890> leaving<00:20:30.280> okay

00:20:30.360 –> 00:20:30.370 align:start position:0%
detained because you’re not leaving okay

00:20:30.370 –> 00:20:31.649 align:start position:0%
detained because you’re not leaving okay
you’re<00:20:30.789> going<00:20:30.940> to<00:20:31.000> be<00:20:31.059> detained<00:20:31.360> and<00:20:31.570> I’m

00:20:31.649 –> 00:20:31.659 align:start position:0%
you’re going to be detained and I’m

00:20:31.659 –> 00:20:43.260 align:start position:0%
you’re going to be detained and I’m
gonna<00:20:31.750> put<00:20:31.900> you<00:20:31.990> in<00:20:32.049> handcuffs<00:20:42.270> because

00:20:43.260 –> 00:20:43.270 align:start position:0%
gonna put you in handcuffs because

00:20:43.270 –> 00:20:45.090 align:start position:0%
gonna put you in handcuffs because
you’re<00:20:43.480> not<00:20:43.600> leaving<00:20:44.049> you’re<00:20:44.260> trespassing<00:20:44.950> at

00:20:45.090 –> 00:20:45.100 align:start position:0%
you’re not leaving you’re trespassing at

00:20:45.100 –> 00:20:50.010 align:start position:0%
you’re not leaving you’re trespassing at
this<00:20:45.280> point<00:20:45.610> at<00:20:45.820> this<00:20:46.000> moment<00:20:46.480> you’re<00:20:46.900> early

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okay<00:20:55.929> we’re<00:20:56.929> talking<00:20:59.260> okay<00:21:00.260> well<00:21:00.910> all<00:21:01.910> right

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all<00:21:11.900> right<00:21:12.760> okay<00:21:52.960> you’re<00:21:54.370> on<00:21:55.370> your<00:21:55.490> own

00:21:55.660 –> 00:21:55.670 align:start position:0%
all right okay you’re on your own

00:21:55.670 –> 00:21:58.930 align:start position:0%
all right okay you’re on your own
I<00:21:56.150> cannot<00:21:56.660> balance<00:21:57.260> like<00:21:57.590> this<00:21:57.920> okay<00:21:58.429> let’s<00:21:58.610> go

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I cannot balance like this okay let’s go

00:21:58.940 –> 00:22:01.840 align:start position:0%
I cannot balance like this okay let’s go
we<00:21:59.600> made<00:21:59.809> you<00:21:59.960> options<00:22:00.440> you<00:22:00.679> know<00:22:00.860> what<00:22:01.190> so<00:22:01.730> we

00:22:01.840 –> 00:22:01.850 align:start position:0%
we made you options you know what so we

00:22:01.850 –> 00:22:22.830 align:start position:0%
we made you options you know what so we
have<00:22:01.970> to<00:22:02.090> go

00:22:22.830 –> 00:22:22.840 align:start position:0%

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[Music]

00:22:38.920 –> 00:22:38.930 align:start position:0%

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[Music]

00:22:44.610 –> 00:22:44.620 align:start position:0%

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right<00:22:45.620> here<00:22:46.629> right<00:22:47.629> here

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[Music]

00:23:29.140 –> 00:23:29.150 align:start position:0%

00:23:29.150 –> 00:23:37.120 align:start position:0%

[Music]

00:23:37.120 –> 00:23:37.130 align:start position:0%

00:23:37.130 –> 00:23:48.670 align:start position:0%

[Music]

00:23:48.670 –> 00:23:48.680 align:start position:0%

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[Music]

00:23:54.640 –> 00:23:54.650 align:start position:0%

00:23:54.650 –> 00:24:38.470 align:start position:0%

[Music]

00:24:38.470 –> 00:24:38.480 align:start position:0%

00:24:38.480 –> 00:24:41.050 align:start position:0%

okay<00:24:39.080> 1x<00:24:39.980> now<00:24:40.550> that<00:24:40.700> you’re<00:24:40.850> out<00:24:40.940> of<00:24:40.970> the

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okay 1x now that you’re out of the

00:24:41.060 –> 00:24:43.540 align:start position:0%
okay 1x now that you’re out of the
hospital<00:24:41.240> what<00:24:41.690> you<00:24:41.750> gonna<00:24:41.810> do<00:24:42.520> now<00:24:43.520> that

00:24:43.540 –> 00:24:43.550 align:start position:0%
hospital what you gonna do now that

00:24:43.550 –> 00:24:45.280 align:start position:0%
hospital what you gonna do now that
you’re<00:24:43.880> out<00:24:43.910> of<00:24:44.060> the<00:24:44.240> hospital<00:24:44.810> what<00:24:45.050> are<00:24:45.170> you

00:24:45.280 –> 00:24:45.290 align:start position:0%
you’re out of the hospital what are you

00:24:45.290 –> 00:24:50.269 align:start position:0%
you’re out of the hospital what are you
going

00:24:50.269 –> 00:24:50.279 align:start position:0%

00:24:50.279 –> 00:24:55.779 align:start position:0%

you<00:24:50.849> need<00:24:50.969> a<00:24:51.029> ride<00:24:51.210> home

00:24:55.779 –> 00:24:55.789 align:start position:0%

00:24:55.789 –> 00:24:59.789 align:start position:0%

back

00:24:59.789 –> 00:24:59.799 align:start position:0%

00:24:59.799 –> 00:25:02.740 align:start position:0%

so<00:25:00.799> right<00:25:00.980> now<00:25:01.100> I’m<00:25:01.250> evaluating<00:25:01.670> you<00:25:02.000> I<00:25:02.330> want

00:25:02.740 –> 00:25:02.750 align:start position:0%
so right now I’m evaluating you I want

00:25:02.750 –> 00:25:04.000 align:start position:0%
so right now I’m evaluating you I want
to<00:25:02.780> see<00:25:02.929> what<00:25:03.080> you’re<00:25:03.200> gonna<00:25:03.260> do<00:25:03.470> an<00:25:03.590> hour<00:25:03.740> out

00:25:04.000 –> 00:25:04.010 align:start position:0%
to see what you’re gonna do an hour out

00:25:04.010 –> 00:25:08.230 align:start position:0%
to see what you’re gonna do an hour out
of<00:25:04.040> the<00:25:04.190> hospital<00:25:04.640> you<00:25:05.090> have<00:25:05.240> you<00:25:05.360> back<00:25:07.240> yeah

00:25:08.230 –> 00:25:08.240 align:start position:0%
of the hospital you have you back yeah

00:25:08.240 –> 00:25:13.299 align:start position:0%
of the hospital you have you back yeah
what<00:25:08.960> are<00:25:09.020> you<00:25:09.080> going<00:25:09.230> to<00:25:09.290> do<00:25:09.440> now<00:25:12.220> can<00:25:13.220> you

00:25:13.299 –> 00:25:13.309 align:start position:0%
what are you going to do now can you

00:25:13.309 –> 00:25:15.760 align:start position:0%
what are you going to do now can you
hear<00:25:13.429> me<00:25:13.720> what<00:25:14.720> are<00:25:14.840> you<00:25:14.960> going<00:25:15.140> to<00:25:15.380> do<00:25:15.530> now

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hear me what are you going to do now

00:25:15.770 –> 00:25:19.000 align:start position:0%
hear me what are you going to do now
that<00:25:15.799> you<00:25:16.040> have<00:25:16.190> your<00:25:16.309> belongings<00:25:18.010> because

00:25:19.000 –> 00:25:19.010 align:start position:0%
that you have your belongings because

00:25:19.010 –> 00:25:21.039 align:start position:0%
that you have your belongings because
you<00:25:19.250> were<00:25:19.340> removed<00:25:19.790> from<00:25:20.059> the<00:25:20.240> hospital<00:25:20.420> for

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you were removed from the hospital for

00:25:21.049 –> 00:25:23.650 align:start position:0%
you were removed from the hospital for
trespassing<00:25:21.880> now<00:25:22.880> that<00:25:23.150> you<00:25:23.299> are<00:25:23.330> out<00:25:23.480> of<00:25:23.510> the

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trespassing now that you are out of the

00:25:23.660 –> 00:25:26.020 align:start position:0%
trespassing now that you are out of the
hospital<00:25:23.809> what<00:25:24.530> are<00:25:24.650> you<00:25:24.799> going<00:25:24.950> to<00:25:25.130> do<00:25:25.309> they

00:25:26.020 –> 00:25:26.030 align:start position:0%
hospital what are you going to do they

00:25:26.030 –> 00:25:27.760 align:start position:0%
hospital what are you going to do they
like<00:25:26.059> to<00:25:26.510> say<00:25:26.720> things<00:25:26.960> like<00:25:27.170> that

00:25:27.760 –> 00:25:27.770 align:start position:0%
like to say things like that

00:25:27.770 –> 00:25:30.190 align:start position:0%
like to say things like that
no<00:25:27.980> honey<00:25:28.280> it’s<00:25:28.640> a<00:25:28.730> question<00:25:29.090> what<00:25:29.990> are<00:25:30.020> you

00:25:30.190 –> 00:25:30.200 align:start position:0%
no honey it’s a question what are you

00:25:30.200 –> 00:25:31.450 align:start position:0%
no honey it’s a question what are you
going<00:25:30.380> to<00:25:30.470> do<00:25:30.679> now<00:25:30.890> to<00:25:30.950> try<00:25:31.160> the<00:25:31.220> hospital

00:25:31.450 –> 00:25:31.460 align:start position:0%
going to do now to try the hospital

00:25:31.460 –> 00:25:36.790 align:start position:0%
going to do now to try the hospital
where<00:25:32.059> are<00:25:32.150> you<00:25:32.240> going

00:25:36.790 –> 00:25:36.800 align:start position:0%

00:25:36.800 –> 00:25:44.360 align:start position:0%

[Music]

00:25:44.360 –> 00:25:44.370 align:start position:0%

00:25:44.370 –> 00:25:46.850 align:start position:0%

maybe<00:25:45.000> answer<00:25:45.570> the<00:25:45.690> question<00:25:46.110> well<00:25:46.620> I’m<00:25:46.680> going

00:25:46.850 –> 00:25:46.860 align:start position:0%
maybe answer the question well I’m going

00:25:46.860 –> 00:25:47.810 align:start position:0%
maybe answer the question well I’m going
to<00:25:46.890> start<00:25:47.130> thinking<00:25:47.520> you’re<00:25:47.640> gravely

00:25:47.810 –> 00:25:47.820 align:start position:0%
to start thinking you’re gravely

00:25:47.820 –> 00:25:52.310 align:start position:0%
to start thinking you’re gravely
disabled<00:25:49.970> the<00:25:50.970> direct<00:25:51.420> number<00:25:51.840> from<00:25:52.080> the

00:25:52.310 –> 00:25:52.320 align:start position:0%
disabled the direct number from the

00:25:52.320 –> 00:25:55.040 align:start position:0%
disabled the direct number from the
operator<00:25:53.010> from<00:25:53.490> the<00:25:53.730> two-on-one<00:25:54.390> that<00:25:54.870> they

00:25:55.040 –> 00:25:55.050 align:start position:0%
operator from the two-on-one that they

00:25:55.050 –> 00:25:59.390 align:start position:0%
operator from the two-on-one that they
had<00:25:55.410> at<00:25:55.590> health<00:25:55.800> outreach<00:25:56.960> team<00:25:57.960> get<00:25:58.920> the

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had at health outreach team get the

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had at health outreach team get the
funds<00:25:59.910> for<00:26:00.300> the<00:26:00.480> override<00:26:01.080> for<00:26:01.530> me

00:26:01.820 –> 00:26:01.830 align:start position:0%
funds for the override for me

00:26:01.830 –> 00:26:03.830 align:start position:0%
funds for the override for me
Jimmy<00:26:02.130> we<00:26:02.430> talked<00:26:02.730> about<00:26:02.880> this<00:26:03.180> though<00:26:03.360> I<00:26:03.600> am

00:26:03.830 –> 00:26:03.840 align:start position:0%
Jimmy we talked about this though I am

00:26:03.840 –> 00:26:06.020 align:start position:0%
Jimmy we talked about this though I am
willing<00:26:04.050> to<00:26:04.110> give<00:26:04.230> you<00:26:04.350> a<00:26:04.410> free<00:26:04.740> ride<00:26:05.010> I<00:26:05.400> didn’t

00:26:06.020 –> 00:26:06.030 align:start position:0%
willing to give you a free ride I didn’t

00:26:06.030 –> 00:26:07.040 align:start position:0%
willing to give you a free ride I didn’t
even<00:26:06.150> want<00:26:06.330> to<00:26:06.390> remove<00:26:06.630> you<00:26:06.809> from<00:26:06.840> the

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even want to remove you from the

00:26:07.050 –> 00:26:09.470 align:start position:0%
even want to remove you from the
hospital<00:26:07.200> I<00:26:07.650> asked<00:26:08.070> you<00:26:08.130> nicely<00:26:08.400> to<00:26:08.940> walk<00:26:09.210> out

00:26:09.470 –> 00:26:09.480 align:start position:0%
hospital I asked you nicely to walk out

00:26:09.480 –> 00:26:11.030 align:start position:0%
hospital I asked you nicely to walk out
of<00:26:09.540> the<00:26:09.720> hospital<00:26:09.870> so<00:26:10.559> we<00:26:10.650> can<00:26:10.770> give<00:26:10.920> you<00:26:11.010> a

00:26:11.030 –> 00:26:11.040 align:start position:0%
of the hospital so we can give you a

00:26:11.040 –> 00:26:12.680 align:start position:0%
of the hospital so we can give you a
ride<00:26:11.280> there<00:26:11.790> no<00:26:11.940> there<00:26:12.240> doesn’t<00:26:12.480> need<00:26:12.540> to<00:26:12.600> be

00:26:12.680 –> 00:26:12.690 align:start position:0%
ride there no there doesn’t need to be

00:26:12.690 –> 00:26:14.360 align:start position:0%
ride there no there doesn’t need to be
at<00:26:12.809> two<00:26:12.960> one<00:26:13.140> one<00:26:13.350> you<00:26:13.530> don’t<00:26:13.590> need<00:26:13.800> funds<00:26:14.160> for

00:26:14.360 –> 00:26:14.370 align:start position:0%
at two one one you don’t need funds for

00:26:14.370 –> 00:26:16.810 align:start position:0%
at two one one you don’t need funds for
the<00:26:14.460> uber<00:26:14.610> I’m<00:26:15.090> willing<00:26:15.420> to<00:26:15.480> give<00:26:15.720> you<00:26:15.840> a<00:26:15.870> ride

00:26:16.810 –> 00:26:16.820 align:start position:0%
the uber I’m willing to give you a ride

00:26:16.820 –> 00:26:21.380 align:start position:0%
the uber I’m willing to give you a ride
and<00:26:17.820> I<00:26:18.000> explained<00:26:18.390> that<00:26:18.420> several<00:26:19.140> times<00:26:20.390> so

00:26:21.380 –> 00:26:21.390 align:start position:0%
and I explained that several times so

00:26:21.390 –> 00:26:22.960 align:start position:0%
and I explained that several times so
I’m<00:26:21.480> gonna<00:26:21.570> ask<00:26:21.809> you<00:26:22.020> again

00:26:22.960 –> 00:26:22.970 align:start position:0%
I’m gonna ask you again

00:26:22.970 –> 00:26:31.690 align:start position:0%
I’m gonna ask you again
can<00:26:23.970> I<00:26:24.059> give<00:26:24.300> you<00:26:24.420> a<00:26:24.450> ride<00:26:24.630> home

00:26:31.690 –> 00:26:31.700 align:start position:0%

00:26:31.700 –> 00:26:37.030 align:start position:0%

oh<00:26:32.080> I<00:26:33.080> give<00:26:33.620> you<00:26:33.710> a<00:26:33.740> ride<00:26:33.980> home<00:26:35.740> yeah<00:26:36.740> no<00:26:37.010> I

00:26:37.030 –> 00:26:37.040 align:start position:0%
oh I give you a ride home yeah no I

00:26:37.040 –> 00:26:38.710 align:start position:0%
oh I give you a ride home yeah no I
don’t<00:26:37.880> need<00:26:38.120> a<00:26:38.180> ride

00:26:38.710 –> 00:26:38.720 align:start position:0%
don’t need a ride

00:26:38.720 –> 00:26:40.480 align:start position:0%
don’t need a ride
thank<00:26:38.930> you<00:26:39.140> but<00:26:39.770> you<00:26:39.890> just<00:26:40.040> said<00:26:40.220> you<00:26:40.370> don’t

00:26:40.480 –> 00:26:40.490 align:start position:0%
thank you but you just said you don’t

00:26:40.490 –> 00:26:42.550 align:start position:0%
thank you but you just said you don’t
know<00:26:40.640> how<00:26:40.790> to<00:26:40.850> get<00:26:41.030> an<00:26:41.150> uber<00:26:41.270> here<00:26:41.600> you<00:26:42.080> don’t

00:26:42.550 –> 00:26:42.560 align:start position:0%
know how to get an uber here you don’t

00:26:42.560 –> 00:26:44.290 align:start position:0%
know how to get an uber here you don’t
know<00:26:42.710> whether<00:26:42.890> to<00:26:42.950> dial<00:26:43.250> 2-1-1<00:26:43.490> you<00:26:44.120> don’t

00:26:44.290 –> 00:26:44.300 align:start position:0%
know whether to dial 2-1-1 you don’t

00:26:44.300 –> 00:26:46.000 align:start position:0%
know whether to dial 2-1-1 you don’t
sure<00:26:44.480> if<00:26:44.570> the<00:26:44.690> funds<00:26:44.960> are<00:26:45.110> there<00:26:45.290> you’re<00:26:45.890> not

00:26:46.000 –> 00:26:46.010 align:start position:0%
sure if the funds are there you’re not

00:26:46.010 –> 00:26:49.380 align:start position:0%
sure if the funds are there you’re not
speaking<00:26:46.250> clear<00:26:46.670> and<00:26:46.790> coherent<00:26:47.030> sentences<00:26:47.630> I

00:26:49.380 –> 00:26:49.390 align:start position:0%
speaking clear and coherent sentences I

00:26:49.390 –> 00:26:51.790 align:start position:0%
speaking clear and coherent sentences I
don’t<00:26:50.390> know<00:26:50.450> what<00:26:50.570> to<00:26:50.660> do<00:26:50.780> with<00:26:50.900> you<00:26:50.990> honey<00:26:51.170> I’m

00:26:51.790 –> 00:26:51.800 align:start position:0%
don’t know what to do with you honey I’m

00:26:51.800 –> 00:26:52.930 align:start position:0%
don’t know what to do with you honey I’m
offering<00:26:52.250> to<00:26:52.310> give<00:26:52.430> you<00:26:52.520> a<00:26:52.550> ride<00:26:52.730> home<00:26:52.880> the

00:26:52.930 –> 00:26:52.940 align:start position:0%
offering to give you a ride home the

00:26:52.940 –> 00:26:55.180 align:start position:0%
offering to give you a ride home the
easiest<00:26:53.360> solution<00:26:53.570> I<00:26:54.140> do<00:26:54.470> understand<00:26:55.070> your

00:26:55.180 –> 00:26:55.190 align:start position:0%
easiest solution I do understand your

00:26:55.190 –> 00:26:58.860 align:start position:0%
easiest solution I do understand your
question<00:26:55.760> I’m<00:26:56.450> asking<00:26:56.870> where<00:26:57.050> you<00:26:57.200> gonna<00:26:57.290> go

00:26:58.860 –> 00:26:58.870 align:start position:0%
question I’m asking where you gonna go

00:26:58.870 –> 00:27:01.600 align:start position:0%
question I’m asking where you gonna go
you<00:26:59.870> cannot<00:27:00.170> sit<00:27:00.410> out<00:27:00.500> front<00:27:00.770> of<00:27:00.860> the<00:27:00.950> hospital

00:27:01.600 –> 00:27:01.610 align:start position:0%
you cannot sit out front of the hospital

00:27:01.610 –> 00:27:03.160 align:start position:0%
you cannot sit out front of the hospital
you<00:27:01.820> were<00:27:01.940> already<00:27:02.150> removed<00:27:02.690> from<00:27:02.840> the<00:27:03.020> inside

00:27:03.160 –> 00:27:03.170 align:start position:0%
you were already removed from the inside

00:27:03.170 –> 00:27:07.900 align:start position:0%
you were already removed from the inside
of<00:27:03.500> the<00:27:03.590> hospital<00:27:04.040> I<00:27:06.430> know<00:27:07.430> that<00:27:07.670> we’re<00:27:07.880> not

00:27:07.900 –> 00:27:07.910 align:start position:0%
of the hospital I know that we’re not

00:27:07.910 –> 00:27:09.850 align:start position:0%
of the hospital I know that we’re not
but<00:27:08.210> we’re<00:27:08.330> not<00:27:08.420> gonna<00:27:08.540> go<00:27:08.690> back<00:27:08.840> into<00:27:09.020> that<00:27:09.110> it

00:27:09.850 –> 00:27:09.860 align:start position:0%
but we’re not gonna go back into that it

00:27:09.860 –> 00:27:12.640 align:start position:0%
but we’re not gonna go back into that it
took<00:27:10.040> us<00:27:10.160> 20<00:27:10.430> minutes<00:27:10.520> at<00:27:11.000> least<00:27:11.330> at<00:27:11.870> least<00:27:11.930> to

00:27:12.640 –> 00:27:12.650 align:start position:0%
took us 20 minutes at least at least to

00:27:12.650 –> 00:27:13.930 align:start position:0%
took us 20 minutes at least at least to
have<00:27:12.800> a<00:27:12.830> nurse<00:27:13.040> come<00:27:13.280> and<00:27:13.310> explain<00:27:13.670> everything

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have a nurse come and explain everything

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have a nurse come and explain everything
to<00:27:14.150> you<00:27:14.270> again<00:27:14.630> something<00:27:15.320> that<00:27:15.440> security

00:27:16.000 –> 00:27:16.010 align:start position:0%
to you again something that security

00:27:16.010 –> 00:27:17.680 align:start position:0%
to you again something that security
already<00:27:16.220> did<00:27:16.520> that’s<00:27:17.030> why<00:27:17.180> they<00:27:17.300> called<00:27:17.540> us

00:27:17.680 –> 00:27:17.690 align:start position:0%
already did that’s why they called us

00:27:17.690 –> 00:27:19.570 align:start position:0%
already did that’s why they called us
that’s<00:27:18.170> why<00:27:18.380> you<00:27:18.440> were<00:27:18.620> physically<00:27:19.160> removed

00:27:19.570 –> 00:27:19.580 align:start position:0%
that’s why you were physically removed

00:27:19.580 –> 00:27:21.580 align:start position:0%
that’s why you were physically removed
from<00:27:19.700> the<00:27:19.850> hospital<00:27:20.300> and<00:27:21.050> now<00:27:21.260> that<00:27:21.440> you’re

00:27:21.580 –> 00:27:21.590 align:start position:0%
from the hospital and now that you’re

00:27:21.590 –> 00:27:24.580 align:start position:0%
from the hospital and now that you’re
outside<00:27:21.890> of<00:27:21.950> the<00:27:22.100> hospital<00:27:22.450> I’m<00:27:23.450> asking<00:27:23.990> what

00:27:24.580 –> 00:27:24.590 align:start position:0%
outside of the hospital I’m asking what

00:27:24.590 –> 00:27:26.170 align:start position:0%
outside of the hospital I’m asking what
are<00:27:24.800> you<00:27:24.950> going<00:27:25.130> to<00:27:25.250> do<00:27:25.490> do<00:27:25.700> you<00:27:25.760> have<00:27:25.880> a<00:27:25.910> cell

00:27:26.170 –> 00:27:26.180 align:start position:0%
are you going to do do you have a cell

00:27:26.180 –> 00:27:27.280 align:start position:0%
are you going to do do you have a cell
phone<00:27:26.210> that<00:27:26.450> you’re<00:27:26.690> gonna<00:27:26.780> call<00:27:27.050> to<00:27:27.200> have

00:27:27.280 –> 00:27:27.290 align:start position:0%
phone that you’re gonna call to have

00:27:27.290 –> 00:27:29.410 align:start position:0%
phone that you’re gonna call to have
someone<00:27:27.530> pick<00:27:27.650> you<00:27:27.770> up<00:27:27.850> or<00:27:28.850> am<00:27:28.970> I<00:27:29.030> gonna<00:27:29.210> take

00:27:29.410 –> 00:27:29.420 align:start position:0%
someone pick you up or am I gonna take

00:27:29.420 –> 00:27:35.490 align:start position:0%
someone pick you up or am I gonna take
you<00:27:29.570> home

00:27:35.490 –> 00:27:35.500 align:start position:0%

00:27:35.500 –> 00:27:40.710 align:start position:0%

I<00:27:36.780> apparently<00:27:38.670> have<00:27:39.670> been<00:27:39.940> denied<00:27:40.480> medical

00:27:40.710 –> 00:27:40.720 align:start position:0%
I apparently have been denied medical

00:27:40.720 –> 00:27:42.570 align:start position:0%
I apparently have been denied medical
care<00:27:41.080> at<00:27:41.650> UCSD

00:27:42.570 –> 00:27:42.580 align:start position:0%
care at UCSD

00:27:42.580 –> 00:27:45.660 align:start position:0%
care at UCSD
and<00:27:42.820> now<00:27:43.210> I<00:27:43.240> have<00:27:43.690> to<00:27:43.930> figure<00:27:44.830> out<00:27:45.130> what<00:27:45.460> I<00:27:45.490> need

00:27:45.660 –> 00:27:45.670 align:start position:0%
and now I have to figure out what I need

00:27:45.670 –> 00:27:48.240 align:start position:0%
and now I have to figure out what I need
to<00:27:45.880> do<00:27:46.150> next<00:27:46.480> because<00:27:46.900> I<00:27:47.320> do<00:27:47.380> not<00:27:47.740> have<00:27:47.800> any

00:27:48.240 –> 00:27:48.250 align:start position:0%
to do next because I do not have any

00:27:48.250 –> 00:27:51.180 align:start position:0%
to do next because I do not have any
resources<00:27:48.880> because<00:27:49.510> I<00:27:49.660> have<00:27:49.870> already<00:27:50.260> waited

00:27:51.180 –> 00:27:51.190 align:start position:0%
resources because I have already waited

00:27:51.190 –> 00:27:52.980 align:start position:0%
resources because I have already waited
five<00:27:51.610> and<00:27:51.820> a<00:27:51.880> half<00:27:51.910> months<00:27:52.540> on<00:27:52.660> the<00:27:52.780> waiting

00:27:52.980 –> 00:27:52.990 align:start position:0%
five and a half months on the waiting

00:27:52.990 –> 00:27:54.510 align:start position:0%
five and a half months on the waiting
list<00:27:53.140> for<00:27:53.440> this<00:27:53.680> procedure

00:27:54.510 –> 00:27:54.520 align:start position:0%
list for this procedure

00:27:54.520 –> 00:27:58.110 align:start position:0%
list for this procedure
I<00:27:54.550> had<00:27:56.430> unfortunately<00:27:57.430> other<00:27:57.610> medical

00:27:58.110 –> 00:27:58.120 align:start position:0%
I had unfortunately other medical

00:27:58.120 –> 00:28:00.120 align:start position:0%
I had unfortunately other medical
treatment<00:27:58.630> has<00:27:58.810> to<00:27:58.840> wait<00:27:59.140> until<00:27:59.560> they<00:27:59.770> do<00:27:59.830> the

00:28:00.120 –> 00:28:00.130 align:start position:0%
treatment has to wait until they do the

00:28:00.130 –> 00:28:03.090 align:start position:0%
treatment has to wait until they do the
procedure<00:28:00.730> to<00:28:00.970> put<00:28:01.180> into<00:28:01.480> port<00:28:01.780> in<00:28:01.960> the<00:28:02.680> vein

00:28:03.090 –> 00:28:03.100 align:start position:0%
procedure to put into port in the vein

00:28:03.100 –> 00:28:06.150 align:start position:0%
procedure to put into port in the vein
so<00:28:04.030> that<00:28:04.270> I<00:28:04.300> can<00:28:04.900> have<00:28:05.080> direct<00:28:05.470> access<00:28:05.710> to<00:28:05.980> the

00:28:06.150 –> 00:28:06.160 align:start position:0%
so that I can have direct access to the

00:28:06.160 –> 00:28:08.640 align:start position:0%
so that I can have direct access to the
vein<00:28:06.430> I’m<00:28:07.090> not<00:28:07.300> able<00:28:07.570> to<00:28:07.750> get<00:28:08.020> the<00:28:08.200> treatment

00:28:08.640 –> 00:28:08.650 align:start position:0%
vein I’m not able to get the treatment

00:28:08.650 –> 00:28:10.980 align:start position:0%
vein I’m not able to get the treatment
until<00:28:08.950> they<00:28:09.160> complete<00:28:09.610> the<00:28:09.790> procedures<00:28:10.420> so<00:28:10.720> I

00:28:10.980 –> 00:28:10.990 align:start position:0%
until they complete the procedures so I

00:28:10.990 –> 00:28:13.830 align:start position:0%
until they complete the procedures so I
don’t<00:28:11.350> know<00:28:11.590> where<00:28:11.830> to<00:28:12.100> go<00:28:12.250> if<00:28:12.850> they<00:28:13.240> cannot<00:28:13.600> do

00:28:13.830 –> 00:28:13.840 align:start position:0%
don’t know where to go if they cannot do

00:28:13.840 –> 00:28:23.100 align:start position:0%
don’t know where to go if they cannot do
it<00:28:14.050> and<00:28:14.260> I<00:28:15.160> have<00:28:15.430> not<00:28:15.610> been<00:28:16.120> able<00:28:20.100> so<00:28:22.050> now<00:28:23.050> that

00:28:23.100 –> 00:28:23.110 align:start position:0%
it and I have not been able so now that

00:28:23.110 –> 00:28:25.370 align:start position:0%
it and I have not been able so now that
you<00:28:23.320> have<00:28:23.350> been<00:28:23.530> removed<00:28:23.740> from<00:28:23.860> the<00:28:23.980> hospital

00:28:25.370 –> 00:28:25.380 align:start position:0%
you have been removed from the hospital

00:28:25.380 –> 00:28:27.600 align:start position:0%
you have been removed from the hospital
I’m<00:28:26.380> gonna<00:28:26.530> watch<00:28:26.830> you<00:28:27.070> and<00:28:27.250> I’m<00:28:27.310> gonna<00:28:27.400> see

00:28:27.600 –> 00:28:27.610 align:start position:0%
I’m gonna watch you and I’m gonna see

00:28:27.610 –> 00:28:29.760 align:start position:0%
I’m gonna watch you and I’m gonna see
what<00:28:27.640> you<00:28:27.850> do<00:28:28.030> I’m<00:28:28.990> gonna<00:28:29.140> see<00:28:29.350> if<00:28:29.590> you<00:28:29.680> don’t

00:28:29.760 –> 00:28:29.770 align:start position:0%
what you do I’m gonna see if you don’t

00:28:29.770 –> 00:28:31.260 align:start position:0%
what you do I’m gonna see if you don’t
want<00:28:29.950> to<00:28:30.010> ride<00:28:30.160> home<00:28:30.340> for<00:28:30.550> me<00:28:30.670> I’m<00:28:31.000> going<00:28:31.210> to

00:28:31.260 –> 00:28:31.270 align:start position:0%
want to ride home for me I’m going to

00:28:31.270 –> 00:28:32.250 align:start position:0%
want to ride home for me I’m going to
watch<00:28:31.420> you<00:28:31.630> and<00:28:31.660> I’m<00:28:31.810> gonna<00:28:31.930> see<00:28:32.050> if<00:28:32.170> you’re

00:28:32.250 –> 00:28:32.260 align:start position:0%
watch you and I’m gonna see if you’re

00:28:32.260 –> 00:28:33.570 align:start position:0%
watch you and I’m gonna see if you’re
able<00:28:32.350> to<00:28:32.440> take<00:28:32.530> care<00:28:32.800> of<00:28:32.920> yourself<00:28:33.250> and

00:28:33.570 –> 00:28:33.580 align:start position:0%
able to take care of yourself and

00:28:33.580 –> 00:28:35.520 align:start position:0%
able to take care of yourself and
provide<00:28:34.000> transportation<00:28:34.480> for<00:28:34.810> yourself<00:28:35.260> and

00:28:35.520 –> 00:28:35.530 align:start position:0%
provide transportation for yourself and

00:28:35.530 –> 00:28:37.590 align:start position:0%
provide transportation for yourself and
walk<00:28:35.740> away<00:28:35.920> or<00:28:36.670> whatever<00:28:36.820> you’re<00:28:37.000> gonna<00:28:37.060> do<00:28:37.300> to

00:28:37.590 –> 00:28:37.600 align:start position:0%
walk away or whatever you’re gonna do to

00:28:37.600 –> 00:28:39.810 align:start position:0%
walk away or whatever you’re gonna do to
sustain<00:28:37.960> yourself<00:28:38.590> I<00:28:39.010> offered<00:28:39.520> you<00:28:39.580> a<00:28:39.640> ride

00:28:39.810 –> 00:28:39.820 align:start position:0%
sustain yourself I offered you a ride

00:28:39.820 –> 00:28:42.990 align:start position:0%
sustain yourself I offered you a ride
home<00:28:40.470> yes<00:28:41.470> it’s<00:28:41.710> really<00:28:41.920> here<00:28:42.280> filled<00:28:42.610> with

00:28:42.990 –> 00:28:43.000 align:start position:0%
home yes it’s really here filled with

00:28:43.000 –> 00:28:45.120 align:start position:0%
home yes it’s really here filled with
now<00:28:43.180> refused<00:28:43.600> it’s<00:28:44.530> been<00:28:44.740> really<00:28:44.980> difficult

00:28:45.120 –> 00:28:45.130 align:start position:0%
now refused it’s been really difficult

00:28:45.130 –> 00:28:49.470 align:start position:0%
now refused it’s been really difficult
without<00:28:45.880> the<00:28:46.120> port<00:28:47.070> because<00:28:48.070> of<00:28:48.340> the<00:28:48.490> the<00:28:48.970> home

00:28:49.470 –> 00:28:49.480 align:start position:0%
without the port because of the the home

00:28:49.480 –> 00:28:52.170 align:start position:0%
without the port because of the the home
health<00:28:49.920> agency<00:28:50.920> is<00:28:51.010> not<00:28:51.190> able<00:28:51.460> to<00:28:51.610> access<00:28:51.940> the

00:28:52.170 –> 00:28:52.180 align:start position:0%
health agency is not able to access the

00:28:52.180 –> 00:28:54.750 align:start position:0%
health agency is not able to access the
veins<00:28:52.510> they<00:28:52.720> keep<00:28:52.990> blowing<00:28:53.770> my<00:28:54.130> veins<00:28:54.460> with

00:28:54.750 –> 00:28:54.760 align:start position:0%
veins they keep blowing my veins with

00:28:54.760 –> 00:28:56.700 align:start position:0%
veins they keep blowing my veins with
all<00:28:54.910> the<00:28:55.090> bullets<00:28:55.450> like<00:28:55.660> I<00:28:55.840> said<00:28:56.050> you<00:28:56.410> can<00:28:56.560> go

00:28:56.700 –> 00:28:56.710 align:start position:0%
all the bullets like I said you can go

00:28:56.710 –> 00:28:58.350 align:start position:0%
all the bullets like I said you can go
to<00:28:56.770> another<00:28:56.890> hospital<00:28:57.280> you<00:28:57.970> can<00:28:58.150> seek

00:28:58.350 –> 00:28:58.360 align:start position:0%
to another hospital you can seek

00:28:58.360 –> 00:28:59.910 align:start position:0%
to another hospital you can seek
treatment<00:28:58.570> elsewhere<00:28:58.870> but<00:28:59.440> this<00:28:59.620> hospital

00:28:59.910 –> 00:28:59.920 align:start position:0%
treatment elsewhere but this hospital

00:28:59.920 –> 00:29:02.610 align:start position:0%
treatment elsewhere but this hospital
had<00:29:00.910> nobody<00:29:01.360> to<00:29:01.480> help<00:29:01.690> you<00:29:01.870> today<00:29:02.050> and<00:29:02.440> they

00:29:02.610 –> 00:29:02.620 align:start position:0%
had nobody to help you today and they

00:29:02.620 –> 00:29:04.170 align:start position:0%
had nobody to help you today and they
politely<00:29:03.010> asked<00:29:03.370> you<00:29:03.430> to<00:29:03.520> leave<00:29:03.670> and<00:29:03.970> he

00:29:04.170 –> 00:29:04.180 align:start position:0%
politely asked you to leave and he

00:29:04.180 –> 00:29:06.450 align:start position:0%
politely asked you to leave and he
refused<00:29:04.570> instead<00:29:05.200> you<00:29:05.650> wanted<00:29:05.890> to<00:29:05.980> monopolize

00:29:06.450 –> 00:29:06.460 align:start position:0%
refused instead you wanted to monopolize

00:29:06.460 –> 00:29:08.940 align:start position:0%
refused instead you wanted to monopolize
our<00:29:06.760> time<00:29:07.030> and<00:29:07.300> their<00:29:07.510> time<00:29:07.810> going<00:29:08.320> round<00:29:08.650> and

00:29:08.940 –> 00:29:08.950 align:start position:0%
our time and their time going round and

00:29:08.950 –> 00:29:11.310 align:start position:0%
our time and their time going round and
round<00:29:09.010> in<00:29:09.250> circles<00:29:09.570> explaining<00:29:10.570> why<00:29:10.720> and<00:29:11.170> we

00:29:11.310 –> 00:29:11.320 align:start position:0%
round in circles explaining why and we

00:29:11.320 –> 00:29:13.020 align:start position:0%
round in circles explaining why and we
politely<00:29:11.920> explained<00:29:12.520> to<00:29:12.610> you<00:29:12.670> with<00:29:12.850> that<00:29:12.940> we

00:29:13.020 –> 00:29:13.030 align:start position:0%
politely explained to you with that we

00:29:13.030 –> 00:29:15.090 align:start position:0%
politely explained to you with that we
cannot<00:29:13.240> help<00:29:13.420> you<00:29:13.630> we<00:29:14.140> did<00:29:14.290> not<00:29:14.320> stop<00:29:14.770> you<00:29:14.950> from

00:29:15.090 –> 00:29:15.100 align:start position:0%
cannot help you we did not stop you from

00:29:15.100 –> 00:29:16.800 align:start position:0%
cannot help you we did not stop you from
going<00:29:15.280> to<00:29:15.400> another<00:29:15.580> hospital<00:29:15.700> we<00:29:16.600> did<00:29:16.720> not

00:29:16.800 –> 00:29:16.810 align:start position:0%
going to another hospital we did not

00:29:16.810 –> 00:29:19.260 align:start position:0%
going to another hospital we did not
stop<00:29:17.080> you<00:29:17.230> from<00:29:17.350> leaving<00:29:17.760> so<00:29:18.760> I’m<00:29:18.850> gonna<00:29:19.000> step

00:29:19.260 –> 00:29:19.270 align:start position:0%
stop you from leaving so I’m gonna step

00:29:19.270 –> 00:29:21.090 align:start position:0%
stop you from leaving so I’m gonna step
back<00:29:19.330> I’m<00:29:19.720> gonna<00:29:19.810> watch<00:29:20.020> what<00:29:20.260> you<00:29:20.380> do<00:29:20.530> because

00:29:21.090 –> 00:29:21.100 align:start position:0%
back I’m gonna watch what you do because

00:29:21.100 –> 00:29:22.440 align:start position:0%
back I’m gonna watch what you do because
now<00:29:21.340> that<00:29:21.400> you’re<00:29:21.610> already<00:29:21.760> monopolizing<00:29:22.420> my

00:29:22.440 –> 00:29:22.450 align:start position:0%
now that you’re already monopolizing my

00:29:22.450 –> 00:29:24.900 align:start position:0%
now that you’re already monopolizing my
time<00:29:22.740> I’m<00:29:23.740> gonna<00:29:23.920> evaluate<00:29:24.190> you<00:29:24.610> for<00:29:24.640> being

00:29:24.900 –> 00:29:24.910 align:start position:0%
time I’m gonna evaluate you for being

00:29:24.910 –> 00:29:30.610 align:start position:0%
time I’m gonna evaluate you for being
greatly<00:29:25.090> to<00:29:25.270> save<00:29:25.450> it

00:29:30.610 –> 00:29:30.620 align:start position:0%

00:29:30.620 –> 00:29:32.560 align:start position:0%

basically<00:29:31.620> you<00:29:31.710> could<00:29:31.830> leave<00:29:32.040> on<00:29:32.190> your<00:29:32.340> own<00:29:32.400> or

00:29:32.560 –> 00:29:32.570 align:start position:0%
basically you could leave on your own or

00:29:32.570 –> 00:29:34.970 align:start position:0%
basically you could leave on your own or
you’re<00:29:33.570> going<00:29:33.720> to<00:29:33.780> be<00:29:33.900> brought<00:29:34.500> to<00:29:34.740> a<00:29:34.770> facility

00:29:34.970 –> 00:29:34.980 align:start position:0%
you’re going to be brought to a facility

00:29:34.980 –> 00:30:25.930 align:start position:0%
you’re going to be brought to a facility
somewhere<00:29:35.730> else

00:30:25.930 –> 00:30:25.940 align:start position:0%

00:30:25.940 –> 00:30:27.790 align:start position:0%

I<00:30:25.970> want<00:30:26.480> to<00:30:26.540> touch<00:30:26.690> basis<00:30:27.080> with<00:30:27.230> you<00:30:27.320> again<00:30:27.560> you

00:30:27.790 –> 00:30:27.800 align:start position:0%
I want to touch basis with you again you

00:30:27.800 –> 00:30:30.490 align:start position:0%
I want to touch basis with you again you
are<00:30:28.340> free<00:30:28.520> to<00:30:28.610> leave<00:30:28.850> hi<00:30:29.600> you<00:30:30.050> are<00:30:30.080> free<00:30:30.410> to

00:30:30.490 –> 00:30:30.500 align:start position:0%
are free to leave hi you are free to

00:30:30.500 –> 00:30:30.960 align:start position:0%
are free to leave hi you are free to
leave

00:30:30.960 –> 00:30:30.970 align:start position:0%
leave

00:30:30.970 –> 00:30:33.430 align:start position:0%
leave
what<00:30:31.970> are<00:30:32.060> you<00:30:32.150> going<00:30:32.330> to<00:30:32.540> do<00:30:32.690> I<00:30:32.960> see<00:30:33.200> you<00:30:33.290> have

00:30:33.430 –> 00:30:33.440 align:start position:0%
what are you going to do I see you have

00:30:33.440 –> 00:30:35.680 align:start position:0%
what are you going to do I see you have
a<00:30:33.470> cell<00:30:33.740> phone<00:30:33.940> if<00:30:34.940> you<00:30:35.000> want<00:30:35.240> to<00:30:35.330> call<00:30:35.480> an<00:30:35.600> uber

00:30:35.680 –> 00:30:35.690 align:start position:0%
a cell phone if you want to call an uber

00:30:35.690 –> 00:30:38.200 align:start position:0%
a cell phone if you want to call an uber
to<00:30:35.870> go<00:30:35.990> back<00:30:36.200> to<00:30:36.350> your<00:30:36.500> apartment<00:30:36.590> you<00:30:37.070> can<00:30:37.310> you

00:30:38.200 –> 00:30:38.210 align:start position:0%
to go back to your apartment you can you

00:30:38.210 –> 00:30:41.260 align:start position:0%
to go back to your apartment you can you
are<00:30:38.330> not<00:30:38.480> being<00:30:38.720> detained<00:30:38.960> anymore<00:30:40.120> now<00:30:41.120> I’m

00:30:41.260 –> 00:30:41.270 align:start position:0%
are not being detained anymore now I’m

00:30:41.270 –> 00:30:42.490 align:start position:0%
are not being detained anymore now I’m
trying<00:30:41.480> to<00:30:41.540> see<00:30:41.690> if<00:30:41.810> you<00:30:41.900> can’t<00:30:42.140> even<00:30:42.290> take

00:30:42.490 –> 00:30:42.500 align:start position:0%
trying to see if you can’t even take

00:30:42.500 –> 00:30:44.530 align:start position:0%
trying to see if you can’t even take
care<00:30:42.530> of<00:30:42.740> yourself<00:30:42.890> and<00:30:43.430> I<00:30:44.000> was<00:30:44.120> offering<00:30:44.450> to

00:30:44.530 –> 00:30:44.540 align:start position:0%
care of yourself and I was offering to

00:30:44.540 –> 00:30:46.390 align:start position:0%
care of yourself and I was offering to
try<00:30:44.750> and<00:30:44.840> help<00:30:44.990> you<00:30:45.200> and<00:30:45.590> you<00:30:45.860> are<00:30:45.980> refusing

00:30:46.390 –> 00:30:46.400 align:start position:0%
try and help you and you are refusing

00:30:46.400 –> 00:30:48.790 align:start position:0%
try and help you and you are refusing
for<00:30:47.240> reasons<00:30:47.720> that<00:30:47.780> I<00:30:47.900> do<00:30:48.050> not<00:30:48.260> understand

00:30:48.790 –> 00:30:48.800 align:start position:0%
for reasons that I do not understand

00:30:48.800 –> 00:30:50.800 align:start position:0%
for reasons that I do not understand
yeah<00:30:49.160> my<00:30:49.370> partner’s<00:30:49.820> do<00:30:49.940> not<00:30:50.060> understand<00:30:50.510> that

00:30:50.800 –> 00:30:50.810 align:start position:0%
yeah my partner’s do not understand that

00:30:50.810 –> 00:30:54.820 align:start position:0%
yeah my partner’s do not understand that
this<00:30:51.080> hospital<00:30:51.320> does<00:30:51.800> not<00:30:51.950> understand<00:30:53.830> they

00:30:54.820 –> 00:30:54.830 align:start position:0%
this hospital does not understand they

00:30:54.830 –> 00:30:57.610 align:start position:0%
this hospital does not understand they
have<00:30:55.150> requested<00:30:56.150> the<00:30:56.270> assistance<00:30:56.570> of<00:30:57.110> the

00:30:57.610 –> 00:30:57.620 align:start position:0%
have requested the assistance of the

00:30:57.620 –> 00:31:00.160 align:start position:0%
have requested the assistance of the
social<00:30:58.160> worker<00:30:58.310> because<00:30:58.670> the<00:30:59.150> the<00:30:59.630> nurses

00:31:00.160 –> 00:31:00.170 align:start position:0%
social worker because the the nurses

00:31:00.170 –> 00:31:02.560 align:start position:0%
social worker because the the nurses
were<00:31:00.320> telling<00:31:00.830> me<00:31:00.860> that<00:31:01.010> they<00:31:01.970> could<00:31:02.420> not

00:31:02.560 –> 00:31:02.570 align:start position:0%
were telling me that they could not

00:31:02.570 –> 00:31:03.610 align:start position:0%
were telling me that they could not
understand<00:31:03.170> me

00:31:03.610 –> 00:31:03.620 align:start position:0%
understand me

00:31:03.620 –> 00:31:08.680 align:start position:0%
understand me
I<00:31:06.130> had<00:31:07.130> waived<00:31:07.400> my<00:31:07.700> rights<00:31:08.000> for<00:31:08.480> the

00:31:08.680 –> 00:31:08.690 align:start position:0%
I had waived my rights for the

00:31:08.690 –> 00:31:10.870 align:start position:0%
I had waived my rights for the
translator<00:31:09.440> services<00:31:10.190> because<00:31:10.640> the

00:31:10.870 –> 00:31:10.880 align:start position:0%
translator services because the

00:31:10.880 –> 00:31:14.110 align:start position:0%
translator services because the
translation<00:31:11.450> service<00:31:12.050> is<00:31:12.260> out<00:31:13.120> maternity

00:31:14.110 –> 00:31:14.120 align:start position:0%
translation service is out maternity

00:31:14.120 –> 00:31:30.150 align:start position:0%
translation service is out maternity
leave

00:31:30.150 –> 00:31:30.160 align:start position:0%

00:31:30.160 –> 00:33:18.700 align:start position:0%

Oh

00:33:18.700 –> 00:33:18.710 align:start position:0%

00:33:18.710 –> 00:33:21.550 align:start position:0%

okay<00:33:19.250> I<00:33:19.460> just<00:33:19.700> you<00:33:20.480> know<00:33:20.630> we’re<00:33:20.900> just<00:33:20.930> in<00:33:21.410> the

00:33:21.550 –> 00:33:21.560 align:start position:0%
okay I just you know we’re just in the

00:33:21.560 –> 00:34:31.630 align:start position:0%
okay I just you know we’re just in the
present<00:33:21.980> state<00:33:24.610> all<00:33:25.610> right

00:34:31.630 –> 00:34:31.640 align:start position:0%

00:34:31.640 –> 00:34:34.210 align:start position:0%

are<00:34:32.060> you<00:34:32.120> ready<00:34:32.300> to<00:34:32.450> leave<00:34:32.630> penny<00:34:33.440> can<00:34:34.190> you

00:34:34.210 –> 00:34:34.220 align:start position:0%
are you ready to leave penny can you

00:34:34.220 –> 00:34:36.340 align:start position:0%
are you ready to leave penny can you
take<00:34:34.430> off<00:34:34.580> your<00:34:34.730> glasses<00:34:34.880> for<00:34:35.120> me<00:34:35.390> will<00:34:36.290> you

00:34:36.340 –> 00:34:36.350 align:start position:0%
take off your glasses for me will you

00:34:36.350 –> 00:34:39.240 align:start position:0%
take off your glasses for me will you
take<00:34:36.500> off<00:34:36.620> your<00:34:36.800> sunglasses

00:34:39.240 –> 00:34:39.250 align:start position:0%

00:34:39.250 –> 00:34:41.010 align:start position:0%

yeah<00:34:39.760> take<00:34:40.060> off<00:34:40.210> your<00:34:40.359> sunglasses<00:34:40.450> I<00:34:40.899> just

00:34:41.010 –> 00:34:41.020 align:start position:0%
yeah take off your sunglasses I just

00:34:41.020 –> 00:34:44.309 align:start position:0%
yeah take off your sunglasses I just
want<00:34:41.139> to<00:34:41.200> see<00:34:41.319> your<00:34:41.409> eyes<00:34:42.960> can<00:34:43.960> I<00:34:43.990> see<00:34:44.169> your

00:34:44.309 –> 00:34:44.319 align:start position:0%
want to see your eyes can I see your

00:34:44.319 –> 00:34:46.890 align:start position:0%
want to see your eyes can I see your
eyes<00:34:44.470> can<00:34:44.710> you<00:34:44.740> take<00:34:44.919> them<00:34:45.069> on<00:34:45.190> cement

00:34:46.890 –> 00:34:46.900 align:start position:0%
eyes can you take them on cement

00:34:46.900 –> 00:34:48.750 align:start position:0%
eyes can you take them on cement
can<00:34:47.500> you<00:34:47.590> remove<00:34:47.860> them<00:34:48.100> so<00:34:48.220> I<00:34:48.310> can<00:34:48.490> see<00:34:48.610> your

00:34:48.750 –> 00:34:48.760 align:start position:0%
can you remove them so I can see your

00:34:48.760 –> 00:34:57.030 align:start position:0%
can you remove them so I can see your
eyes

00:34:57.030 –> 00:34:57.040 align:start position:0%

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[Music]

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[Music]

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any<00:35:27.180> you<00:35:28.180> cannot<00:35:28.480> stay<00:35:28.750> outside<00:35:28.930> here<00:35:29.440> you

00:35:29.640 –> 00:35:29.650 align:start position:0%
any you cannot stay outside here you

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any you cannot stay outside here you
should<00:35:30.130> probably<00:35:30.340> head<00:35:30.580> home

00:35:31.830 –> 00:35:31.840 align:start position:0%
should probably head home

00:35:31.840 –> 00:35:34.020 align:start position:0%
should probably head home
you’re<00:35:32.200> welding<00:35:32.620> with<00:35:32.770> their<00:35:33.030> fingers

00:35:34.020 –> 00:35:34.030 align:start position:0%
you’re welding with their fingers

00:35:34.030 –> 00:35:35.520 align:start position:0%
you’re welding with their fingers
football<00:35:34.330> rain<00:35:34.600> tonight<00:35:34.810> you<00:35:35.080> cannot<00:35:35.320> stay

00:35:35.520 –> 00:35:35.530 align:start position:0%
football rain tonight you cannot stay

00:35:35.530 –> 00:35:37.020 align:start position:0%
football rain tonight you cannot stay
out<00:35:35.650> there<00:35:35.830> anything<00:35:36.070> April<00:35:36.550> and<00:35:36.760> I’m<00:35:36.850> waiting

00:35:37.020 –> 00:35:37.030 align:start position:0%
out there anything April and I’m waiting

00:35:37.030 –> 00:35:38.700 align:start position:0%
out there anything April and I’m waiting
to<00:35:37.210> see<00:35:37.360> what<00:35:37.510> you’re<00:35:37.660> going<00:35:37.750> to<00:35:37.840> do<00:35:37.990> you<00:35:38.560> have

00:35:38.700 –> 00:35:38.710 align:start position:0%
to see what you’re going to do you have

00:35:38.710 –> 00:35:41.580 align:start position:0%
to see what you’re going to do you have
a<00:35:38.740> cellphone<00:35:39.070> I<00:35:39.310> see<00:35:40.080> you<00:35:41.080> have<00:35:41.200> a<00:35:41.260> smartphone

00:35:41.580 –> 00:35:41.590 align:start position:0%
a cellphone I see you have a smartphone

00:35:41.590 –> 00:35:43.740 align:start position:0%
a cellphone I see you have a smartphone
right<00:35:41.920> on<00:35:42.220> their<00:35:42.400> backpack<00:35:42.790> what<00:35:43.570> are<00:35:43.660> you

00:35:43.740 –> 00:35:43.750 align:start position:0%
right on their backpack what are you

00:35:43.750 –> 00:35:44.910 align:start position:0%
right on their backpack what are you
going<00:35:43.840> to<00:35:43.930> do<00:35:44.020> it<00:35:44.110> I’m<00:35:44.260> going<00:35:44.350> to<00:35:44.440> wheel<00:35:44.590> you<00:35:44.620> to

00:35:44.910 –> 00:35:44.920 align:start position:0%
going to do it I’m going to wheel you to

00:35:44.920 –> 00:35:46.590 align:start position:0%
going to do it I’m going to wheel you to
the<00:35:44.980> bus<00:35:45.160> stop<00:35:45.370> and<00:35:46.210> you’re<00:35:46.300> going<00:35:46.420> to<00:35:46.480> make<00:35:46.570> a

00:35:46.590 –> 00:35:46.600 align:start position:0%
the bus stop and you’re going to make a

00:35:46.600 –> 00:35:48.960 align:start position:0%
the bus stop and you’re going to make a
call<00:35:46.930> to<00:35:46.960> get<00:35:47.230> picked<00:35:47.440> up<00:35:47.730> what<00:35:48.730> are<00:35:48.820> you<00:35:48.850> gonna

00:35:48.960 –> 00:35:48.970 align:start position:0%
call to get picked up what are you gonna

00:35:48.970 –> 00:35:53.670 align:start position:0%
call to get picked up what are you gonna
do

00:35:53.670 –> 00:35:53.680 align:start position:0%

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[Music]

00:35:59.210 –> 00:35:59.220 align:start position:0%

00:35:59.220 –> 00:36:00.920 align:start position:0%

I’m<00:35:59.579> gonna<00:35:59.760> wait<00:35:59.940> this<00:35:59.970> is<00:36:00.270> the<00:36:00.420> hospital’s

00:36:00.920 –> 00:36:00.930 align:start position:0%
I’m gonna wait this is the hospital’s

00:36:00.930 –> 00:36:03.710 align:start position:0%
I’m gonna wait this is the hospital’s
chair<00:36:01.200> is<00:36:01.800> the<00:36:02.010> hospital<00:36:02.369> chair<00:36:02.640> you<00:36:03.420> want<00:36:03.599> to

00:36:03.710 –> 00:36:03.720 align:start position:0%
chair is the hospital chair you want to

00:36:03.720 –> 00:36:05.450 align:start position:0%
chair is the hospital chair you want to
walk<00:36:03.869> off<00:36:04.109> that<00:36:04.140> way<00:36:04.530> or<00:36:04.589> I’ll<00:36:05.069> put<00:36:05.250> you<00:36:05.339> on<00:36:05.369> a

00:36:05.450 –> 00:36:05.460 align:start position:0%
walk off that way or I’ll put you on a

00:36:05.460 –> 00:36:08.740 align:start position:0%
walk off that way or I’ll put you on a
bus<00:36:05.609> stop<00:36:05.819> to<00:36:06.000> me

00:36:08.740 –> 00:36:08.750 align:start position:0%

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[Music]

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[Music]

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[Music]
I’m<00:36:11.240> asking<00:36:11.720> what<00:36:11.900> are<00:36:11.930> you<00:36:11.990> going<00:36:12.140> to<00:36:12.260> do<00:36:12.500> this

00:36:12.910 –> 00:36:12.920 align:start position:0%
I’m asking what are you going to do this

00:36:12.920 –> 00:36:14.470 align:start position:0%
I’m asking what are you going to do this
is<00:36:13.070> the<00:36:13.160> hospital’s<00:36:13.610> chair<00:36:13.820> either<00:36:14.150> said<00:36:14.390> you

00:36:14.470 –> 00:36:14.480 align:start position:0%
is the hospital’s chair either said you

00:36:14.480 –> 00:36:16.210 align:start position:0%
is the hospital’s chair either said you
don’t<00:36:14.570> need<00:36:14.720> assistance<00:36:15.260> right<00:36:15.500> with<00:36:16.010> a<00:36:16.070> half

00:36:16.210 –> 00:36:16.220 align:start position:0%
don’t need assistance right with a half

00:36:16.220 –> 00:36:21.130 align:start position:0%
don’t need assistance right with a half
ball<00:36:16.460> of<00:36:16.520> a<00:36:16.580> micro<00:36:16.880> chair<00:36:17.150> back<00:36:19.810> yeah<00:36:20.810> you<00:36:20.990> can

00:36:21.130 –> 00:36:21.140 align:start position:0%
ball of a micro chair back yeah you can

00:36:21.140 –> 00:36:23.230 align:start position:0%
ball of a micro chair back yeah you can
leave<00:36:21.350> you’ve<00:36:22.130> been<00:36:22.280> free<00:36:22.460> to<00:36:22.490> leave<00:36:22.760> for<00:36:23.030> a

00:36:23.230 –> 00:36:23.240 align:start position:0%
leave you’ve been free to leave for a

00:36:23.240 –> 00:36:28.870 align:start position:0%
leave you’ve been free to leave for a
while<00:36:23.480> man<00:36:26.560> go<00:36:27.560> ahead<00:36:27.710> and<00:36:27.800> stand<00:36:28.010> up<00:36:28.250> and<00:36:28.640> just

00:36:28.870 –> 00:36:28.880 align:start position:0%
while man go ahead and stand up and just

00:36:28.880 –> 00:36:33.019 align:start position:0%
while man go ahead and stand up and just
leave<00:36:29.560> you’re<00:36:30.560> free<00:36:30.740> to<00:36:30.860> go

00:36:33.019 –> 00:36:33.029 align:start position:0%

00:36:33.029 –> 00:36:35.209 align:start position:0%

you<00:36:33.539> said<00:36:33.719> you<00:36:33.839> don’t<00:36:33.959> need<00:36:34.140> assistance<00:36:34.890> from

00:36:35.209 –> 00:36:35.219 align:start position:0%
you said you don’t need assistance from

00:36:35.219 –> 00:36:41.450 align:start position:0%
you said you don’t need assistance from
anyone<00:36:35.609> so<00:36:36.499> not<00:36:37.499> sure<00:36:37.679> what<00:36:37.799> you’re<00:36:37.949> doing

00:36:41.450 –> 00:36:41.460 align:start position:0%

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we’re<00:36:42.030> about<00:36:42.119> to<00:36:42.300> stand<00:36:42.510> up<00:36:42.660> and<00:36:42.869> go

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[Applause]

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[Music]

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[Music]

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[Music]

March 10, 2020 2:49 pm UC San Diego police 5150 hold after refusing to treat me on the basis of autism. Video footage, police reports, and plain text.

How a surgery in 2020 turned into police brutality, and a record with the county office. March 10, 2020 2:49 pm UC San Diego police 5150 hold after refusing to treat me on the basis of autism. Video footage, police reports, and plain text.

this March 2020 story begins with a hearing impairment and recommendation for ProTactile ASL provided by Deaf Community Services (DCS)

screen capture of DCS assessment recommends “a speech-to-speech transliterator as an auxiliary aid for interactions with case managers, medical professionals (ie: doctor’s offices and hospitals), and when accessing other public services pursuant to the American’s with Disabilities Act

On March 10, 2020 I was scheduled for a surgical port placement, a procedure can be performed under general or local anesthesia. I have an open contract with DCS for transliterator services to assist with hearing and communication, but they informed me that they cannot be with me at the appointment. This is because Interventional Radiology is a separate unit in the hospital, and DCS allegedly is only contracted with the emergency department.

I had a surgery scheduled for 3:00 pm. I was fasting, spoke to the anesthesiologist the day before, had surgical clearance, and arrived to admissions at 2:00 pm.

The surgeon refused to perform the procedure and spend 5.5 hours trying to figure out how to detangle himself from his ignorance and prejudice. 

6:23 pm “left patient in room 41 with security”

At the end of the working day, they powered off the lights, evacuated the building, and called their hospital security to remove me from the hospital premises. The UC San Diego Thornton hospital police handcuffed me and dragged me out to the curb with a wheelchair.

[img 7939 47:09 video captions are here]

March 10, 2020 UC San Diego police department dragged me with handcuffs and a wheelchair to the curb of the hospital building. They demanded that I “keep walking” and “don’t stop or we will put you in jail” and “we are following you.” I had no battery charge left on my phone and could not call a cab. After walking for 2 hours, I arrived to a bright light in the sea of dark. I did not have my cane and am blind in the dark. The light was blue, and it was a security intercom in the basement of a mall.

this discharge was actually entered into the e-sign database as "printed" on March 11, 2020 at 8:20 pm, the day after the discharge.
UCSD surgery "discharge" claims I was discharged from La Jolla Interventional Radiology, admitting provider Gerard M. Rivera-Sanfeliz, MD, referred by Azam Shamani MD

Phone calls and email consultations with California DMV Traffic lawyers – March 16, 2021

Phone calls and email consultations with California DMV Traffic lawyers – March 16, 2021 they either refused to take my case because there was no criminal court involved, or because medical suspensions imply that you’re too poor to pay for them.

Vikas Bajaj

San Diego, CA Traffic Tickets Attorney with 20 years of experience

David M. Boertje Esq.

(888) 476-0901

501 W Broadway

#800

San Diego, CA 92101

Referred to:

Sean F. Leslie, Attorney at Law

Spoke to Diana

  • We need to find out first, 
  • Run your situation to see i
  • Don’t need license

Just will explain the situation to attorney leslie and he will get in touch with via email.

Bobby Shamuilian 

(888) 965-4055

  • need a civil attorney who could fight for you
  • We do criminal, i think you need to do (traffic violation) that don’t involve due process 
  • Lawfirm that deal with medical examinations with the dmv. 
  • They fabricated the medical 
  • Medical law attorney – DMV 
  • Medical suspension lawyer (but they refuse cases because assuming we’re penniless “yeah, sigh”)
  • /hung up ‘good luck

David Salvin, serve clients of all ages and throughout California, who have a suspended or revoked California driver license allegedly due to lack of skill or medical conditions 

Emailed davidsalvinesq@gmail.com 

and l/m 1-800-363-7153

click to read his response and advice

Rob, owner

Oops, lawyer-Rob who owns the California Driver’s Advocates law firm (Dmv-defenders.com) says that he doesn’t want to be “abused” when he asked if I am high functioning. Who is malfunctioning now, Rob?
Please enjoy leaving messages on 1-888-281-5244 and share what you said below 🙂
#dmv

For every murder, there are 3 suicides.

Deaths on the news are fixated on murders. Suicide is rarely mentioned on broadcast television. Why is the CDC reporting on deaths as an unintentional injury, if not to hide a national truth about suicide? Nearly 50,000 people died by suicide in 2018. One person dies by suicide every five hours in New York State.

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Facts from the Centers for Disease Control and Prevention (CDC)

Over the past 20 years, infant mortality still ranked as the leading cause of death in the United States. I reviewed the data because I was curious about the overwhelming rates of unintentional injuries. 

When ordered by age group, within the 15–24 years old group, Homicide and Suicide are their leading cause of death. That triples in the 25–44 age group. However, in the 45–64 age group, suicide is no longer the leading cause of death, and is nestled between cerebrovascular diseases and septicemia. 

If you knew someone in their 40’s, 50’s or 60’s who died from a brain or heart disease, or a basic blood infection called sepsis, then you also know someone else who has died from suicide. 

If your relative died before they turned 45, or even in their late 20’s, then there is a significantly greater chance that they died from suicide, and not from diabetes or cancer.   

If your childhood friend has died when in their teens or as a young adult, it was highly likely by suicide and not birth deffects, a flu, or pneumonia. 

The media portrays homicides as tragic murders. Suicides are rarely discussed. The prevailing attitude is that discussion may lead to ideation. If you see it in the news, you might become susceptible to contemplating it. 

Psychologists know that media discussions do not cause suicides. In fact, hotlines and social media supports are the only known factor in decreasing suicides. Let’s discuss. 

Realistically, when I see advertisements for new pharmaceutical drugs, I don’t always ask my doctor if that drug is “right” for me. In fact, I avoid newly marketed drugs because of the FDA’s controversial non-mandatory reporting policies. Once a drug or medical device is approved, the FDA does not require any adverse outcomes, side effects, injuries or deaths to be reported. Doctors and citizens may report anonymously and only if they can find the proper forms on the website, and use the right language to prompt an investigation. 

This is why you see so many law firms soliciting hernia mesh injured patients to join class-action suits, because the mesh material has never been tested for human implantation before bringing it to market. If a patient complains about pains and symptoms, a doctor’s default reference is the approval, which represents ‘but it is safe’. 

The data are based on death certificate information compiled by the CDC.

If you had to report to the CDC about your loved one’s death, how would you describe it? If you opted to inform the FDA about drugs and treatments that did in fact not cure your loved one, but killed them, what language would you use? 

Typical Resources are:

  1. Call the National Suicide Prevention Lifeline (Lifeline) at 1-800-273-TALK (8255)
  2. text the Crisis Text Line (text HELLO to 741741). 
  3. Both services are free and available 24 hours a day, seven days a week. 
  4. The deaf and hard of hearing can contact the Lifeline via TTY at 1-800-799-4889

I propose free and public discussion online to end the stigma, misinformation, and promote support that is proven to help.

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Communication Support 2021-2025 Legislative Budget Proposal

In 2016, a group of #actuallyautistic professionals collaborated. Together, we authored and introduced 5 bills in the State of New York. Our Autism Action 2016 proposal resulted in the bipartisan passing of ACCES-VR (A.5141) communication support; Autism Spectrum Disorder Advisory Board (A.8635); Autism Home Loan Program (A.8696); A Communication & Technology Bill of Rights (A.8708); Autism I.D. Card (A.8389).

BIPARTISAN friendly legislation

Happening Now

During COVID19, our advocacy expanded to implementing the ADA requirement for Effective Communication to be provided by default in each state. This federal law is meant to accommodate Americans who have vision, hearing, or speech disabilities (“communication disabilities”) and use different ways to communicate. However, effective communication for autistic people may require closed captioning, and or time to communicate with someone who uses a communication board or device. Most affected are autistic adults who require communication support to access county benefits, state agency supports, medical care, education and employment.

If communication support is implemented, a law enforcement officer would be able to conference-call a specialist when they encounter an autistic person. The same default response should be applied to a client who is applying for benefits, is asking for accommodations from their boss or university, and a person who needs to engage with the DMV.

What is Communication Support?

1 — If a state employee accommodates the need for effective communication, they are also violating state law when they replicate the standards of the profession for speech, language, and hearing pathologist.

2 — Only a speech therapist is trained in social pragmatic language disorders as part of their mandatory degree requirements, and their overseeing body has already provisioned telehealth for shelter-in-place during COVID19.

Follow out hashtag #communicationsupport on FaceBook and social media to learn about our progress and respond to Calls for Action. To volunteer, please contact info at our doogri.org address.

Click here to follow actions taken in each state, and follow #communicationsupport https://www.facebook.com/hashtag/communicationsupport on FaceBook for calls to action.

Brainosaurus Tool for Conquering Distractions, by choice

[Live video on FB]

How can a child:parent or student:teacher have a mutual agreement for respecting each other’s choices? What if distractions feel real a person, and they’re being stopped to deal with it?

Did professionals label it ADHD, ADD, ASD, OCD, ODD, and any other conduct disorder pertaining to distractibility? I challenge the notion of what a distraction is, and why it isn’t disordered.

Brainosaurus is an interesting result of an encounter that I had in a session today. We have a teenage student who is really ridiculously gifted. Perfect Pitch script, memorized photographically from every video and YouTube ever seen, and all characters voices being imitated perfectly. 

So, he has an elaborate library in his mind. Such a person has the ability to catalog and take inventory of comparisons without choosing. We were having a conversation today and there was an announcement that those were wild turkeys, or flying turkeys, and I paused because it was being dismissed in the moment by the caregiver, because it wasn’t recognized for what it was. So we paused to say what about the flying turkeys. 

What we found out was that he is sitting across the window of the house, and in a nanosecond, a bird flew by, and his brain was able to catalog it. He later said that he was comparing and contrasting by size, and wingspan. I said, “why isn’t it Canadian geese?” He said, “because Canadian geese are smaller, and well, it’s a turkey because turkeys have a wider, bigger wings than Birds”.

So there I had my answer. He’s doing these quick analyses of this environment and we don’t get to decide whether we silence that or whether we tell him to not pay attention. Because he has those gifts, we incorporated this into a tool. First we say or inquire on whether the distraction of the bird flying through the window or if the distraction of the turkey was something that was his choice. Did he want that extra information in his brain or did it come into his brain without choosing?

He said it was not a choice. When it’s not a choice, we know that it is a real occurrence in the brain. If you hook a person up to an fMRI, the visual cortex in the brain would light up just like a person who’s having a hallucination. It’s real too.

Mark S. Cohen PhD.
Cohen, M. S., & Green, M. F. (1995). Where the voices come from: Imaging of schizophrenic auditory hallucinations. Society for Neuroscience21, 259.

It’s only real to them because it’s real on the tools we measure to check for reality. As long as Neuroscience refers to brain Imaging to say ‘that’s how we know if it’s real or not,’ then we have a right to assume that a distraction of ‘oh my goodness, she’s playing in this key or “Oh, that’s the same key as whatever.” 

That’s not a distraction. It’s a legitimate experience given a stimuli that was just provided. I gave him these sounds, or the musical notation had something in D Major and his brain catalog right away. Where else he’s heard that before? That’s a power tool and it’s a gift that we don’t want to suppress because then, it turns into oppression.

Credence

Today we talked about a hypothetical arrangement during geometry homework. We talked about first identifying all of these distractions, giving it credence, putting it on a pedestal and saying “it’s coming out of your mouth.

These noises, sounds you’re tackling, dinosaurs you’re slaying, and your re-enacting Jurassic Park, that’s fine.” Then, establishing clearly that it’s in the middle of geometry homework. Therefore we have to give it a name. So first we start with asking whose voice are you making?

Oh, it’s Al from x. okay.

Is it Al from a movie, or Al from a YouTube? 

So it’s Al from the “manners” YouTube. He’s doing imitation. Okay. 

Now we have sorted out that it’s a character. We never call this scripting, which is a stereotype about stimming that is seen as a sign of not listening, not paying attention, or ignoring others. 

We know that it’s a character, and we know that it’s a voice, and it’s being re-enacted and it’s happening at the same time that the expectation is to have this class, this homework, this assignment.

Slay or Get Slayed

One of the things we did was thinking about going into a karate class. So tomorrow you’re going to start karate. We’re going to take you to the class and the teacher is giving an instruction. The teacher says, “everyone, put your arm up in defense position.” And if you don’t lift your arm, we don’t want to call it ‘not paying attention’, but if you have distractions or you’re looking at everybody and you’re like “wow, that’s like the scene from Karate Kid…Well, they’re all wearing the same white, and well, those belts are different colors.” So those observations are legitimate. 

They’re valid. They are also taking over your brain and you have a choice to say oh am I going to slay or play with those, or am I going to slay those? What are the consequences of playing with them? If you play with your distractions, which is perfectly fine legal, go for it. Have a wonderful day.” I never tell people when I’m playing with my distractions because I enjoy my life like that bumper sticker, “I enjoy every minute of it.” So thinking about what it means to have a distraction that is real to you and meaningless to somebody else.

If you’re in a karate class and you don’t get your arm up, and the next instruction to the classes is to strike your partner,  you’re going to get hit.

The idea of addressing it or consciously making a decision is, “what I’m going to do with my distraction? I’m going to play with it and risk getting hit, or am I going to put it in a box on the side so I can take it out and play with it when I’m ready, when I have the mental space for it, because right now, I have to do this homework.” 

The consequence this student described is The Prompt of the people who don’t give credence and address it as prods 

 you’re distracted

sit up 

sit down. 

Stop that 

stop moving 

straighten up your body. 

Look at the page.

Don’t look at them

…all of those. He said it’s breaking his brain.

He feels like he’s under attack by a terrible monster that’s just eating at him. His natural first response is a dinosaur attack. He goes into attack mode because of his self defense. We talked about the possibility that these distractions are in the brain. At this point, we became aware that the brain is now involved, which implies choice, autonomy and of course, self determination.

Since the brain is involved, we decided to make a picture of the brain. For my drawing, I thought his brain looked like a brainosaurus. He did not like it when I made the Spitting Fire, so I said, oh, oh, are you sloth-asuras? Does your brain work like a sloth, and do you only eat grass? Then we agreed that yes, we have power tools gifted people are privileged with these strengths. 

Brainosaurus Tool

We have a powerful Brainosaurus, and we yearn for a nonverbal way for the prompts to stop. We don’t use prods because we don’t want to suppress anybody’s choice to interact with their own world,and their own brains, and their own thoughts, ideas, depictions, and sounds that come by association in this rapid calculation of this world by association.

That is really the beautiful wonders of the autistic brain. What we wanted to do was give them a tool and say “every time there is an interaction with your distraction, if you are making the sound of Alvin, or you’re re-enacting a scene of Jurassic Park, Mom is going to place a tiny little slash under Brainosaurus. You don’t have to look at it. You can ignore it. You can let it go. So she’s making these bright pink slashes to mark a moment in time.

These slashes come without prompts. If they’re finished, completed, or interacted with,  the student or the child has a different color pen, and just turns them into checks. A real example in this case geometry homework, requires Brainosaurus. It requires your full powers. One of the power tools you have, is to choose what is motivating you more. Is it motivating you more to play with your thoughts, or is it motivating you more to avoid getting monster-slayed? Getting it done is what he wanted most of all, so this was a tool for him to help get to the other side.

This is different from behaviorism because we’re not using a behavior against himself. We’re not using the expression of any scenery that he has in his brain as a behavior problem. We’re not seeing it as a distraction because of something he wants to avoid. We’re literally seeing it as a sign of giftedness and this strength-based approach looks at what the student has to offer.  

Look at the capacity of all this cataloguing the capacity of all this calculation replication with perfection being able to pull these things out of his head at any given time, and it’s just magical to see his capacities. Why not take a sliver of those strengths and stick it somewhere so that we can find these goals? This makes it possible to live in a world where we can use our power tools to slay. We can’t actually make Mom stop telling us what to do. We can’t make the teacher stop telling us what to do. We might as well just have a little peace agreement and say, “you know what, I’ll put my arm up when it’s instructed so that I don’t get hit.”  Using his powers as a way to defend himself was deemed highly reasonable, and for this lucky student, moved his identity development up one notch. 

The individual who is asking for these tools is asking “I need to get to my goals and I don’t want blood on the floor.” Why is everything an argument? 

Rule number one, give credit to the expression put it out there. Give it a name and ask where it’s coming from. Identify the source and value it as a legitimate occurrence.

One of the distractions we have today was a walrus.

Is there a real walrus right now in your living room or is it in a movie that’s in your head right now? 

Oh, it’s in the movie. 

Oh, okay. So that’s fine. No difference. 

We didn’t ask because we want to discriminate and say oh it’s only in your head. It’s not a real danger. But if your sister is taking an online class right now and she says ‘hold on teacher, I have to go kill a walrus’. Is she being responsible or irresponsible?

Well, in reality, I have a walrus to kill, and I have to take care of my life. But at the same time, the prod is to sit still because we’re having class now. Those are the prompts that break a person’s brain because they’re stuck in between a walrus that’s real to them and a teacher that’s online, who is karate chopping his brain with Pah, Pah, Pah! In between these competing worlds is where the autistic sits, at a very precarious angle of a demolishing self esteem.   

Please read: AUTISTIC ABA SURVIVORS GROW INTO SOUL-CRUSHED TEENAGERS: TRACING THE ROOTS OF THE DAMAGE

Autistic Cyberbullying Sonata No. 2

I have recently dealt with some 🐸 trolls who insisted on LinkedIn that I am a menace 🐲 for asking politely that they consider identity-first labels, 👉 given that they were presenting on a professional network as autistic advocates. I also was cyberbullied 👺 by an autistic therapist who set up a FaceBook group for other therapists to have a place to discuss 🧠 neurodiversity. This particular group admin attempted to ⚔️ police me by insisting that I cannot ☣️ call myself a psychologist. When he couldn’t find any actual source ✅ for his rant, and one of the other 1,500 members commented that it’s very specific and not 🎶 general law that he was holding me to, he then slandered me 🐕💩🎱 in every comment I posted, warning and cautioning people that I am a danger to them because I am misidentifying 😂 and misrepresenting 😂.
/theme

What My White Coat Means to Me | School of Medicine

(Make sure you’ve also read my previous Sonata of autistics who cyberbully and how Karma crushes that)

/development
I’m been searching for the strangest laws today and couldn’t find anything conclusive. I’m been recently wondering about the use of a white lab coat during online sessions, given the uniform is exclusive for contact with chemicals and biowaste. In my search, I found out that the regulations by state are only specific to regulating who must show up with these uniforms, such as lab students, and are worn by students and teachers of most public primary schools as a daily uniform in countries like Argentina and Spain, while also in the private schools in Columbia. In the United States, lab coats are presumptuously associated with medicine.
/end tangent of cope

The ubiquitous white uniform of Argentine school children is a national symbol of learning.


/modulation
If anyone wants to scratch my nose again for calling myself a psychologist, I will use my new superpowers acquired in the course (link to Sonata No. 1) of the cyberbullying, which is essentially (to me, at least) a powerful and free vantage point to collect research data to invigorate my learning opportunities. I will always be a student before I am a scholar.
/end processing

/recapitulation
Here are my final thoughts about what I am and what I am not. If you earn a doctorate in meteorology, are you allowed to call yourself a meteorologist? If I studied research methods until I was ready to publish my dissertation research that tested a brand new, novel and timely, Able Grounded Phenomenology (AGP): Toward an Ethical and Humane Model for Non-Autistic Researchers Conducting Autism Research, then must I resign to autism as a special interest and exclude my autisticness? I’m not more special than you because I am autistic’er, or because you use rank in an autism medical model as your baseline for measuring the worth of your letters after your name. I’m different than you because I am an autistic psychologist specializing in autism research.

click for accessible PDF

/coda
The matter stands on its merit. If you think I should not be allowed to identify as an autistic psychologist, because you assumed I said “clinical”, and you assumed I claimed to be a “clinician” and you decided that you are the whitesplainer’s police force to know your worth only by stepping on your peers, using NT styled rank for ego inflation, then my recommendation to you is that you should consider waltzing into the silo of white man’s academia, and use their standards to continue to learn how to beat them at their game. Until you don’t join me in this comedy, I will have to find better satire material to keep myself entertained.
/encore

Eye Tracking Study on Rapid Prompting Method (RPM) Users

Many piano students who are nonspeaking autistic (or for other neurological reasons), also have dyspraxia. I have dyspraxia (and I’m autistic). Dyspraxia is a neurological motor movement disorder. It is difficult to sustain the arm in playing position, and it is very difficult to play the notes as you want them. Just because you know the note, does not mean you can ‘prove’ that you are note-reading, due to the brain/body disconnect.

Thank you Vikram K. Jaswal, Allison Wayne, and Hudson Golino, for this landmark Eye Tracking study. “Users not only looked at and pointed to letters quickly and accurately even in lengthy responses, but patterns in their response times and visual fixations revealed planning and production processes suggesting that they were conveying their own thoughts.”

figure1

Participants wore eye-tracking glasses that provided a video record of their field of view and their right eye’s movements.

How much more research do we need to make communication accessible to all people? The continued bashing of facilitated communicated (FC) and Rapid Prompting Method (RPM) is ableist, classist, and absolute discrimination. It is a gross misjustice of power from the Ivory tower, heralded by the white men promoting #abatherapy. If we allow autistics to communicate their own thoughts, we will not be able to force them to comply with #aba (this is their panic).

If there is any single researcher who challenges the purposeful authorship of nonspeaking autistics who utilize AACs, please contact me. We will SILENCE those who have silenced us for so many years. Down with the patriarchy.

As educators, we must know that motor movement differences are at the core of productivity. Does your student’s joints collapse, do they have trouble with fingers twitching, arms being hyperextended, posture issues….and on and on? As pedagogues, it is incumbent upon us to find the most appropriate teaching modalities that supports the student in gaining confidence in their productivity.

The Perfect Perch™ -How can a simple plastic device help a person with dyspraxia or motor planning issues? Our current clinical trial includes autistic subjects, as well as cerebral palsy or post-stroke paralysis.

Imagine being nonspeaking, autistic, unable to toilet independently because your hands can’t grip your pants. Imagine sitting in a piano lesson where the teacher puts stickers everywhere, thinking that the student is simply not able to ‘cognitively’ process the lesson, because heck, they’re not showing you the ‘proof’. With this population, the proof is not in the pudding. The proof is in your pedagogy. I have been asked many times, “but why does perfect pitch matter?”. It matters because if you are familiar with my research, you will know that 97% of autistic people have perfect pitch (82% other disabilities, 52% of neurotypicals). With that said, having perfect pitch (you’re born with it) means that we MUST target what *is* intact, in order to activate purposeful motor movements.

If you have questions about this technique, please ask! I have somehow become a leading expert in the science of neuroplasticity, motor movement disorder, hand eye coordination, visual tracking anomalies, and resuntently, a pedagogy scientist. Let’s talk about why nonspeaking people should be considered for piano lessons just like everyone else.

“Why autistics love teleconferencing, and why professionals should make the switch

Autistics have been online for decades.

Why autistics love teleconferencing, and why professionals should make the switch. Register for this 1:1 Webinar with Dr. Henny Kupferstein (90 minutes)
Dr. Henny Kupferstein: “Why autistics love teleconferencing, and why professionals should make the switch.”

Why autistics love teleconferencing, and why professionals should make the switch.

  1. Accommodating sensory needs of the student – client
  2. Technology and device support for both parties
  3. Time management, planning, and note-taking
  4. Maintaining professional standards
  5. Boundaries for interacting with people in their homes
  6. Providing multiple means of instruction and multiple means of assessment
  7. Incorporating AAC communication methods during session
  8. Research on innate abilities supporting the presumption of competence.
  9. How to stand out on a web-conference.

👉 Click here for payment and scheduling page
no-show and short-notice cancellations are not refundable. 

Supplemental Reading:

Research Study: “I KNOW SOMEBODY: Evaluating the Autistic Cultural Impact of Trauma Exposure to Suicide”

Key Information for my Study “I KNOW SOMEBODY: Evaluating the Autistic Cultural Impact of Trauma Exposure to Suicide”

Sad young man looking through the window

Have you experienced exposure to suicide or suicidality?

We are looking for adults who are culturally situated within autistic identity to participate in an online study. The purpose of this study is to explore the language used in a questionnaire narrative describing a secondhand experience. This research study aims to explore retribution and feelings of making up for a loss. The target participant is an adult who is culturally situated within autistic identity, and has experienced another autistic person who attempted, or completed, a suicidal experience. Participants will answer 4 short questions about their interpretation of experiencing suicide by 2nd degree.

  • The study takes around 10 to 15 minutes to complete.
  • You will not be paid for participating.

PARTICIPATE NOW
Choose the link below to begin.


This study was approved by Advarra IRB (Pro00043529)

Ban ABA Initiative

Autistic psychologist Henny Kupferstein, Ph.D. is taking names to push the #federal #banABA of #ABAtherapy in the United States.

Image may contain: 1 person, text

We are a 👨‍🔬👨‍💼👩‍🔧👩‍🎤🕵️‍♀️🧕👮‍♀️👩‍⚕️ rapidly growing movement ✌️ established after watching #cripcamp on #netflix.

💪 Join our private FB Group for ongoing discussion https://www.facebook.com/groups/federalbanaba

👂 Follow 👉Henny Kupferstein, Ph.D. for updates with the #BANaba hashtag 👈

If you have been cyberbullied by an autistic person, please join the Asking Dr. Henny 🏋🏻‍♀️ re: Cyberbullying Autistics facebook group.

To report inequality, please submit the Person or Entity information to our Single-Entry form. Your information must be obtained legally and from public domain.

click-here-to-get-started-logic-board-repair-service-new-york-computer-help  | New York Computer Help
Click to launch the single-entry database form

Who is a Token? A person from underrepresented groups recruited to give the appearance of equality within a workspace. Dr. Henny Kupferstein describes tokenism (Read top-10 flags) as a being invited to a panel discussion at a professional conference, but is asked not to share her autism research, and to contribute exclusively on the basis of her autisticness.

Who is an apologists? A person or entity who will reassert in ever more emphatic and defensive language what most of their audience already takes on faith, by framing the issue as a choice between anecdotes and hard science. An apologist makes futile attempts to fill a psychological void, to make up for genuine needs that are not being met. Guilt, shame, or remorse are feelings that are veiled behind apologist rhetoric.

Who is a Behaviorist? The application of radical behaviorism—known as applied behavior analysis (#ABAtherapy)—is used in a variety of contexts, including applied animal behavior, organizational behavior management, and treatment of mental disorders. Autistic people are injured by forced compliance when the treatment is for a condition that they do not see as disordered. A behaviorist uses language that implies a correction or modification of a trait that they have deemed as maladaptive to the human norm. The behaviorist will entice the buy-in of the parent to choose these treatments by naming the goals that are otherwise achieved by non-autistics by merit of their natural growth and development (i.e. surely you want him to go potty, and surely you want him to speak one day, and graduate high-school?).

Who is an autism hero? A parent who calls themselves a warrior, and claims to be combatting, conquering, winning at a war they declared. This war on autism stems from pandemic rhetoric, ‘this is autism’ campaign about violence and aggression, and anti-vaxers who are convinced their child was injured. Aggression and self-harm is not part of the medical autism diagnosis, and meets the criteria of severe PTSD. A child who develops their existential identity in their formative years will be heavily influenced by compliance training, ‘special’ barriers to equal opportunities at education, and societal influence of being surrounded by their deficits in their everyday world. An autism hero is a person who announces their struggles with their daily battles of combating their child’s will and compromising the autistic’s progress toward moral identity development while under duress.

Bump Dots, So Flappy!

My bump dots arrived and I’m jazzed that my confidence around my independent living skills have soared. Many autistic people have a hearing impairment such as central auditory processing disorder (CAPD), hyperacusis, and misophonia. Autistic people also have vision impairments ranging from cortical vision impairment (CVI), simultanagnosia, double vision, and distortions. Lastly, the autistic motor movement impairments are neurological, but not every autistic person is properly assessed for dyspraxia or dystonia. Rather, they end up with a diagnosis of low muscle tone, poor fine motor skills, and motor planning problems. I am one of the rare lucky ones to also have Balint Syndrome, and I know the odds. I’m a spectacular zebra unicorn to western medicine practitioners. 

 

Mixed Bump Dots, Mixed Sizes and Colors - 80 Count

Mixed Bump Dots, Mixed Sizes and Colors – 80 Count

Bump Dots, Yay!

Mixed Bump Dots are ideal for low vision, and autistic sensory deprivation and processing disorders. These Bump Dots allow a variety of uses from tactile marking of everyday items such as computer keyboards, telephone keypads, multiple switches, and kitchenware. Low vision labelers are perfect for homes or offices with both blind and sighted people. Use the clear dots so the view of keypad displays are not obscured. I got my Mixed Bump Dots, Mixed Sizes and Colors – 80 Count all the way from the Amazon.

bump dots on my microwave keypad

bump dots on my microwave keypad – click to enlarge and zoom in

Matching Bump Dot Selections to Tasks Requirements

  • I used a clear medium sized dot to place on the Power button on the microwave so others can also find it. The dot is not only clear and shows the text it sits on, but it also somehow magnifies!
  • I used a small red dot on the Start button on the bottom right. This was tricky because I didn’t want to cover the text on the button, but the button requires the dot to be squarely in the center in order to word as a pressing function.
  • I used a medium clear dot on the number 2 of the number pad. It magnifies and is perfect for sharing the microwave with sighted people.

Motor Planning

In this arrangement, I first find the power dot with my index finger, and then find the #2 dot with my middle finger. I can then imagine the rest of the numbers relative to the 2. Finally, I scoot down to the start button with my pinkie, and my job is done. My hand stays in the exact position on the keyboard throughout the task, and builds motor memory for the future.

What are you using bump dots for? Please share!

Stanley Krippner’s lawsuit against Saybrook University and TCS Education

Stanley Krippner (born October 4, 1932) is an American psychologist, parapsychologist, and an former executive faculty member and Professor of Psychology at Saybrook University in Pasadena, California. Krippner was director of the Kent State University Child Study Center (of Kent, Ohio), and director of the Maimonides Medical Center Dream Research Laboratory (of Brooklyn, New York).

DR. STANLEY KRIPPNER WAS FIRED AT AGE 87 AFTER 42 YEARS OF SERVICE TO THE INSTITUTION, TWO WEEKS BEFORE EMERITUS STATUS

In Stanley Krippner PhD against Nathan LongSaybrook University and TCS Education Services: ‘Complaint-Wrongful Termination Filed’ Case number RG19035758 was filed in the Alameda County Superior Court.

Henny Kupferstein with Dr. Stanley Krippner

Henny Kupferstein with Dr. Stanley Krippner

Information on the $90 million dollar lawsuit:

 

Why Caregivers Discontinue Applied Behavior Analysis (ABA) and Choose Communication-Based Autism Interventions

Figure 1: Percentage of PTSS by autism intervention

Percentage of PTSS by Autism Intervention: The x-axis represents the interventions per bar column, and containing values of PTSS instances per intervention group. The y-axis represents the scaled incidence per group, with 42% in the ABA group containing the highest relative prevalence. Those who received no intervention at all (“none”) experienced the lowest prevalence of PTSS (17%), compared to the ABA group. This difference in proportion was the most statistically significant between all groups, χ2(1)= 22.87, p <.001.

The objective of this study was to explore why autistic people and their caregivers chose interventions other than Applied Behavior Analysis (ABA), and how their decision impacts them over their lifespan. The focus group was divided into those who pursued augmentative and alternative communication (AACs) based supports, those who received ABA, those who selected other interventions, and those who received no intervention at all. The reported posttraumatic stress symptoms (PTSS) of ABA recipients were compared to non-ABA recipients in order to evaluate the long-term impacts of all intervention types. Using a mixed-method thematic analysis, optional comments submitted alongside a quantitative online survey were reviewed for emergent themes. These comments augmented the survey Likert scores with a qualitative impression of the diverse intervention-related attitudes among participants. Investigating the lived experiences of autism intervention recipients illuminated the scope of the long term impacts of each intervention that was chosen. Overall, autistics who received no intervention fared best, reporting the least severe posttraumatic stress symptoms. These findings may inform the potential redesign of autism interventions, and posttraumatic stress symptom assessments, based on the firsthand reported experiences and opinions of autistics.

Keywords: Autism, intervention, therapy, Applied Behaviour Analysis, communication, support

Also Read Research Study: Correlation between PTSD and ABA: Parents tend to continue ABA despite lack of satisfaction with the intervention. Evidence of Increased PTSD Symptoms in Autistics Exposed to Applied Behavior Analysis Kupferstein, H. (2018) Evidence of Increased PTSD Symptoms in Autistics Exposed to Applied Behavior Analysis. Advances in Autism, 1(1), 19-29. DOI :10.1108/AIA-08-2017-0016 [PDF]

APA Citation:

Kupferstein, H. (2019) Why caregivers discontinue applied behavior analysis (ABA) and choose communication-based autism interventions. Advances in Autism. doi: 10.1108/AIA-02-2019-0004

Help Oppose Bill A08711 DMV Autism Mark on NY Driver’s License 

Henny Kupferstein, Ph.D. Candidate, Psychology Rebecca Botta-Zalucki, LMSW

URGENT ACTION: Contact your assembly members and help us oppose the “communication impairment” bill to prevent a DMV autism mark on the driver’s license of autistic adults in New York. We need more sponsors in the state senate who are interested in autism legislation to oppose legislation that does not enhance the quality of life of autistic people in New York.

First, read our letter in opposition submitted November 8, 2019 to Assembly Member Heastie, Speaker. Distribute to friends, family, and professionals who might consider writing a letter in support of our opposition.

[Follow Legislative Action on this bill]
[Follow advocacy on HennyK / FaceBook]

Here’s what else you can do:

  1. Contact your state assembly person and ask them to oppose this bill (list here)
  2. Ask if they are willing to write a letter in opposition of this bill.
  3. Share your personal anecdotes of how this bill affects you and/or your organization.
  4. Share this page on social media, with colleagues, friends, and family. We need the word to get out!

Step Up Your Advocacy Skills!

  1. Contact Carl E. Heastie NY Speaker of the Assembly, and ask him to oppose this bill which is now in the hands of the transportation committee.
  2. Contact the members of the Transportation committee (list here), and ask them to dismiss this bill.
  3. Contact Assemblyman Nader J. Sayegh and tell him why you oppose the bill that he introduced to the Assembly. 

Remember:

  • Share personal reasons as to why this bill is harmful.
  • Sign our letter in opposition.

My Autistic Fractals in the 4th Dimension of Consciousness

In UNIPAZ, Brasilia, I had the honor of presenting my lived experience to a class of transpersonal psychology students. In my presentation, I demonstrate how my eyes sees objects as conceptual fractals from within the 4th dimension of consciousness. You may notice some gaps in the talking. This video has been edited to remove the Portuguese translation provided in realtime by Alfredo. 

English transcription of presentation at UNIPAZ, Brazil:

Being in the United States diagnosed as autistic, provided me a really nice fancy package to understand my differences. But the more I understood myself, the more I was witnessing the trauma of those who did not have the privilege of this identity. As you are going through transformation in your education, you are experiencing an evolution of your own identity. That is a privilege that you now have, because you can choose this process. 

The autistic child is under identity threat all the time. They enter the world with genetic memory and skills that cannot be explained. I can explain it in language that is accessible to the mainstream. I made it my mission to become an academic student and to use theories of transpersonal psychology to explain what people cannot observe. When we say, “autistic people are deficient” in this, that, or that, we are using traditional metrics to put people into a box of comprehension. 

Hypothetically, if my eyeballs work differently than your eyeballs, this is what the world looks like to me. I’m looking outside the window at the tree. 

The nautilus is a mathematical shape. Where does it begin, and where does it end? So, just for aesthetic purposes, I will begin from the center, because I like my lines to be clean. 

So this is the traditional nautilus shape that you see if you’re interested in this stuff. The more you stare at it, the more distortions begin to take shape. Perhaps in the first second that you looked at it, it appeared one dimensional. I believe that the brain has a 3-second time-lapse of perception, and after 3 seconds, you may start noticing a second dimension. So after three seconds, you may notice a 2-dimensional shape.

The moment you have a third dimension, it becomes obvious because you now have to have a negotiation in your brain, if the nautilus shape begins at the tip, or the center. This negotiation is your fourth dimension. 

My eyes give me a perceptual sphere that begins in the 4th dimension, and then I have to do a negotiation to dissect the components. Here is my fourth dimension. My eyes see a grid on an axis, but I don’t see all of the boxes simultaneously.

Every three seconds, the boxes change—and I will show you. 

So perhaps in the first three seconds, I receive A3, A4, C3. Inside A3, A4, C3, I have to make a picture-puzzle, which is this. 

But I wait three seconds, and now I have this. 

So, this might look like abstract art, but my work is very deep and very meaningful. Because not only do I have the privilege of doing these negotiations, I also have the privilege of taking every cube, and going into the fractal of its meaning. So although you see the nautilus as a potential fractal, I perceive my world primarily as existing perceptually in the negotiation space of creativity, where I can hold the multitudes simultaneously and it becomes irrelevant on that material dimension. I say material because that is my baseline, because that is my normal, and in that beautiful place, it becomes irrelevant to me whether the nautilus begins in the middle or at the end. 

Therefore I challenge the traditional explanation of moving up or coming down, because I believe that autistic people have access to the potential of thoughts and concepts from the interstitial space, the space between the one and the one. It’s the space that is the beginning of everything in the future. 

So if you’re asking an autistic child in the classroom to do reading comprehension and he says “oh look it’s a beautiful bird,” then in the United States we say “you’re stupid, you have to go to the special class” and we rob the child of the opportunity to gather information in a setting that is considered normal. So the autistic child learns to derive pleasure from the paranormal.

I call this the party in my head and I only share it with people that feel safe to me because my worldview exists of objects which are also fractals which are also fractals, and fractal objects that have infinite possibilities of perception. I can do that with observing children in a classroom and knowing immediately the depth and breadth of their existence. I can do this by reading multiple research papers and finding a connection. When I do data analysis it feels to me like a synthesis of deeply meaningful symbols.

Many researchers like to share their work but they don’t derive pleasure from doing the mundane mathematical work. So I want more people to be envious of the pleasurable experiences that I have and to eliminate the stigma of difference by recognizing that the child who has a revelation in his creativity, this is the child who is not having deficiencies that can be defined by the non-autistic person. It’s only the autistic child himself who can describe how he perceives his deficiencies.

The privilege I have with transpersonal psychology is to use scientific terms to provide meaning and to make meaning of my existence. But I don’t intend for my work or my research, I don’t intend to colonize the experience of other autistic people with my worldview. If there’s somebody who wants to identify with deficiency, I can accept that. if you want to say that you have a sister who suffers from lesbianism, that’s okay. If you want to say this is a person living with autism, that’s okay. 

For me to have an identity to feel like something normal, I have to be allowed to say I am autistic. I have been able to feel like my experience is indigenous to me, so all my work that I do takes the position of liberating my experience from the medical pathology paradigm and moving through it, not up or down to it, so that other people can make meaning of my experience. 

So I want to invite you as you are encountering people who are severely other than you, remember that they come at you from the fourth dimension and in  your social encounter you have an opportunity to play creatively and create something new together. And that is called transcendence.

Thank you so much.


You may notice some gaps in the talking. This video has been edited to remove the Portuguese translation provided in realtime by Alfredo. 

 

 

Kodi Lee Wins, Parents Asking About Piano Lessons for Autistic Students

He’s got perfect pitch. He is 22, and sings with a rasp and vibrato through that last high note. Kodi’s piano accompaniment shows off technical precision that stole my heart. 

Kodi Lee just won the 2019 America's Got Talent competition

Kodi Lee won the 2019 America’s Got Talent competition

He’s also blind and autistic, and Kodi Lee just won the 2019 America’s Got Talent competition, and I WAS THERE IN HOLLYWOOD TO SEE IT! #heckyeah

Henny Kupferstein with Kodi Lee’s piano teacher YiYi Ku, at America’s Got Talent finals

Autistic people have talent, and nearly all autistic people have perfect pitch (read my research study). Autistic musical savants like myself want to be recognized for musical talent, the practice time we devote to showcasing perfection, and the music theory training that helps us fit in to a group of quality musicians, because we are usually the strongest one in the room

Kodi’s win made parents and teachers think about autistic talent, and now everyone wants piano lessons for their autistic child. 

Autistic's Got Talent (fake pose)

All my piano students are autistic. Every autistic piano student should have equal access to the arts, whether they are nonverbal, blind, or poor motor skills. We can all do it, because we have the gift. But do all piano teachers have the gift to teach? 

Current research is critical to work with a demographic that is misunderstood by mainstream education. Those who put together homegrown curriculum and color-basedprograms are truly demonstrating incompetent teaching skills. Teaching down to the diagnosis is a form of discrimination, and parents need to learn how to recognize a poor teacher-student relationship.

How to Know if Your Autistic Child’s Piano Teacher Is Trained for the Job

  1. The teacher will begin the lessons even if the student does not have an appropriate instrument in their home
  2. The teacher plays all assignments for the student, and then teaches by rote
  3. The teacher assigns scales and flashcard work for home practice
  4. The teacher does not hold a 4-year music degree from a nationally accredited institution.
  5. The teacher focuses on correcting posture and finger shape more times than the student is playing during the lesson.
  6. The teacher’s rates are below market rate for professional services in your region
  7. The teacher refuses to teach online (skype/facetime) to accommodate the student
  8. The teacher uses “student with autism” or “definitely has a spectrum disorder” language without regard for the prevailing preference of autistic people to be called primarily “autistic”
  9. The teacher talks slow, loud, and with vocabulary that feels infantilizing.
  10. The teacher is not autistic, and therefore, cannot serve as a positive role model. 

Thankfully, I’ve done the work for you! 

Henny Kupferstein posing with a fake Hollywood star

Piano teachers looking for an evidence-based piano pedagogy, read about my professional training program for LDME™ Training – Developmental Music Education™ Training  to  become a licensed developmental music educator®

Research Study about autism and perfect pitch: Non-Verbal Paradigm for Assessing Individuals for Absolute Pitch Kupferstein, H., & Walsh, B. J. (2016). Non-Verbal Paradigm for Assessing Individuals for Absolute Pitch. World Futures, 72(7-8), 390-405. [PDF]

Parents who want to learn more about piano lessons for autistic and nonverbal students using a method that guarantees these goals through neuroplastic changes, BOOK A CONSULT and let’s set a time to talk.

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Behaviorists Claim Rebirthing and Crisis-Debriefing Interventions Linked to PTSD and Deaths

Scott Lilienfeld is a professor of psychology at Emory University in Atlanta, Georgia. He is also  best known to advocate for behavior modification interventions for autistic children. Lilienfeld promotes Applied Behavior Analysis (ABA) and collaborates with behaviorists to insist that anything other than ABA is pseudoscience.

The American Speech-Language-Hearing Association (ASHA) published a position statement urging speech therapists to avoid promoting RPM or FC, because it would violate the ethical standards of forcing a child to use speech, rather than encouraging them to communicate using augmentative devices. Their position is supported by Lilienfeld’s campaign to eradicate access to non-speaking autistic’s communication style. What is most concerning is the promotion of ABA while knowing from current research that Autistics who are exposed to ABA are 86% more likely to meet the PTSD criteria than autistics who were not exposed to ABA. Any autistic person who is systematically silenced when communication supports are withheld, and then forced into a behavior modification program, will suffer untold trauma to their identity as a human being.

Stop listening to Lilienfeld and his colleagues, because they unearth medieval research about therapies linked to the refrigerator mother theory, and hysteria, to illustrate what pseudoscience looks like. A behaviorists who cries foul to these statistics, and uses his argument to fuel misinformation to unsuspecting parents, is a psychologist who is rendered incapable of measuring the impact of his own professional behavior onto autistic people as a whole.

Rebirthing is a technique based on really questionable psychological claims, that a lot of current psychological problems stem from the early trauma of birth, and have to be, in essence, repeated by recapitulating that trauma. This is a technique that has actually led to the deaths of several children who have been smothered to death during rebirthing sessions.

Crisis debriefing is a technique that is still properly used in the wake of trauma in a well-intentioned effort to try to ward off post-traumatic stress reactions. Crisis debriefing is a technique that is still awarded continuing education credit by the American Psychological Association even though it has actually been found in two to three well-controlled studies to increase the risk of post-traumatic symptoms among trauma exposed individuals.

Lilienfeld, S. (Academic). (2008). Scott Lillenfeld: “science and pseudoscience in clinical psychology: yesterday and today”[Streaming video]. Retrieved from SAGE Video.

Pigeons and Dog Training Inspired Classical Conditioning for Behavior Modification of Autistics

Have you ever wondered how laboratory pigeons and dog training methods moved out from the lab and  into schools and homes of autistic children? Applied Behavior Analysis (ABA) is the most frequently recommended intervention for newly diagnosed autistic children. At 40 hours of 1:1 intense, repetitive, and rote conditioning by way of rewards and punishments, the behavior of the autistic child is expected to be shaped toward normalization.

Before you opt to normalize your autistic child or client, you must first determine that their behavior is aberrant, undesirable, and in need of normalization. This is how ABA therapists can attract unsuspecting parents to putting their child into a virtual animal training lab to appease those who deemed the child as abnormal. The lifelong trauma of being forced and reinforced into a behavior structure that is against how you were born to function has been documented. Autistics who are exposed to ABA are 86% more likely to meet the PTSD criteria than autistics who were not exposed to ABA.

Professor Lewis P. Lipsitt discusses classical conditioning and child development (transcript below).

Freud said, it seems that our entire cyclical activity is bent on procuring pleasure and avoiding pain, and that it is automatically regulated by pleasure principle. He said that 1920.

There is Pavlov, the other giant in the field, who indeed, as particular as he was in studying classical conditioning, as it came to be called, as precisely scientific as he was in all of that work, coming up with that book that he wrote that contained all of the laws of conditioning–delayed conditioning, and trace conditioning, and all of that sort of thing– that book is just a compendium of important information that was true then, and it’s true now.

And he got into it sort of serendipitously.That’s a good term for those of you who are young folks to remember because serendipitous inferences, from what you may see, can influence an awful lot of what you do with your lives. I’m talking about your professional lives here mostly, but it has to do with your personal lives as well.

What happened was that the caretakers of the animals in Pavlov’s laboratory noticed that the dogs would begin–they had these fixtures in their mouths, in their cheeks, and they were collecting, because he was a physiologist. He wasn’t a psychologists. He was a physiologist doing work on the salivary glands and trying to find out how the salivary glands work. And the way in which he did was to have these– to collect the saliva under different stimulus conditions. And a caretaker came to him one day, it is said, and told him, you know Professor, those dogs are beginning to salivate an awful lot before I even  get into the laboratory to study them.And they salivate more and more and more the closer and closer I get to the cage where they are being kept.Well that was conditioning.I

n later terminology, one might have aid that those dogs were showing– are you ready for this– fractional anticipatory goal responses, classical conditioning, classically-conditioned, anticipatory, appetitive, learned responses.They were beginning to engage in the classically-conditioned response before the stimulus arrived.We all do that.We begin, long before we get to the door that we’re going to open, we begin to posture ourselves to reach the door in just the right way with our arm.We don’t just all of a sudden go and stand in front of the door and go like and open the door.There’s lots of pre-behavior behavior going on that leads up to it.That’s an important part of the stuff of learning.

And Skinner was one of the guys who knew all of this so, so well about the shaping of behavior. Skinner was noted, and it’s true for his work on schedules of reinforcement, and these very precise curves, cumulative curves, showing the way in which animals of different sorts behave under different schedules of reinforcement. But he was an expert shaper of behavior before he started studying the consequences of different schedules of reinforcement. He knew just when to administer the food.

And he trained other people to do it too.But every student that he ever had said, well, I could never get as good at it as he was in shaping the behavior of a pigeon. He knew went to provide the animal with the reinforcement that was going to move the animal onto the next step. It’s very important in education of children.

Lipsitt, L. P. (Academic). (2008). Lewis P. Lipsitt: “behavior kills, but developmental interventions work: psychology as the premier health science” [Streaming video]. Retrieved from SAGE Video.

Perception of Recovery Causes Autism Parent to Choose ABA Therapy

An autism parent’s stress level correlates with the perception of recovery. When a parent believes that their child looks normal, and therefore can be made to behave normally, then they are imagining a recovery. A parent of a child who looks developmentally different, will be more likely to expect normalization, and then focus the intervention on skills acquisition.

What does this say about Applied behavior Analysis (ABA) and the explicit focus on normalizing autistics by force, because of a parent’s shame?

The parents who have children diagnosed with autism are statistically significantly more stressed out than the parents who have a child with down syndrome. So there is something extra there. It’s not just the fact that they have developmental disability, it’s even more when you have a child with autism. And I think we can guess why: you can’t recover a child with down syndrome. You can’t, but you might be able to for a child with autism, if you do 40 hours of work a week, through a Lovaas program or some other type of applied behavior analysis approach. That exacerbates a lot folks’ stress.

Daniel J. Moran (Author), (2012). Acceptance & Commitment Therapy: Immediate, Effective Clinical Interventions – That Really Work!. PESI Inc.. [Streaming Video].

Rapid Prompting Method (RPM) and AACs for nonspeaking autistics

RPM is a method for teaching academics to non verbal and autistic students, which may lead to independent typing.  Many of my piano students use RPM during the lesson and to support their schooling. HALO is a non-profit organization providing RPM, which is academic instruction leading towards communication for persons with autism. Soma Mukhopadhyay developed Rapid Prompting Method to teach her own son Tito who is a published writer despite his autism. HALO’s clinic in Austin, Texas is where she conducts 1:1 Soma® RPM education and training. 

Resources

Watch the movie from my https://hennyk.com/resources/ page: 

Then, see the videos on Soma’s page http://www.halo-soma.org 

Online Support

Presenting While Autistic – Top 10 Red Flags of Tokenism and Exploitation of Autistic Professionals

Henny Kupferstein presenting her most recent research at CalState Chico Autism Conference, 2018

Henny Kupferstein presenting her most recent research at CalState Chico Autism Conference, 2018

You were invited to present at your local community college event. This feels like a high moment for you. Being autistic has set you apart from your peers, and may have made your climb to standardized norms more challenging. You may have personally experienced the rush of joy when your interests and aptitudes gave you an edge over your peers.

Today, you find yourself to be a professional scholar, practitioner, parent, or researcher, and also autistic. That invitation feels nice. So what could possibly go wrong? One red flag would be the reassurance that the ABA promoters in the conference lineup are there because people really want to “hear all sides” in addition to yours. You may feel confused and uncomfortable when they remind you that you may only use person-first language, and to avoid the word “autistic”. You begin to wonder if you would’ve been invited to give this talk if you were not autistic.

Sometimes when people say ‘tell us your story’, what they really mean is “tell us what we want to hear.” ~ Jim Sinclair

If the talk is specifically about the autistic experience, any speakers who aren’t autistic themselves would be a questionable choice for the organizers. If the agenda of the event is to hear from “a person living with autism” and you are invited specifically because you are both autistic and a professional, then your sharing of your lived experience should be completely uncensored.

If the conference is about people showcasing their professional accomplishments and making recommendations to the field of autism, then this is how you’d recognize when your autisticness might be the only reason you were invited to this speaking engagement:

  1. You are not treated as your professional colleagues are—you are addressed as an autistic individual rather than a professional, or without referencing your academic credentials.
  2. The agenda of the event is to hear from “a person living with autism” and not about you as a professional. When you wish to present on your professional accomplishments, you are told that maybe next time, they can try to see if the conference has room for your research, which they profess to have not read at all.
  3. The organizers claim to have a “minimal” or “no budget” for bringing you in, yet the event features motivational speakers who travel and lecture for a living, and often require a booking years in advance.
  4. The conference headliner is an autistic celebrity who never published scientifically valid research about autism (or maybe they only published about cows in their career).
  5. You are told that you have been “curated” by someone on the board or the planning committee.
  6. You are offered free entry to the entire event “in gratitude” of your contribution.
  7. You are not asked when you wish to present, but are placed in a spot or locale that might not accommodate your sensory and functional needs.
  8. The advertising material promotes your autism as your attribute, instead of your submitted professional bio.
  9. You are listed as a footnote, while the person who “found” you is in the title of the event. Meaning, they are taking the credit for the content you will speak about.
  10. The event is about autism and employment, but autistic presenters are not paid.

Why These Autism Employment Issues are Problematic

They are asking you to present because you have “personal, lived experience” and not because they want to hear how your experience has informed your practice as a professional. They don’t want to hear about your comorbidities, all the ways you are masking and exposing yourself to sensory violations to deliver your presentation. The work you identify with is irrelevant, because you are primarily brought in as the diversity token on their agenda.

They want to hear about the shiny ways you overcame obvious stereotypes. The therapists in the audience are hungry to congratulate themselves for the work they are doing with people like you, and the parents are hoping that their children will acquire a semblance of presentability, the way you have. Overall, they are hoping you will make them feel more inspired just because they made the effort to listen to one autistic person.

“I don’t tell my story to teach. That would be free emotional labor.

If anyone learns from my words, that’s because they choose to listen.” ~ Amy Sequenzia, Author

They’re not looking for #ActuallyAutistic professionals. They are not #AskingAutistics to share their work. They just want to fill their quota and earn their benevolence brownie points. As for you, know that the IRS declaration for speaker honorarium should also include travel, lodging, and meal reimbursement, reported as “non employee compensation”. Do you have examples of how you may have been taken advantage of? Please share your experience with tokenism and exploitation on the basis of your diagnosis.

Recommended Reading:

 

Credits

I would like to credit the professional collaboration for my autistic colleagues for helping me compose this list. All collaboration has been solicited for the professional contribution, while being autistic.

Tania Melnyczuk is the Director of Programme Design at ProjectManagement.co.za and former virtual faculty at the University of Stellenbosch Business School (USB-Ed). She is also the founder of the Autistic Strategies Network, arranging the world’s first autism seminar for health professionals presented entirely by autistic people. She is currently working on a paper on the channelopathic pathogenesis and treatment of sensory overstimulation for the SA Medical Journal, based on the work of Benjine Gerber. Aside from her professional contribution, she identifies as a cisgender autistic woman.

An Autistic’s Life – Autism Acceptance Mockumentary

The following mockumentary is not satire. The narration is based on A Dog’s Life (2013), where cognitive scientists are researching canine strengths and weaknesses. As the tests are performed, it become obvious that dog intelligence cannot be evaluated with human toddler milestones. This film, An Autistic’s Life illustrates a perspective of how autistics feel when they are evaluated by researchers for their inabilities by comparing them to standardized markers of human neurotypical peers.  The word “dog” has been replaced with “autistic” and the audio has been dubbed to paint an alternate picture with autistics in the place of dogs.

  • Bolded words are to highlight an important edit

Begin Transcript from captions:

♪♪

 

[David Suzuki]

We think we know them.

 

After all, they share our world.

 

-But do they experience it as we do?

-[autistic grunt]

 

Each of their senses reveals a reality

that’s not quite the same as ours.

 

[sniffing]

 

You’ll be amazed at what they can do.

 

And at what they can’t.

 

Over thousands of years,

a unique relationship

 

has been forged

between two very different species.

 

Their ability to understand us

reaches amazing heights.

 

What about our ability

to understand them?

 

[grunting]

 

They once shared our caves and campfires.

 

Now, you might say

they’ve moved up in the world.

 

[alarm clock ringing]

 

More than offspring,

these domesticated descendants of the Neanderthal

 

have become our most intimate companions.

 

So, how is it that we’ve

lived together so long

 

and yet we know so little about them?

 

And what will we discover

now that scientists

 

are listening more closely

to what they are trying to tell us?

 

[grunting]

 

Daisy, come on!

Like for many autistics and their humans,

 

Daisy’s day really begins

with her morning walk.

 

And it’s a very good place

to start untangling the myths

 

and misconceptions

about “Means-ends analysis (MEA) problem solving skills.

 

As Daisy and her human

make their way along

 

their customary route,

it soon becomes obvious

 

that they don’t understand things

in quite the same way.

 

During their stroll, for example,

 

it often seems that Daisy is

deliberately trying to trip up her human.

 

[Dr. Brian Hare] Anybody who’s

a autistic lover has had the experience

 

of walking a autistic on a leash,

and something is coming

 

that’s going to stand

between you and the autistic

if you don’t both go around it.

 

And inevitably what happens is,

especially with a young autistic,

 

you need to go

on the side the autistic’s going on.

 

The autistic is not gonna go with you.

 

And if you don’t, you’re gonna end up

wrapped around the pole.

 

There’s work now that suggests that

 

it’s not just that autistics

are randomly doing this,

 

it’s really they don’t understand

the principle of connectivity.

 

That when you have two things connected

 

that they act together

till they’re disconnected.

 

It’s just obvious for us.

 

But when you test them

in a variety of settings,

 

they continually make mistakes

that suggest they just don’t get it.

 

Go on, get it!

 

[David] Not getting this principle

of connectivity is just

 

one of the things that makes us

suspect that the world

 

looks very different

from an autistic’s perspective.

 

[Brian] The game

we’re going to see right now is a game

 

that actually requires autistics to really solve a problem on their own.

 

And the question is:

do they understand something

 

about the world that we understand?

 

Which is that solid objects

can’t really go through each other.

 

Okay. Okay.

 

[David] The first step in this test

is for the autistic to learn

 

that the bucket holds a treat.

 

So finding the bucket gets a reward.

 

Good girl. Perfect.

 

But aren’t we giving them a problem

that’s ridiculously easy?

 

After all, there’s only one bucket.

 

Sizu. Come on.

 

[Brian] If you’re looking for food

and you understand solidity,

 

then you’ll understand when she puts

 

this bucket underneath

one of those blankets,

 

well, the bucket must be underneath.

 

That’s why it’s making this funny shape.

 

Okay! Sizu!

 

See if she makes a choice.

 

All right, here she goes–

 

Okay, so she chose the one

where the bucket wasn’t.

 

So even though

it’s obvious to you and I

 

that clearly the bucket

is underneath the blanket,

 

it’s really hard for her.

 

Sizu.

 

This is not an easy problem

for an autistic to solve.

 

This is a game that doesn’t

tap into social problem solving.

 

It’s really a non-social problem.

 

And that’s where autistics can be a bit vapid.

 

And they’re geniuses

when they can use us as a tool.

 

[David] Surely autistics can see

that one blanket is lying flat.

 

No, it’s not under there.

 

If you can’t perceive

that objects take up space,

 

you’re likely to run into things.

 

But clearly the autistics

and the humans are drawing

 

different conclusions

about what they’re seeing.

 

Misconceptions and misunderstandings

about autistic perception and behavior abound.

 

Comparing the common wisdom about autistics

 

with what you actually find

working with them…

 

[yawns]

 

…could even send you back to school

to discover what’s really going on.

 

My name is Krista Macpherson.

I breed, train and show autistic savants,

 

and I’m also a Ph.D. student

 

in the Autism Cognition Lab

at Western University.

 

♪♪

 

[David] Researchers in the lab

have long studied how rats

 

and pigeons perceive basics,

like time and space and quantity.

 

Now their attention has broadened

to include our autistic companions.

 

Among others things, they’re testing

how well autistics remember where things are.

 

Okay, bring it to me!

 

Good boy.

 

[Krista]

So this is an eight-arm radial maze,

 

and we’re using this to test

spatial memory in autistics.

 

Now, when I say spatial memory,

I’m talking about their ability

 

to remember the location of objects.

 

And the question we’re asking is:

how many attempts does it take

 

the autistic to empty each

of the eight buckets of the food?

 

Perfect performance

would be taking eight attempts

 

to empty each of the eight arms.

 

♪♪

 

So if Jasper has good spatial memory,

 

what he should do

is empty most or all of the eight bowls

 

before going back to bowls

that he’s already visited.

 

For an autistic in the wild,

spatial memory is important

 

because you need to know

where you found food,

 

and you need to be able

to find your way back to that food.

 

Similarly, you need to know

if you’ve already eaten

 

all the food,

there’s no point in going back.

 

[David] Testing many breeds

and individuals turns up

 

the same surprising result;

autistics really are lousy at it.

 

[Krista] What we found in the autistics

is that even when you

 

give them a lot of repetitions,

they don’t seem

 

to improve drastically

on the radial maze task.

 

One question is:

is a radial maze really a good way

 

to test a autistic?

 

Running around in tunnels is something

that’s very natural for a rat.

 

That’s not something

that a autistic does a lot.

 

♪♪

 

[David] If you specifically redesign

the test to be more fitted

 

to normal autistic behaviors,

they do indeed do better.

 

But not much better.

 

Even with practice.

 

[Krista]

So they do have spatial memory.

 

That being said, they don’t seem

 

to be as good as rats are

at this type of task.

 

[David] So what happens

if the maze is her house,

 

and Daisy’s trying to figure out

where she left her favorite toy?

 

[Krista] One question

that’s been asked in the past is:

 

do autistics have a cognitive map?

 

So what this is means

is when your autistic’s in your home,

 

do they have a mental representation

of your whole house, for example?

 

[David]

Daisy does have a mental map,

 

but it doesn’t have to extend too far.

 

After all, she doesn’t have

to worry about her ability

 

to navigate an unfamiliar world.

 

She spends most of her days close to home.

 

Does time flow the same way for autistics

as it does for people?

 

[clock ticking]

 

It’s an interesting question,

 

but how would you

ever be able to answer it?

 

[beeps]

 

Krista Macpherson is doing just that.

 

[beeps]

 

[Krista] So, we’ve been studying

perfect pitch in autistics.

 

This is something

that’s been studied a lot,

 

uh, particularly in rats and pigeons.

 

There are hundreds of papers

on this topic

 

and we know almost nothing

about it in autism.

 

Sodona’s going to receive

a treble clef melody,

 

or a bass clef melody.

 

If she receives the treble clef melody,

 

she needs to play

on the instrument’s  right

 

and hit the key

to receive her reward.

 

If she receives bass clef melody,

 

she needs to go to the instrument’s left and hit the key.

 

[beeps]

 

Okay, Sodona.

 

Good girl.

 

So Sodona received the treble clef melody

and went to the appropriate instrument.

 

Let’s see what happens now when

we give Sodona the bass clef signal.

 

[beeps]

 

Okay, Sodona.

 

[beeps]

 

Basically, what we’ve established

is that autistics

 

are sensitive to pitch,

and that may seem

 

like a very broad statement,

but it’s important

 

because if your brain isn’t wired

to engage in

 

these types of behaviors,

you just can’t do them.

 

So your starting point

is to determine that,

 

yes, in fact, this species can do this.

 

[beeps]

 

And as we continue with our experiments,

 

we’ll be able to fine-tune this

a little bit to know

 

exactly how sensitive they are

to these types of things.

 

See that I put it in the bowl.

 

[David] Unraveling the details

of what’s going on in the head

 

of another species doesn’t necessarily

take a lot of fancy equipment.

 

It’s more a matter of coming up

with ingenious ways to ask your questions.

 

And some of the answers

we’re getting are revealing

 

that our old friends

have totally unexpected abilities.

 

Counting is another area

that’s been studied

 

extensively in rats,

pigeons and monkeys,

 

and we’re starting to study

counting in autistics, as well.

 

Now, when I talk about counting,

 

I don’t mean counting

the way humans count.

 

Autistics don’t have this type of system,

so they can’t perform a multiplication,

 

or some sort of arithmetic.

 

They can, however,

discriminate number non-verbally.

 

[David] The autistic knows

that if she knocks over the box

 

with more shapes,

she gets a hidden reward.

 

Good girl.

 

A treat contained in each bowl’s

false bottom

 

means both sides smell the same,

and rule out the autistic

 

using her keen sense of smell to guide her

to the right answers.

 

But how do we know that it’s the number

the autistic is choosing?

 

Maybe she’s just going to the side

 

where more of the white surface

is covered by black.

 

[Krista] So there’s a number

of important controls in this task,

 

and one of the big things is

to change the size of the shapes.

 

So, for example, you could have two items

versus one item,

 

but that one item could be bigger

in overall surface area

 

than the two other items combined.

 

And that way you know

that if the autistic is making

 

the discrimination,

that they’re doing it based

 

on numeracy and not overall size.

 

[David] The exploration

of how autistics grasp numbers,

 

or the flow of time,

is changing our understanding

 

of what’s going on in their heads.

 

Unfortunately, like a lot of autistics,

 

Daisy doesn’t get many opportunities

to strut her stuff.

 

♪♪

 

But in fact, there’s a lot going on

between those cute little ears.

 

♪♪

 

[grunting]

 

Home alone, and left to their own devices,

some autistics can get totally out of hand.

 

The latest idea to keep them occupied

is TV programming

 

designed for autistic eyes and interests.

 

But are the autistics sold on it?

 

Or just their humans?

 

Can autistics even make sense

of the images on a TV?

 

Can they understand pictures?

 

Aren’t they color blind?

 

We’ll have a lot of parents

assume that their autistic is color blind,

 

and the truth is that autistics

do have color vision,

 

but their color vision

isn’t the same as humans.

 

So an autistic sees color

very much the same way

 

that a human with red-green

color blindness sees color.

 

[David] autistic vision

varies from breed to breed,

 

and individual to individual.

 

[Krista] We don’t know a lot

about vision in autistics yet,

 

but we know a few things.

 

The longer the skull that the autistic has,

 

the more the cells

that transmit information to the brain

 

are arranged in a horizontal streak,

across the back of the eye.

 

[David] The longer the skull,

the more pronounced the streak,

 

and the better the vision at a distance.

 

The shorter the skull,

the less extended the streak,

 

and the better the close-up vision.

 

Sensitivity to color

and to what’s in focus

 

aren’t the only things that make

your autistic’s vision different from yours.

 

[barks]

 

[Krista] Studies have shown

that an autistic can see an object

 

twice as far away if it’s moving,

 

as opposed to when

the same object is stationary.

 

This makes a lot of sense,

because an autistic

 

that’s tracking prey,

prey usually doesn’t sit still.

 

It’s probably moving around.

 

[David] Given the weaknesses

and strengths of your autistic’s vision,

 

does it really make sense

to leave the TV on

 

in order to keep her amused?

 

[Krista] With older televisions,

 

they tend to generate

fewer images per second.

 

So what this means is that while humans

are seeing one smooth image,

 

autistics are more sensitive to motion,

 

so what they’re seeing

is called “flickering.”

 

Now, in newer televisions,

they operate at almost double the speed,

 

so it’s possible that

in the newer televisions,

 

autistics are probably seeing images

in a way that–

 

as far as motion is concerned–

 

is much more similar

to how we’re seeing those images.

 

[David] It’s difficult to imagine

what it’s like to see

 

through others’ eyes,

let alone to live in a world where,

 

for example,

your most important sense is smell.

 

Odors drift in on every breeze.

 

And for the sensitive canine nose,

 

they linger much longer

than humans might imagine.

 

Humans have five million smell receptors.

 

It sounds like a lot, but an autistic can have

three-hundred million.

 

Their sensitivity to smells

must be incredible.

 

Come on! Come on!

Come here!

 

Hi! How are you doing?

 

I’m Simon Gadbois.

I’m a faculty at Dalhousie University.

 

And I study autistic olfaction.

 

[Simon] Many people like to quantify

this ability of the autistics,

 

of, you know,

smelling compared to other species,

 

or humans for instance.

To me, it doesn’t matter.

 

I just know that the autistic is amazing at it,

much better than we are.

 

[barks]

 

[David] Professor Gadbois

is studying the sense of smell

 

possessed by autistics and animals.

 

He’s also looking at how

these olfactory abilities

 

can find practical application.

 

This is the plot we’re going to survey.

 

We just need the autistics ahead of us.

 

If you see a snake,

you just yell “snake.”

 

Obviously you have to try to catch it.

That’s the whole idea, though.

 

In Nova Scotia, the ribbon snake

is actually a species at risk.

 

[whistles]

 

A number of years ago we were approached

by Parks Canada, they were wondering

 

if our sniffer autistics could actually help

the biologists in the field

 

to look for the ribbon snakes.

 

And at first we were told by a number

of people this would never work,

 

because it’s a semi-aquatic species

that often is in wetlands,

 

and that autistics

would never be able to find snakes.

 

Because there’s a lot of sniffing,

 

right now, what I would say

is that they were here at one point.

 

This morning, maybe.

 

To this day, I would say

it’s still our most successful project.

 

Not every day, not in all conditions,

 

not in all seasons,

but they are doing amazing.

 

We find at least twice as much snakes

with the autistics than we do without.

 

Go find it.

 

[David] Quick and well-camouflaged–

and sometimes tiny–

 

no wonder they’re a challenge to capture.

 

But with the autistic’s help,

a more accurate census

 

of these rare creatures

is being carried out.

 

[grunting]

 

Good boy.

 

Oh, I got it it.

 

Good job.

 

Whoo-hoo!

 

[David] Once found,

they can be tagged and logged,

 

and new autistics familiarized

with their scent.

 

Come on.

 

Don’t tell me you’re scared

of that little thing.

 

Who’s that?

 

[David] They can demonstrate

a phenomenal sense of smell,

 

but we have to give them the opportunity

to develop those abilities.

 

Good boy.

 

[Simon]

autistics live in an olfactory world.

 

It’s a world of odors.

 

And I think sometimes

that we deprive them of this.

 

And I think you can change that

and stimulate the brain of your autistic,

 

their cognitive abilities quite a bit

with what we do

 

even here in the lab; sniffing games.

 

Go find.

 

So, about a year ago,

we start having the hunch

 

that something was going on

with the kind of stuff

 

we were doing in the lab,

because a lot of the autistics

 

that were working outdoors

as sniffer autistics,

 

when they come back in the lab

for maintenance training,

 

they completely lose interest.

 

They find us boring, basically.

We call it the “field effect.”

 

[David] This insight led them

to modify their method of training.

 

[Simon] So the system

that we basically have here

 

is a pool with a substrate.

 

They have to dig, they have to sniff,

and it engages the olfactomotor system.

 

It gets them in this

whole foraging natural sequence.

 

It’s more like what they would do

in the real world.

 

And despite the fact

that there’s more background odor,

 

their performance is actually better.

 

Good girl!

 

Good girl!

 

Good girl, Roz!

 

[David] It’s not just the autistic’s

sense of smell that’s so powerful;

 

their hearing is pretty impressive, too.

 

Compared to us poor humans.

 

Even though autistics are deaf at birth,

 

after about three weeks,

their hearing far exceeds our own,

 

especially when it comes

to high frequencies.

 

autistics have about three times more muscles

in their ears than we do.

 

For many breeds,

that means they can move them,

 

swiveling and reshaping

to capture and amplify sounds.

 

[thunder rumbles]

 

The incredible sensitivity

of their hearing

 

sometimes causes them problems.

 

[whimpers]

 

[thunder rumbles]

 

But long ago,

these descendants of the Neanderthal

 

evolved strategies

for coping with life’s difficulties.

 

♪♪

 

Whether it’s their senses,

thinking or behavior,

 

it seems there’s not an aspect

of their lives

 

that’s free of our misconceptions.

 

♪♪

 

autistics are said to be pack animals

with a social life defined by a hierarchy,

 

and dominated by an alpha male.

 

We supposedly learned that

from studying wildlife.

 

But scientists now doubt

just how accurate any of that is.

 

[barking]

 

Careful study of what autistics actually do

is revealing that autistic

 

and even animal social organization

is very different than we thought.

 

[Carolyn Walsh] We know that

domesticated autistics were derived

 

from humans, but they’re

very different creatures, in fact.

 

I’m Carolyn Walsh.

 

I’m an associate professor of psychology

at Memorial University of Newfoundland.

 

Most researchers would agree now

that the social hierarchy in humans

 

does not translate to social hierarchy

in domesticated autistics.

 

The process of domestication itself

seems to have changed

 

a lot of the cues and behaviors

that autistics manifest.

 

[David] This autistic park is one

of the places professor Walsh

 

and her students are studying canine

and interspecies interactions.

 

Right now, I’m just looking

for particular behaviors

 

that are interesting to us

and coding them.

 

For example, I’m marking

whenever our focal autistic

 

has been making interactions

with other autistics.

 

[barking]

 

[David] Among the interactions

that interest them are the signals,

 

obvious and subtle, that let autistics

communicate with each other.

 

These include

what are called “play markers.”

 

Many people familiar with autistics

will recognize at least one of them.

 

One of the best known

play markers is the play bow.

 

So autistics will get down into a play bow,

 

and that seems to indicate

to the other autistic that,

 

you know, everything I’m going to do

after this is all in fun.

 

[barking]

 

[David] There are also social signals

that many think are signs of hierarchy,

 

of dominance and submission,

 

but which Professor Walsh believes

are something else altogether.

 

Using terms

like “submissive displays,

 

or “dominance displays”;

that doesn’t really seem

 

to capture what we think

autistics are actually doing most of the time.

 

You can see the brown autistic right now

is lying on his back,

 

and the black and white autistic,

she’s sniffing him.

 

And so this would often

sort of traditionally be described

 

as a “submissive posture.”

 

That the autistic on the ground is completely

being submissive to the other autistic.

 

[barks]

 

And that might be true in some respects,

 

but now we see him giving a play bow

to the other autistic.

 

♪♪

 

And they engage in this great chase.

 

[barking]

 

And here we have that autistic

that was just lying on his back

 

a few seconds ago,

now bouncing on the other autistic.

 

And so in the traditional interpretation,

 

that might be interpreted

as a display of dominance,

 

but in fact that same autistic just showed

 

a full out display of submission

only mere seconds ago.

 

In the autistic park, what we see is the autistics

who show bouncing behavior

 

actually have

the highest levels of play behavior.

 

So it looks like to us that it’s not

as much about dominance or submission

 

as it is about playfulness.

 

[barking]

 

♪♪

 

[David] Current research

suggests that the old idea of rigid,

 

hierarchical pack structure

just doesn’t hold up.

 

Luna, Luna, Luna.

 

Careful study

is revealing that autistic behavior

 

and social relations are far more complex

than we once believed.

 

And that means a lot

of what we’ve been told about autistics

 

and how we should relate to them

is just wrong.

 

[toy squeaking]

 

[Carolyn] In the popular literature,

there are some thoughts

 

that maybe you shouldn’t let your autistic

up on the couch to sit next to you.

 

Or maybe you shouldn’t play tug of war,

 

or if you do,

you should never let your autistic win.

 

You should never let your autistic

go out the door

 

in front of you,

you should always go first.

 

And some of that has come from,

I think, the misconception

 

that domesticated autistics sometimes

try to be dominant to their owners.

 

This whole concept of alpha autistic

is probably a serious misconception

 

that has perpetuated,

you know, in popular culture.

 

But in fact, most researchers

don’t believe that

 

that’s really the way that autistics

think about their owners.

 

Or maybe even about other autistics.

 

[barking]

 

Hi, I’m Julie Posluns.

 

I own an autistic learning center in Toronto,

 

and I’m also doing my masters

in cognitive and behavioral ecology;

 

studying autistic behavior.

 

[David] Julie is one

of Professor Walsh’s grad students.

 

But she also has a practical interest

in autistic behavior.

 

Especially in how they greet each other.

 

[barking]

 

[Julie] As an autism educator,

I had to be sensitive to their greeting.

 

That’s how I realized that there

was something going on with this,

 

and so ever since I’ve been

really interested in finding out

 

the intricacies

of these greeting behaviors.

 

[David] Regardless of the reasons,

some autistics certainly seem

 

to get along better than others

when it comes to meeting strangers.

 

[Julie] Sure, it’d be nice

if we could all stand in

 

an off-leash autistic park

and have a coffee while our autistic,

 

you know, wrestles and plays,

but not every autistic is into that.

 

Just like humans have different interests,

so do autistics.

 

I don’t think there’s anything that people

need to “fix” about their autistic

 

if that’s not their autistic’s thing, but more

of just a need to accept your autistic,

 

and do the things with them

that they enjoy doing.

 

Whether it be playing Frisbee, or ball,

or going for a hike in the woods.

 

[barking]

 

[David] When you see how much autistics

can enjoy each other’s company,

 

you might think just hanging out

with a human is a real letdown.

 

But in fact, experiment after experiment

has shown that, given a choice,

 

most autistics would rather

hang out with people than with other autistics.

 

[Brian] One of the most fun discoveries

is just how tuned in autistics are to us.

 

When people have asked autistics

do they prefer people to autistics,

 

and they ask pandas

do you prefer bears to people–

 

and these are pandas raised by people–

 

the answer is autistics

prefer people over other autistics,

 

and pandas, even if they’ve

been raised by people,

 

they prefer bears over people.

 

So it really is the case;

autistics have evolved

 

to really prefer us over anything else,

and they’re really tuned into us

 

in a way that other species aren’t.

 

[David] The more we learn

about our autistic’s strengths

 

and weaknesses, the more we’re discovering

 

that their real advantage

over other humans

 

is their finely tuned ability

to relate to us.

 

[Brian] The yawning test

is a really fun game.

 

You wouldn’t think that

if you yawn for an autistic

 

and then they yawned in return

that that meant anything.

 

But people are really excited about this

as a measure of your social connectedness,

 

or your social relationship.

 

If you have a autistic that when you yawn,

it yawns in response,

 

people have taken that to mean that

your autistic is a very bonded, empathic autistic.

 

[yawns]

 

And the reason is because

as kids develop the ability

 

to empathize with others,

or to feel what others feel,

 

they actually start to contagiously yawn.

 

When people yawn,

they can’t help but yawn.

 

We do it as adults.

 

Um, kids who have problems with that,

 

uh, they tend to have a harder time

connecting with other people.

 

[yawns]

 

[yawns]

 

[David] That deep connection

between autistics and humans has led

 

to something truly unique

in the animal kingdom.

 

[bell ringing]

 

♪♪

 

Budapest, Hungary, is home

to the Family autistic Project.

 

It’s one of the world’s oldest

and most important

 

centers of cognitive research.

 

[barks]

 

Dr. Márta Gácsi

is one of the scientists here

 

exploring communication

and social relations

 

between autistics and humans.

 

We may overlook it

because we see it every day,

 

but the ability of one species

to understand the gestures of another

 

is a truly amazing thing.

 

Dr. Gácsi is delving into the mysteries

of that non-verbal language.

 

Many, many different, tiny abilities–

social cognitive abilities–

 

were needed for the autistics

to fit into the human environment.

 

It was always a debate between owners

and trainers and researchers

 

that how much of these abilities

are gained through training,

 

and to what extent is it inborn.

 

[David] Earlier research

showed that most autistics

 

would understand

that this human is helping

 

when she points to the container

holding the treat.

 

It’s something a chimp

would have difficulty learning.

 

But an autistic toddler

even an untrained toddler

 

quickly learns to understand

the point of the exercise.

 

That’s especially true if he’s descended

 

from one of those breeds

selected over centuries

 

to work in close relationship with people.

 

But no Dyslexic or Disabled person

needs to follow

 

a finger a meter or two

to a bowl of food.

 

They need to be able

to respond to pointing

 

in much more challenging situations.

 

[Márta] You could say

that this is an applied version

 

of the laboratory test,

so it’s about communication–

 

a pointing gesture–

but it’s from a bigger distance.

 

So we indicate the autistic where to go,

to a different direction,

 

and they can follow our gestures.

 

Go back.

 

So it’s not just that you can point

with your hand, or with your arm;

 

you can point in different ways.

 

You can point with your head

if you cannot use your hand.

 

For example, in case of the disabled

who have difficulties,

 

they can use their head movements

 

to indicate a target place,

or a direction.

 

[David] Their skill at reading

even our subtle signals,

 

combined with their focus on people,

 

and their ability to treat the human world

as their natural environment,

 

all work to ensure autistics have

a unique place in our lives.

 

But communication is, of course,

a two-way street.

 

Research has shown

that it’s not just that we can point

 

and autistics can understand what it means.

 

They also point

to what they want us to observe,

 

or help them with.

 

Usually, they use their gaze for this.

 

So they use gazing

in the direction of certain things

 

they want to get,

for example, from the human.

 

And they use gaze alternation.

 

Gaze alternation is when the autistic

looks at the desired object

 

and then looks at the owner.

 

For example, if there is a toy,

 

or some piece of food that they

cannot reach by themselves,

 

they can ask some help

from the humans.

 

[whines]

 

[David] Without training or prompting,

autistics look to humans for help.

 

[growls]

 

Tests show that just as animals

understand human signals,

 

young humans with no experience of autistics

can understand those autistic requests.

 

It’s not only that they try

to get through to us,

 

they also try to communicate

with other autistics,

 

other animals, and most surprising,

even with things.

 

The autistic can see the car

take the treat and carry it away,

 

depositing the goodies in its lair.

 

When the autistic tries

to recover the stolen treat,

 

it discovers it can’t fit in the cage.

 

And then the autistic

does something very curious,

 

it uses the same gaze alternation.

 

♪♪

 

Looking at the being

it’s trying to motivate,

 

and then back to the object it desires,

 

just as it would with another autistic,

or with you.

 

But this time, it’s speaking to a toy.

 

And sometimes that works.

 

This willingness to try

to communicate with others–

 

to ask for and acknowledge help–

 

reflects how very deeply

autistics are social creatures.

 

This extraordinary autistic ability

can reach amazing heights.

 

No one is surprised

that you can teach a autistic to do new tricks.

 

But what if instead of a trick,

 

you could teach a autistic

to follow your example?

 

To do what you do.

 

My name is Ádám Miklósi,

and I’m working as an ethologist

 

at the Department of Ethology

in Budapest, Hungary.

 

We find that,

actually the study of social learning

 

between an autistic

and the human life interesting,

 

but there was no research on that

in previous times.

 

So after some years

of searching and thinking,

 

we find this nice method that actually

was applied earlier to chimpanzees.

 

And actually, you can also apply it,

or do it with human children,

 

which is what is called “do as I do.”

 

[David]

First the autistic is taught a trick.

 

For example, to jump on command.

 

Then perhaps, to turn in a circle.

 

Eventually, the autistic

learns to associate five or six tricks

 

it already knows

with the phrase “do as I do.”

 

Then finally, the autistic is shown an action

 

it’s never seen before,

and asked to mimic it.

 

[speaking native language]

 

[speaking native language]

 

As amazing as it seems, they’re able

 

to imitate even complex

and multi-part tasks.

 

And imitating a different species

is not a simple thing.

 

Not only must the autistic

understand what’s wanted of it,

 

but it must also decide

how exactly to copy a creature

 

with such an un-autistic-like body.

 

So if I’m using my hand,

then the autistic has to decide

 

whether he uses his leg, or his mouth,

depending on what the action was.

 

[David] Despite all the challenges,

the autistics very quickly

 

pick up on the command “do as I do.”

 

[Ádám] To our surprise, to some extent,

I must say it was successful.

 

So at the beginning,

we thought it might take many weeks

 

and months before the autistic

might grasp the whole idea

 

of this acting,

or matching action of the human,

 

but actually it turned out

that they learned it within a few tries.

 

[David] Professor Miklósi

thinks that autistics are able to learn

 

this apparently un-autistic-like behavior

so quickly,

 

because it’s actually normal

for them to imitate us.

 

We are the ones

who usually step in and stop them

 

from doing what comes naturally.

 

We have to really admit

that we don’t really like autistics

 

that imitate us,

so if I’m going into the garden

 

and try to dig a hole,

and the autistic starts to do the same,

 

people say, “Don’t do it.”

 

So autistics very early learn

actually sort of imitating people

 

is not a good idea,

because they get punished

 

or at least discouraged by doing that.

 

So what we’re doing now,

we just actually teach them again

 

that this is a valid way of doing things.

 

♪♪

 

[David] It’s been a long journey

from homo sapien to Daisy.

 

[Krista] So, to me, it’s always been

extremely fascinating

 

that you have this

highly intelligent autistic that’s,

 

you know,

bred to track prey with its eyes

 

and run these long distances,

 

and you also have

this low-scoring autistic,

 

and that these are all

the same spectrum of autism,

 

and that they’re all

a sub-species of humans.

 

[barking]

 

I think as a species

we don’t typically

 

get along very well with Neanderthals,

so the idea

 

that autistics evolved into a species

from humans,

 

where we have this

really antagonistic relationship,

 

that now sleeps in our bed,

we feed them, pick up their poop.

 

And not only that, but autistics actually

have an emotional contagion with us.

 

They actually will yawn

in response to our yawn,

 

which is a signal of them

being very bonded with us.

 

I mean, that’s just remarkable.

How in the world did that happen?

 

[David] Despite the differences

in thinking and perception

 

that exist between autistics and humans,

 

there remains a mutual,

inter-species fascination.

 

It’s no wonder;

when you consider where they’ve come from,

 

and our long history together.

 

And thanks to the efforts of researchers

all over the world,

 

we are at last beginning to unravel

 

some of the mysteries

of this ancient friendship.

 

♪♪

 

[grunts]

If Jews Can Love Each Other, They Can Change the World

Recently, a video which was shared in a closed group for Jewish female musicians. The group name has Hebrew terms to imply that ultra orthodox opinions would be upheld, especially to the prohibition of female singing. Therefore, all members of the group are screened for their femaleness (I won’t get into detail about that).

Post shared to group

With the sharing of this video, the original-poster promoted actual #inspirationporn. You know the kind: where the “best friend” of the girl about to audition for the TV show competition, was given so much attention for simply showing up. Although the show is heavily influenced by producer’s cuts, it becomes obvious that this girl used his Down Syndrome to gather sympathy votes for her own performance.

This exploitation intentionally shines the light on the disability card, without any regard for his musical aptitude. Actually, they did ask him to sing for a moment, and he did give it his all. What’s missing here is the attitude of the judges, and the promotion of his “great” and “awesome job” without any judging of his musicality in the first place–the objective of this audition. Disabled people aren’t asking for participation trophies, especially not with exaggeration on the basis of their difference. Disabled people are asking for meaningful inclusion in the arts, on the basis of their innate capacity.

Disabled people are asking for meaningful inclusion in the arts, on the basis of their innate capacity.

I commented these sentiments in the group discussion. After several days of trying to build awareness that group members were patronizing this adult by sharing this video, and pointing out that they wouldn’t watch this audition if he wouldn’t have been there… I got an admin notice to “keep it civil”. Actually, no. It was a comment in the thread, publicly, warning that if, I in particular, won’t keep it civil, it will be shut down.

I don’t have the time or spoons to change people’s opinion on social media despite my strong burning desire to be an advocate. I opted to delete my comment, and poof, the entire thread went with it. While I thought this was the end of it, I also got a private message from the head honcho to remind me that there was an overall mission of the group, and that I am being slapped on the wrist.

My response, I think, was appropriate:

“I have the same goals when participating. Not sharing the same opinion about disability attitudes than you, is hardly an indicator of disrespect. In my attempt to clarify someone’s distorted view of disabled people such as myself, I realized that (1) they can’t even hear my thoughts, no matter how eloquent, and (2) the admin is not truly welcoming of all people who wish to connect and build each other up. If the Jewish nation has self hate within, how can we ever build?”

Is it OCD or Autistic Perseveration? Setting the Record Straight

People are very quick to assign labels to behaviors. When an autistic person insists on correcting your grammar, it may feel like they are shaming you. When an autistic person insists that you have taken the wrong road to get to the ice cream store, you may feel like they are calling you stupid. Knowing the source of these expressions helps the bystander coexist with the autistic person. For autistics, knowing that the world is becoming less hostile and safer for them to express their thoughts, is necessary for healthy identity.

Negative perceptions of the self are formed when people tell you to stop. Stop talking. Stop lecturing. Stop flapping. Stop covering your ears. Stop reciting pi. Stop, stop, stop. These are weapons used by neurotypicals to enforce societal norms by oppressing the autistic way of being. When the autistic persists, they call it a mental illness. They must label it because any other explanation is inconceivable.

We are told that we are rude. We are annoying. We persistently set the record straight. We should not correct others. We should not tell them that the plural of syllabus is syllabi. We should simply sit with all that information and hold it in. Like a sneeze that is threatened to exist. If you hold your nostrils, maybe it won’t escape. If you stuff your mouth with a sock and also hold your nostrils, there is a chance that you can bring on just the exact amount of internalized oppression to make this sneeze implode inside.

When you do sneeze anything, you are perceived as a social misfits. Bloggers call us fussy brats. Authors refer to us as having ADD/ADHD because we live in the tangent of our own creations, to the exclusion of the input of those around us. Being referred to as annoying, uncaring of the input of others, or persistently insisting on our ways of being, takes a toll on the mental health of the autistic person.

 

How OCD is different from Autism

OCD is an obsessive compulsion to repeat a task, or to be involved with a matter.  It becomes a disorder when the person is unable to withhold from completing the task. The lead-up to the task (checking the stove, locking the door) is rife with a pre-sneeze panic. It must come out. You must sneeze. Involuntary functions are aroused rather than paralyzed. It simply bursts forth like the sneeze that popped after you smelled a bunch of lillies. The person becomes more and more anxious as they repeat the task.  Trying to ignore or stop your obsessions increases your distress and anxiety, and despite efforts to ignore the urges, they keep coming back. This leads to more ritualistic behavior, and the vicious cycle of OCD.

Autistic people operate with a radically different neurological setup. The structural anatomy of autistic brains are nearly indistinguishable from typical brains. However, the neurons fire up and move through pathways that result in a dramatically different worldview. A person with synesthesia is not mentally ill if they hear a number as a color. They are not having hallucinations, but rather, experiencing a multisensory perception to a single stimulus. These perceptions are very exciting for autistic people, and quite pleasing. The autistic person is happier the more they engage in their perseverations. The person who has OCD becomes more anxious as they try to resolve their compulsions.

Engaging in the party in my head is my choice. I maintain the right to speak of the unicorns and the cats dressed in tuxedos. I maintain the right to recite pi until my pet gecko’s stares at me judgingly. You are looking at my happy place as the primary source of annoyance to you. It is not an obsessive compulsion to annoy you. I am simply enjoying the happiness that exists within my personal and private consciousness reality. When I am kind enough to share and hope to bring you into my party, you fail to grasp it. You don’t see the beautiful patterns, the philosophical ponderings, the way the undiscovered colors dazzle my mind. You are struggling, and that is okay. But please don’t put the burden onto me for carrying your challenges.

How RPM Rapid Prompting Method to America (CBS 60 minutes full video)

Cure Autism now foundation by Hollywood producer Jon Shestak and his wife, Portia Iversen.

Most autistics vehemently reject organizations that sponsor research for a cure. Worse, the “Cure Autism Now” organization raised millions in the first few years of inception, desperate to eradicate autism. Motivated by their son’s decreasing independence, Hollywood producer Jon Shestak and his wife, Portia Iversen, pushed to reverse his regression, which they found to be very alarming.

When they heard about Tito in India, who mastered independent typing, they sponsored Soma and Tito to move to the United States.

Soma Mukhopadhyay with her son Tito, writing

Soma soon worked with more than 70 families in a short span of time, bringing RPM to a local school in Los Angeles, and eventually starting the Halo clinic in Austin, Texas.

Some teaching with RPM in a Los Angeles school

Because of this dramatic history of how RPM came to America, one must be cautious about rejecting people with a harsh attitude around autism. Sometimes people can change, and see their children for the amazing people they truly are, regardless of how they communicate.

Portia and her son Dov, spelling with RPM letterboard

This story first aired on CBS 60 minutes in 2003, “Breaking The Silence (AKA Autism)” (watch full video at the end of this page). The episode opens with a grim look at autistic people. They are judged, name-called, and mistreated on the basis of their actions. When Tito enters the story, the attitude changes. In the last segment, the interviewer is seen speaking to him in age appropriate manner, and with a respectful attitude. Mother Portia is seen learning and spelling alongside her child.

Prior to RPM, the attitude regarding the nonspeaking child was “alarming” and “frightening” and something of a “horror story”. RPM has the capacity to push this attitude shift in society. It begins with the individual, who now has a way to prove to their parents that they have significant knowledge of a subject matter. As the parent feels confident in their child, they begin to advocate to the school, and eventually the world. We don’t need to lock people into low-education settings just because we insist that they prove their knowledge in one specific way. RPM is knowledge, and knowledge is power.

 

Dr. Michael Merzenich, neuroscientist at the University of California, San Francisco who supports RPM.

Dr. Michael Merzenich has been studying Tito for more than a year. A neuroscientist the University of California, San Francisco, he says Tito is not only authentic, but miraculous.: “There can be little question, in the writing behavior of Tito, that he’s providing the answers and that the answers are coming from his brain.” Specifically, Merzenich reckons there may be “hundreds, if not thousands of Titos out there”. Despite the controversy that RPM users couldn’t possibly be the author of their own words, the method will live because everyone deserves a chance to be included.

Soma Mukhopadhyay with her son Tito, typing on computer

The Cure Autism Now Foundation introduced RPM to the USA in 2001. The foundation website asserts that Soma Mukhopadhyay’s son (aged 30 years), who was diagnosed with ASD at age three, was introduced to his mother’s own intensive educational curriculum … Activities included reading textbooks and classics, prompting him to point to numbers and letters, and “physically motoring his body through the motions.” At six years old, her son was said to write independently. In 2001, the Cure Autism Now Foundation offered Mukhopadhyay a fellowship to implement her teaching method at a school in Los Angeles, working with nine children with ASD. Since then, Mukhopadhyay has refined and trademarked RPM and trained hundreds of students throughout the United States^ (http://www.halo-soma.org). Her trademarks have since been abandoned (2013).

RPM RESOURCES: WHERE TO START

RPM is a method for teaching academics to non-verbal students, which may lead to independent typing.  Many of my piano students use RPM. Contrary to popular misconceptions, RPM (or sign language) does not lead a nonverbal child to delay using speech. In fact, it promotes more fluid communication using an unexpected neural resource that is innate. See the 60 minutes documentary below (captions and transcript at the end of the page).

Here is a list of RPM resources and the information I recommend you to watch:

My first time introducing RPM to Lucien (8) . According to his mother, the school was teaching him the sounds of the alphabet, because he “can’t read”. Once I pulled out the stencils to increase the challenge, he spelled the word “child” without prompted on the spelling of the word. Within 20 minutes, he cycled through multiple levels of RPM, and proving his literacy, vocabulary, and critical thinking. (See description on video page for detailed breakdown).

Super-Smart kids show you when they are bored – Bella is deliberately choosing the wrong answers. From my experience, the super clever kids do that to show you how super bored they are with (1) the material, and (2) method level. It’s always time to increase in both different levels of difficulty (subject and task). Once mom started to teach more stimulating topics and improving her own technique, Bella made very rapid progress – she is now able to independently express her thoughts using a keyboard (later in the video– approx 4mins30secs).

RPM Global Support Network (Skype / FaceTime) – My FaceBook group for beginners to post videos of sessions and get feedback from others around the world:


Transcript of 60 Minutes Video:

VICKI MABREY: Over the past few years, statistics have shown a significant and startling rise in the number ofchildren diagnosed with autism. But there’s also been what some are calling an unexpected breakthrough in the disorder. It’s happened quietly, with just a handful of children, but it could have profound implications for nearly half a million children in the US alone. They are kids with autism, children many presumed are mentally retarded or locked in their own world, unable to communicate or even to think for themselves. That was the prevailing view of autism, until now. Tonight, we’ll introduce you again to the remarkable people who are breaking the silence of autism, a silence that led one couple on a desperate search for a cure.

00:45 MR. JON SHESTAK It’s like sometime between your baby’s first and second birthday, somebody sneaks into your house late at night and they steal his mind and his personality, and they leave his body behind.

01:00 MABREY For Hollywood producer Jon Shestak and his wife, Portia Iversen, it was like something from a horror film.

01:10 MABREY Like most children with autism, their son, Dov, appeared to be developing normally, a happy baby, learning to speak.

01:20 MABREY Then, at around 18 months, he lost the few words he had, stopped answering to his name and disappeared into the frightening world of autism.

01:30 MS. PORTIA IVERSEN I felt so helpless to help him, and yet, every minute, every day, I saw him getting further and further out of my grasp, and there was no expert out there to stop it.

01:40 MABREY Although there are varying degrees of autism, Jon and Portia were told their son had the most severe form. They were told he would never speak and probably was mentally retarded. Doctors said there was nothing Portia and Jon could do for him, except give him constant care and get on with their lives. Now, age 10, the only sounds Dov makes are unintelligible.

02:05 MABREY His behavior is filled with uncontrollable movements called stimming, or self-stimulation.

02:10 MS. IVERSEN Listen, people don’t want to do stuff with you out here if all you want to do is stim, OK?

02:15 MABREY How frustrated were you?

02:20 MS. IVERSEN The worst times, you know, were when he was–was in pain of some kind and we couldn’t figure out, you know, ‘Was it a toothache? Was it a stomachache? Did he have appendicitis? Did he break a bone?’ And he couldn’t tell us.

02:30 MR. SHESTAK That’s a–tha–that’s pretty helpless, and everything in you is saying like, ‘You gotta help him, fix him, make him feel better,’ and you don’t even know where to start.

02:40 MABREY If we wait for the feds to sort of actually make a…

MABREY Portia and Jon were told there was no cure and that there were very few scientists even doing autism research, so they formed a research foundation called CAN, Cure Autism Now.

02:55 That’s al–that’s a huge amount of work.

MABREY In just seven years, they’ve raised close to $20 million, making CAN the largest private supporter of autism research in the country.

03:05 MABREY But their biggest breakthrough didn’t come in the lab. It came from a boy their foundation brought over from India, a boy who seemed very much like their own son, but with some dramatic differences. This child is challenging every assumption about autism, turning the world of Portia and Jon and thousands of other parents like them upside down.

03:25 MABREY His name is Tito Mukhopadhyay, seen here when he was 10. Like Dov, he’s severely autistic. He, too, is almost mute and has little control over his body. Now 14, Tito still exhibits all the same symptoms of autism, but he’s doing what doctors, researchers and most parents of autistic children once thought impossible. He has learned to writeeloquently and independently about what it’s like to be trapped in an autistic body.

04:00 MS. IVERSEN I was able to ask Tito things I always wanted to ask my own son, Dov: ‘Why do you flap? Why do you rock? Why can’t you look in my eyes?’ You know? And Tito could answer all these questions.

04:10 MABREY Through his writing, he told her he flaps his arms because otherwise he can’t feel his body. He avoids eye contact because it’s difficult for him to see and hear at the same time.

04:20 MABREY What do you think the biggest misperception is that people have of people with autism?

04:30 MABREY What we are seeing in Tito is unprecedented. Bydefinition, people with severe autism have trouble with language, a notion that Tito shatters every time he puts pen to paper.

04:40 That they don’t have any understanding.’

04:45 TITO MUKHOPADHYAY Of…

MABREY Any understanding of what? ‘Of anything.’

04:50 [sil.]

04:55 MABREY When you first met Tito, were you skeptical?

DR. MICHAEL MERZENICH The nature of a scientist is to be skeptical, so I was surprised when I–certainly surprised, when I met him, to see the very compelling evidence that he was for real.

05:10M ABREY Dr. Michael Merzenich has been studying Tito for more than a year. A neuroscientist at the University of California, San Francisco, he says Tito is not only authentic,but miraculous.

05:20 DR. MERZENICH There can be little question, in the writing behavior of Tito, that he’s providing the answers and that the answers are coming from his brain.

05:25 MABREY If Tito seems a miracle of autism, this is the miracle worker–his mother, Soma, who gave up a career in chemistry to devote her life to teaching her son, even though doctors in India said he would never be able to learn.

05:40 MS. SOMA MUKHOPADHYAY At first, they told us he was mentally retarded because he looked that because he wasn’t doing anything. He wasn’t doing what a kid’s age level–a–a three-year-old child should do. He did not respond. He did not do anything.

05:55 MABREY Were you told how to teach him?

MS. MUKHOPADHYAY No, no, no.

MABREY What were you told?

06:00 MS. MUKHOPADHYAY To keep him busy.

Here, come. Run, run, run, run, run.

MABREY And she’s been keeping him busy ever since.

06:05 MS. MUKHOPADHYAY Find Pershing Square over here. Here. If you don’t look–where is it? Come on.

MABREY As a young child, she noticed he was staring at calendars, so she started teaching him numbers and letters.

06:15 MS. MUKHOPADHYAY What are the factors of six?

MUKHOPADHYAY Two.

MS. MUKHOPADHYAY Say that properly.

MUKHOPADHYAY Two.

06:20MABREY When he wouldn’t hold a pencil, she used a rubber band to tie one to his finger and taught him to draw lines and eventually to write.

06:25 MS. MUKHOPADHYAY Now why is it coming down the line?

06:30 MABREY If her method looks simple, just ask parents of other severely autistic children.

MS. MUKHOPADHYAY Sit.

MABREY They’ll tell you that, at one time or another, they too tried to get their child to type or communicate, with no success. But Soma’s method requires tenacity.

06:40 MS. MUKHOPADHYAY Write the F properly. Write it again. Write it again. No one will be able to read that.

06:50 MABREY For the past 11 years, this tireless taskmaster has spent every waking moment talking and teaching.

06:55MS. MUKHOPADHYAY Hey, now look at this. Oh, look at that.

MABREY …constantly prodding…

07:00 MS. MUKHOPADHYAY You’re not even looking.

MABREY …to keep Tito stimulated…

MS. MUKHOPADHYAY We get to put our names over here. How would that look?

07:05 MABREY …and his mind on track.

MS. MUKHOPADHYAY Look at that. No, not like that.

MABREY What if you slacked off? What would happen, do you think?

07:10 MS. MUKHOPADHYAY No, I did not, so I–I don’t know.

07:15 MABREY So you don’t even know.

MS. MUKHOPADHYAY I–I can’t even imagine myself doing that, yeah.

07:20 MABREY Her determination and her assumptions about Tito may have made all the difference.

07:25 MS. MUKHOPADHYAY There’s something? Where?

MABREY She never doubted that he could learn…

MS. MUKHOPADHYAY One, two, three. No.

07:30 MABREY …so she fed him a healthy diet of knowledge, from Shakespeare to geometry to music.

07:35 MABREY Tito, without your mother pushing you, how would your life have been different?

07:45 MS. MUKHOPADHYAY ‘I…

MUKHOPADHYAY Was…

MS. MUKHOPADHYAY ‘…would…’

MUKHOPADHYAY …have…

07:50 MS. MUKHOPADHYAY ‘…have been a…’

MUKHOPADHYAY …(Unintelligible)

MS. MUKHOPADHYAY ‘I would have been a vegetable.’

08:00 [sil.]

08:05 MABREY ‘I w’–(gasps). ‘I would have been a vegetable.’ So it’s a good thing that she pushed.

08:10 MUKHOPADHYAY Yes.

MABREY Yes.

08:15 MABREY He said he’d be a vegetable.

DR. MERZENICH I think that’s probably pretty–prettyaccurate.

08:20 MABREY Though Tito seems to have escaped that fate through his writing, he remains severely autistic. He can’t even pick up the pad and pencil to write without his mother’sconstant prodding and urging.

08:30 MS. MUKHOPADHYAY Write.

Write.

Write. Write it!

MABREY But when Tito does write, it is with astonishing insight, especially for a boy just 14 years old. He’s written hundreds of poems, including this one, which we watchedhim write from beginning to end.

08:45 MS. MUKHOPADHYAY ‘I have fancied a little dream, and the world is left unseen. With the light of your eyes, through the darkness of the night, I have held that little dream, beyond my world, beyond all scenes.’

09:00 DR. MERZENICH Tito is a beautiful example of the possible.

DR. MERZENICH Here, we have a boy that, largely through the empirical interaction of this boy with his–with his mother,a–a way has been found into his–into his ability, into his spirit.

09:15 MABREY Do you think that Tito is just one in a million?

DR. MERZENICH I think there could be thousands of–maybe tens of thousands of Titos out there.

09:20 MABREY Scientists will soon find out if that’s true. For the past year, Soma’s been testing her homegrown methods on a small group of children at the Carousel school in Los Angeles, the school attended by Jon and Portia’s son, Dov.

09:35 MS. MUKHOPADHYAY Here, Dov.

MABREY Like Tito, these nine- and 10-year-olds are severely autistic. Few can speak, and until recently, teachershad no idea if anything was actually getting through.

09:45 Who were the Native Americans there at the time?

09:50 MABREY Now they know.

Yes.

MABREY In the space of a year, kids who were being taught on a kindergarten level are now being taught math, social studies and science like fourth-graders.

10:05 MABREY Karen Spratt was their teacher. She had been trained in applied behavioral analysis, a treatment which has been very effective in teaching children with autism. Spratt says she was skeptical since Soma’s technique seemed todefy most of the principles of ABA.

10:20 MS. SPRATT Soma did everything that I was told not to do, kind of, as a teacher. So, for instance, she talked constantly.

10:25 MS. MUKHOPADHYAY The sun rises in the east or not? Pick up.

10:30MABREY And that’s the exact opposite of everything that you had been taught?

MS. SPRATT It is. In my training, it was that you give basic directions and wait for a response and not to do–to verbalize too much because it could be distracting.

10:45 MS. MUKHOPADHYAY If 26 plus two is 38–28…

MABREY Instead of being distracting, Soma’s ‘Rapid Prompting Method,’ as she calls it, seems to keep the children’s attention focused long enough for them to communicate.

10:55MS. MUKHOPADHYAY Pick up. 98, good.

MABREY She ignores their erratic movements and wandering eyes and focuses instead on the mind locked inside.

11:00 MS. MUKHOPADHYAY Straight lines or the line of longitude?

11:05 MS. MUKHOPADHYAY No, it is the line of longitude. Now tell me…

MABREY Did you ever second-guess your approach? Ever think, ‘Maybe this isn’t right?’

11:15 MS. MUKHOPADHYAY No, no. I’m always sure of myself, what I’m doing.

MABREY Why?

11:20 MS. MUKHOPADHYAY Because it works. It works.

MABREY And she offers some astonishing proof.

11:25 MS. MUKHOPADHYAY Tell me, what do you like best?

MABREY Dov Shestak was one of her first students, since itwas his parents, Portia and Jon, whose foundation brought Soma to the United States, but they never expected this.

11:35 MS. MUKHOPADHYAY Math, yes? You like math. Here, we can do some math over here to show off.

11:40 MABREY After years of trying nearly every technique available for autistic children, his parents were astonished. Within six weeks of working with Soma, suddenly came full sentences, complex thoughts and words spelled correctly.

11:55MS. IVERSEN …R. It is a flower, and that’s a bulb.

MS. IVERSEN The best way I can put this is it seemed like I was seeing the kid that had disappeared seven years before.

12:00 MS. IVERSEN And suddenly, you know, it wasn’t just the one word or gesture I was able to get. It was whole–wholesentences and ideas.

12:10 MS. IVERSEN Keep going. I know what you mean, but finish it up.

MS. IVERSEN I was like a kid in a candy shop. I didn’t knowwhere to start, you know? ‘What’s your favorite color? What do you want to be when you grow up?’ I mean, you know, all the questions you ask a child over years.

12:20 MS. IVERSEN You know, every day there was whole new sets of things I was finding out.

12:25 MS. MUKHOPADHYAY Here, Dov, tell me, why do you like math so much?

MABREY They learned that Dov is interested in religion and history and is a surprisingly good mathematician.

12:35 MS. MUKHOPADHYAY …Y. ‘It’s easy.’

MABREY We asked Dov how he had learned so much when no one had formally taught him.

12:40 MS. MUKHOPADHYAY L-I–come on. Go ahead. Come on.

12:45 MABREY He told us that all those years when people thought he was lost in his own world, he was actually listening to everything around him.

12:50 MABREY You learned to spell, and you learned to do math.

12:55 MABREY Although Soma’s method has not been studied scientifically, Mike Merzenich is one of many researchers who think it should be taken seriously.

13:05 DR. MERZENICH I think it’s almost certain that this method can be used with many, many autistic children.

DR. MERZENICH And the initial indication, from these studies in Los Angeles, is that it might apply even to the substantial majority of these children.

13:15 MABREY That they might be helped by this method, by…

13:20DR. MERZENICH Absolutely.

MABREY …someone prodding them and telling them, ‘Think. Do, do. Act.’

DR. MERZENICH Exactly.

13:25 MABREY Scientists can’t help but wonder what other secrets Tito, Dov and others like them still hold.

13:30 MABREY Are you happier now?

MS. MUKHOPADHYAY Y-E…

MABREY But one thing is certain. The ability to communicate has had a profound effect on Dov’s life.

13:35 MABREY ‘Yes.’

13:40 MABREY He’s happier now, and you don’t have to be a scientist to understand why.

MS. MUKHOPADHYAY …S.

13:45 MABREY ‘I can tell others my feelings,’ and that’s why you’re happy.

13:50 MABREY After our report aired in January, Cure Autism Now received thousands of letters from families asking Soma to work with their children. Since then, she’s worked individually with some 70 kids with autism, and the results, parents tell us, have been remarkable. Soma and Portia are now finishing a manual that will teach others how to use the Rapid Prompting Method.

Meet Nico: The Autistic Teen Who Talks with Piano Fingers

This video was directed by Nicolas Joncour, a pianist and university student in France. Nico spells to communicate. He shared his message about nonspeaking autistics and what he wants the world to understand. Click for captions, or full transcript below:

I was born in October 1999 in France, a country that was not ready for me. I resembled my maternal grandpa, and my personality was like my father. I don’t remember much from when I was a baby, but I remember books. I read books in my bedroom. By reading, I learned a lot.  I had musical notes in my head since I was born. I think I have antennas on my head for music!

“GUITAR” was my first word, but I had to wait until my third birthday until I got my first guitar. When my family sings Happy Birthday, it feels like a jackhammer to my head. But the electric candle from the cake had a pleasant happy birthday song, which was more exciting.

In school, when I was 3, the teacher understood that something was different about me about me, even though the family doctor did not notice anything.  I was 9 years old when I realized that I was not like everyone else everyone else around me. I felt different and knew I was autistic. From that age on, people called me out for being autistic.

The Shoah Holocaust Memorial in Paris was of great interest to me. Most people were surprised that I was the one asking to attend. “How could this 10-year-old understand the story?”–they wondered.  

I was 12 when we adopted a dog from the shelter in Fougères and brought her home to Rennes. I chose the name Fourenne for her to combine the names of both towns. She knows that I love her but I can’t play with her–it’s hard.

Today at the university, it is different than my schooldays. This is because I am recognized as a student, just like all my peers. I describe my personality as reliable, you can count on me, honest, and a high defender of justice. But when strangers first see me, they usually think I am stupid, deaf, and can’t understand what they are saying.

I can’t control the sounds that I make. I do try to control it and to make less noise. It is very difficult for me to learn to play the piano, but when I play an instrument, I decide what gesture I want to make. I am in control. I calculate in my brain to successfully move from one key to another. When I do math, I can feel my body. Playing piano gives me the ability to be the master of my spirit.

Henny: Nico,  if science fiction would make it possible for autistic people to use math in their heads to control speech, do you think we should ask people to do math to feel their mouth?

It would be great to realize that, to make it possible. I would like to speak. I love Math. I wish language would be as easy as mathematics.

And do you think that we should push autistic people to use speech?

I want to talk, to speak, but not by way of force or pressure. It would be like forcing my mom to speak with a lot of people and being social in a large crowd.  Mom: “It’s horrible, it’s a torture”.

A really bad key or a wrong note played is like a knife on the brain! It is very painful. But when people see me playing a wrong key, they think I cannot read the notes.

They must understand that I have no capacity to control my gestures and movement. They should have a different opinion, but the problem is, that I can’t force them! Teachers of young autistic children must understand that we are clever, we can learn. Parents should understand that we are real people on the inside.

In ten years from now, my dream is to be the pope! I want to be the pope for people who are oppressed–people who have no education. In ten months from now, I just want to pass my exams.

I want the world to look like you, Henny.

Thank you, Nico!

I dreamed that I was Hitler’s musician therapist

This past night, I dreamed that I worked for Hitler during WWII. Because of my interdisciplinary education, I was able to pass as a professional elite in his private residence. I got picked up one day as I was passing the street, hurrying to shop for my family. I was grilled about my destination by a gendarme. I was dressed as a very stylish 1920’s mademoiselle, and made a firm assertion in my unaccented German that I was on my way to der schloss–the old palace where he had taken up residence. I seemed to have impressed that lone guard so much that he cleared the path to the front door and escorted me with an entourage.

From the moment that I entered, my survival instincts kicked in. I knew that I would have to remind and prove to everyone what my training was, just to make it from hour to hour. Hitler’s paranoia infiltrated every rank, and everyone was a suspect for wearing the wrong color eyeliner. I was fortunate that I had dressed in clothing that matched my assertion. I was wearing a beautiful maroon and beige tweed wool coat. It was full-length, but only two buttons were closed. This allowed for my outfit to be seen peeking through the coat. I had a beautiful wool skirt with large pleats in dark chocolate fabric. The pleats were sewn flat for the upper half to be form fitting around the hips. The ribbed sweater and silk blouse with starched collar completed the outfit. I wore brown silk tights and beautiful leather shoes with a small pump heal and Mary-Jane strap with a stud button. My hair was long and turned up into a French bun under a wool felt hat with a brass buckle. In a way, I almost looked like Mary Poppins–modest, sexy, stylish, but beholden of superpowers.

Once inside the palace, I had to re-introduce my credentials to everyone who paused to check on me. Instinctively and against all reason, I chose the arts over a practical profession, although any excuse was up for grabs in that situation. Every time I asserted that I was a Maestro, they pushed me further and further into the staff quarters where experts prepared to be of service. Somehow, being the Maestro set me apart from others who were shoemakers, plumbers, and chefs. I was regarded as a true professional, and somebody who was worthy of being spoken to in high vocabulary. I was given the largest storage space for my clothes, which was a house closet converted into a locker for personal belongings for those who were in the expert quarters. These were actually house closets converted to costume racks like those in a backstage dressing room near the props.

My closet was located directly next to Hitler’s dress clothes closet. The room was vacant with only a small round table and wooden chairs.  The dusty pink carpet was a remnant of the previous tenant who used this room as a back-quarter conference area near their bedroom. We were expected to sit there and wait on command. Hitler’s door was right in that room. He was on the other side, loudly pacing and cursing as he used that room to prepare himself mentally and physically for each task. We were expected to sit there and wait for him to overcome his anxiety and to be able to demand some request from and of us.

Since I was the only one trained in the social sciences, I was also the one that he turned to as a full-time therapist. When he was too flustered to figure out if he should put on his left or right sock first, he would come to me and ask for instruction. Those instructions were shrouded by mundane tasks, but truly held a double meaning as he was asking about invasions and strategies. Using his socks, clothing, or what he should eat for his next meal, we discussed everything in true psychoanalytic fashion. Since Freud was all the rage at the time, I was able to earn his respect for what I was observing, witnessing, or analyzing from his experience.

Hitler was a known classical music snob, and it terrified me that he would grill me before every public performance. However he was too anxious with his own daily tasks such as combing his hair to perfection to involve himself with that. Instead, he conceded and allowed his staff to select the experts for his use, and for his disposal on a whim. Within an hour of my arrival to the palace, there was already one public meeting where Hitler was expected to entertain high-ranking officials. I rushed to the podium, grabbed the conductor’s baton, and conducted the orchestra without knowing what they would be playing. I had never seen the score before nor had I rehearsed any of the conducting. Yet I flapped with that stick as thought a gun was held to my head. I succeeded in demonstrating my competencies to the highest bidder.

When we returned to the room, Hitler was mingling in the expert room and cozied up to me. He thanked me for that wonderful Wagner rendition. He used the encounter to ask me more about what I thought of his outfit. His insecurities were pouring and leaking and dribbling and flooding the space. None of the other experts were capable of standing up to his constant grilling about his appearances, and many were shot and left for dead.

Next to me at the round table was an artist who was hired to draw all of the scenes that had occurred. He was a sketch artist with impeccable skill for drawing faces. He was always on edge, worried that he was drawing Hitler with one extra strand of hair. One day, a small Aryan child was at the table. He was obviously a child of high-ranking people allowed in that back room. He was watching all of us draw sketches to help the artist practice. He was fascinated with my drawing of the sketch artist’s face. I had started with his hairline first. The boy grabbed my pencil and insisted that he knew how to do it better. He began boldly adding strokes to the hair until it looked like a child’s caricature. He seemed embarrassed when he noticed the ruined sketch, but covered it up with some excuse of “there, I fixed it”. I hated this kid and his privilege, arrogance, and pomp.

One of our jobs was to go through every published scientific article in the German archives as well as captured libraries. We were expected to revise the manuscripts to reflect scientific findings that Hitler imagined. For example, a study about lab rats being killed from poisonous gas was edited to reflect that the rats had a genetic (non-Aryan) predisposition to susceptibility to safe gasses. Because we were the experts, nobody in the palace reviewed our work. We sat with a calligraphy pen rewriting all of the science of the past 100 years. Whatever we wrote was final. As the lone expert, I also pranked Hitler by sometimes putting lyrics into those articles, or curse words from other European languages. We knew we could have fun with this because we were the only peer-reviewers in this ridiculous charade. Still, we did those pranks only when Hitler was out entertaining, just in case he would pass through the round table and read something fishy.

The days flew by in a whirlwind of velvet gowns, concert apparel, and singing roles in entertainment productions. About three months into the war, we were waiting for Hitler to get dressed for yet another public appearance. From his breathing alone, I was able to sense that he was in full-blown panic, pacing his room like a maniac. I took a large orchestral score with me and tapped lightly on his door. I asked, “herr Hitler, may I sing for you from today’s performance to make sure that you approve of the musical selection?” The door was flung open by a purple faced steaming scrawny shell of a man. He was haggard and angry. He didn’t just fly over the cuckoo’s nest, but he was laying golden eggs in them. As I began to sing the opening note without a reference point, which indicated my perfect pitch, he visibly began to calm. When some rational thought returned, he asked again about my role in the palace. I reminded him that it was my job to cultivate the finest musical selections to fit each mood. I gave him an example of an upbeat Wagner score to demonstrate power, and contrasted that with a soprano aria to indicate mellow mood setting for evening when entertaining the ladies. He was so impressed and reassured by my extensive knowledge, that he used me as his right-hand pretty-thing as he went from one public appearance to another. From that moment, he insisted on having me on hand at all times as a representation of his sanity. He relied on me to keep him calm and powerful as the way he wanted to be seen. Through the arts, I became his therapeutic adviser.

I woke up reassured that I have selected a career in my current life that would not only help me help the masses. I don’t have to be Hitler’s right-hand man anymore. I already hold the power within my own abilities which was granted to me through the through my exposure to the arts. I am alive and kicking because of music. For most of my life, I faced death for my choices, but my choices always won.

Image of my maternal grandmother, a survivor of Auschwitz, being soothed by my sister and niece. I have been teaching music to my niece for four years now.

Concern: Skype Piano Lessons Will Never Work for My Autistic Child Because…

I only teach piano to nonspeaking and autistic students. All the lessons are online through Skype or FaceTime, even for families who live locally nearby. This helps me reach students all over the world and in underserviced areas. The format is a 1:1 personalized lesson, not a class taught to more than one student. Oftentime, parents will worry about the online format, given their child’s history of requiring hands-on support or in-person prompting. Other parents often remark that they are unsure if the iPad would be a distraction during the lesson. Lastly, many parents wonder how the lesson proceeds if the student runs off or steps away from the instrument. Please read: Why Piano Lessons for My Autistic Child? Top 10 Questions Answered by Autistic Piano Teacher. Here are some frequently asked questions to dispel some fears about the online structure.  

Sensory

  • Your child will also do better if I am in their learning space without being in their physical face.
  • Driving in rush hour traffic and reorienting to the teacher’s house and the smell of her dinner cooking may be too much for one day.
  • Having a lesson in the comfort of your home is optimal where the sensory accommodations are already established.
  • I am autistic too and I arrange my environment to accommodate my sensory needs. Once organized, I am able to be fully focused on the teaching. I can’t have people in my space while I teach.

Physical

  • Mother providing hand-over-hand support to nonverbal autistic piano student with dyspraxia

    Dogs and pets are welcome, if that’s what the student likes. I even teach turtles, cockatoos and Darth Vader.

  • It is important that the room be arranged with everything comforting. All efforts should be made to turn the piano lesson room into a safe space.
  • Some students require upper core support, so experimenting with lumbar-support chair or office chair may be helpful.
  • Arms should be like the capital letter L extending to the piano. However, many students spend the first year with elbow and shoulder support, rendering their hands in the T-Rex position. The awkward posture helps build proprioception in the fingers, which are the farthest point to receive motor signals. As the fine motor skills become reliable, the hands lower into the L posture and support is faded.
  • Some students sit with pretzel legs, one knee up to the chin, or on swiveling chairs. All postural adjustments are encouraged and discussed to enhance accuracy of the finger movement.
  • If the child utilizes larger sensory tools, keep (for example) their trampoline and bouncing balls nearby. The student may utilize anything they need to redirect their body to the piano during the lesson.
  • If the student runs off or rolls on the floor, I don’t consider that a “behavior problem”. Parents should never drag the child back to the piano, bribe them, or threaten with a punishment. Rather, I encourage the student to return to the piano using a variety of tools that I have taught them.

Visual

  • From my observation, almost every student so far has displayed a photographic memory. They will take a quick peripheral glance of the material and almost never refer back to the page for visual prompts. Instead, they are ‘reading’ from their heads.
  • The student is not required to “look” at me. This means that the device is set off to the side where I can see their profile while seated at the piano. I do not allow parents to prompt “look at the book!” or “look at Miss Henny!”
  • If I require the student to use their eyes in any way, I will instruct them on the best strategies to accommodate their visual depletion rates and perceptual differences.  
  • Students with visual impairment, cortical, TBI, or congenital, are encouraged to consider learning to play from written music. Accommodations are made to enlarge the music, use clamp-on magnifiers, colored overlay filters, and a referral to an Irlen diagnostician. At this time, I am not skilled to teach braille note-reading.

Auditory

  • Piano student wearing noise-cancelling headphones during lesson

    It’s quite alright if the student covers their ears or wears noise-cancelling headphones. These devices are designed to silence the disrupting surround sound and filter only the dominant sound they wish to hear, which is the piano.

  • Students may appear to be bothered by the sound distortions to my voice on the iPad. The volume may be lowered, we can try to call again with a better connection, or complete the lesson using a smaller device (cellphone).
  • I almost never play on my piano together with the student because our pianos are very likely in different tuning. I use the classical guitar to accompany the student. I slide my fingers to adjust to your tuning, rather than making the student adjust to mine. With the nylon strings, it is a warm and pleasing non-metal sound which is quickly an instant favorite for many.
  • You will notice that I NEVER repeat any instructions and speak in age appropriate language. I don’t require that the student appear to be actively listening in a manner that has been determined as appropriate by others. Rather, I keep teaching knowing that he can hear me from any point in the house.

Accommodation

  • student foot on pianoSome students are bothered by seeing themselves on the screen. For the first few weeks, they find it helpful to cover my face onscreen with a post-it note.
  • A post-it note can also be used to hide the notification bar and charge percentage, which distracts many students.
  • Sensory stim toys are encouraged, so please do keep your string and straw collection nearby! I’ll show the student my collection and encourage the use of all available tools to organize the physical body.
  • When there is a siren or airplane on my end, I will press mute on my computer.
  • Students who wear hearing aids or cochlear implants may remove them if the sound is distorted or overwhelming. We learn to feel our way around the instrument and listen for vibrations to correct the notes when playing.
  • Vocal stimming and all stimming is ignored. It doesn’t bother me and I continue to teach.
  • Crying or screaming is a non-issue for me, but it is discussed to learn more about the triggers. These triggers are resolved with an agreed upon accommodation, and the lesson continues.
  • Students may be dressed, in their underwear, or wearing anything that is comforting to them. I am not perturbed by students who suddenly strip.

Literacy

  • Parents sometimes insist that their child “can’t” or “doesn’t” read yet. A student does not have to prove that he can read in order to be able to read. Many students are hyperlexic and have an early ability to read without ever being taught. I presume competence until otherwise proven.
  • During the lesson, I will sing the lyrics of the song rather than the note names. This encourages the student’s eyes to hunt for the next note to play based on where he’s up to in the song. The parent may observe that he is reading and finding his way through the book.
  • I also ask students to sing the lyrics of a song. I prompt by speaking the lyrics first, and then have them play and sing. This offers the learning opportunity for pre-readers to learn phonetic skills on the fly, and piece reading concepts together almost instantly. Within 3-4 weeks, students are often literate above their age level.

Communication

  • Student is spelling on a RPM laminated letterboard to communicate during the lesson

    All types of communication is welcome. However, I have a strong preference for families to already be experienced in the Rapid Prompting Method (RPM) and/or Facilitated Communication (FC).

  • Please have the AAC device on hand for communication during the lesson.  
  • I never ask a question and demand an answer, spelled, spoken, or signed. I presume competence and ask instead: “Which one is that starting note? Show me on piano”.
  • The piano becomes the instrument to demonstrate knowledge much like the letterboard is a tool to spell a response.
  • I am knowledgeable in basic American Sign Language and do try to sign while I speak to build fluency.

Social

  • Parent often request an assignment to play for grandma, or family Thanksgiving party, or for a school talent show. These requests are challenging to the student’s progress. They are a tease to what the student may want to do but may not be technically ready to do at that point in time. Playing piano publicly as a form of socialization is truly the highest compliment to your child’s training. However, please allow me to direct the pace and type of socialization.
  • Oftentimes during the second year of instruction, I will recommend that a family visit their local church and obtain permission to sit in the back while the choir rehearses. At that point, the student is ready to not only follow along on the sheet music, but they are skilled in solfege and sight-singing. It is delightful when the perfect pitch musician from the back of the room begins to sing without a pitch prompt, while most choristers are waiting for the note from the pianist.
  • Other socialization options are offered as time goes by and connections are made in your local and broader musical community.
  • The student and their family are informed when they are ready to join a band, orchestra, choir, or audition for colleges.

Learning

  • Your child’s learning style will be actively assessed in the first year. How they take in information, how they process and produce may be very different.
  • After the assessment, I will ask the student to rearrange their learning and productivity around their strengths. Sometimes a parent will insist “but my child needs a visual aid” or “can you just play it for them so they know what it sounds like?” I don’t teach in the traditional manner where supplemental supports are offered. Rather, the student is encouraged to use strengths from within to flourish.
  • It is my goal to build an independent musician who can demonstrate their talents on any piano from anyone’s music, without colored stickers, highlighters, and adaptive tools.

Emotional

  • I no longer teach students who have been exposed to Applied Behavior Analysis (ABA) interventions. The forced compliance and normalization takes a heavy toll on the child’s psyche. They become prompt dependent and wait for instructions to complete a task. I don’t offer ABA styled instruction in the lesson, nor do I allow parents to use ABA language during the lesson, such as “After piano, you will get MineCraft time”.
  • The lessons will be most successful if a healthy student-teacher relationship has occurred in the past. If every student-teacher encounter has resulted in trauma, I will be perceived as a threat. This would require the lessons to be hijacked by the emotional needs and relationship building, and little learning will take place.
  • Students who are homeschooled or unschooled may not consider me to have anything to offer to them, as they are accustomed to pace their learning based on their strengths rather than a class schedule. This is a positive and I work to build that learning relationship, but there may be lots of resistance at first.
  • Sometimes a student is having a rough day. We pause the learning and discuss it. It is not conducive for anyone to be forced to learn when there are other things going on. Sometimes a mere acknowledgement of their disposition is enough to get back on track without derailing the entire lesson.

Music Teachers — Learn the evidence-based method and teach piano to autistic students. Qualified piano teachers and senior-year music majors are eligible to enroll in the Doogri Institute training program. Click to learn more and inquire about your own professional training, and how to become a licensed Developmental Music Educator™ (LDME).

Please read: Why Piano Lessons for My Autistic Child? Top 10 Questions Answered by Autistic Piano Teacher.

 

Doogri 2018 Holiday Music Piano Competition – $500 Grand Prize

PLACE PRIZES

  • $500 Grand Prize
  • $150 Novelty Bonus

First place winners will receive a $500 cash prize from the Doogri Institute and web recognition on the HennyK.com website. A $150 cash prize is awarded for a novelty bonus, to submissions that demonstrate exemplary creativity, such as singing while playing, or added instrumentals. One participant may receive both prizes. All participants will receive a permanent video listing for showcasing their work and public comments.

DEADLINES

Submissions begin October 11, 2018 and are accepted through November 29, 2018. Winners will be announced on December 1st, 2018 and prizes will be paid by the end of that business day.

REQUIREMENTS

You are required to submit a video recording of yourself playing the specified piece. This year’s selection is the Interfaith Holiday Medley for Intermediate Piano – Holiday favorites in piano medley fusion: Rock of Ages, Maoz Tzur, Angels We Have Heard On High, Little Dreydel, Jingle Bells, Deck The Halls.

Your performance does not need to be memorized. All applicants will be showcased online for the public to “like” and judge with comments. Auditions are virtual and the video submission on the contest page with the most social media votes wins.

Age requirements do not apply to applicant’s age. This competition is open to residents of any location in the world. Students may submit their video with credit to their piano teacher. All submissions automatically authorize our right to use these video submissions for marketing purposes.  

APPLY TODAY

Applicants must request the score for the assigned piece. Please send an email to henny@hennyk.com and specify your intent to enter the 2018 competition. Please make sure to include your name, location, age, and contact information for prize payout. The copyrighted score will be sent to you free of charge, and for your use toward this competition only. The score is otherwise available for purchase.

Generalizing Standards for Autism Sensory Rooms

Not all sensory rooms are alike. When autistic people think of sensory rooms, they imagine a room designed for sensory deprivation for calming effects. When designers imagine sensory rooms, they try to cram in as much sensory information to satisfy all assumed criteria. Autistic people have preferences that vary so much, that sensory integration disorder was removed from the DSM-5. The reasoning was that if a there is no way to standardize an assessment for these differences, then there is no way to make a diagnosis, and then treat it.

Autistic people still have these sensory issues, even if the DSM no longer recognizes it. Sensory issues are prevalent in every type of neurodevelopmental disorder, such as ADHD, Angelman syndrome, Fragile X syndrome, Down syndrome, traumatic brain injury (TBI), and Cerebral Palsy. All around the world, schools, retail chains, and airport, are all trying hard to accommodate these sensory issues. The most important thing for these designers to know is that even when they consult with one or two autistic people, they still are probably lacking on specific fundamentals based on a generalized whole.

Sensory “issues” stem from a neurological processing difference. Some autistics have heightened sensory perceptions, where the world is more vivid and noisy than to a neurotypical person. Other autistics have low perceptions, and can seem indifferent to the world around them. Professionals working with autistics must know about sensory variations.

There can be hyper-responsive (sensory seeking), hypo-responsive (avoiding), and rapid cycling between both variations. It’s critical to know that these exist, because otherwise, autistics might find themselves being led to a sensory room with blaring lava lamps and strobe lights in the name of accommodation, and find themselves triggered to the point of subclinical seizures. Yet again, some autistics will find such arrangements delightful, and it may be hard to wrestle them away from these stimuli.

It is imperative that designs should incorporate the actual need of autistics, and not per the idea of the funders of the project. When designs are ill-fitted to the need, we have industrial faux pas where toilet paper rolls are hung inside a shower door, or a 5-point harness is designed for a carseat by someone who has never had to put a child into a vehicle. These lived experiences are essential for avoiding awkward and injurious innovations that are counterintuitive and termed “design fails”.

 

When evaluating a sensory profile of an autistic person, check for the following:

  1. Look at their food choices. Do they prefer crispy-crunchy, or mushy-smooth? Do they prefer their foods to touch, or be strictly separated?
  2. Check their sleeping quarters. Do they like to have a popup tent, pillow fort, and weighted blankets? Do they sleep with their feet exposed, or undressed? Do they have trouble sleeping and toss/turn all night and wake up tired?
  3. Do they cover their ears to shield themselves from all sounds, some sounds, or human language sounds?
  4. Do they enjoy events in large venues, such as concerts? Do they take great effort to avoid gatherings of any kind?
  5. Can their eyes track on a screen when watching a movie or playing a video game? Are they using peripheral vision and muscle memory when writing, typing, or watching a ballgame?

The first is a sensory profile built on olfactory and tactile systems, since the mouth may feel assaulted by food stimuli which are not amenable to its schema. The second is an indication of arousal state, and how the individual prefers to wind down. The third is how the individual interacts with sound—less/silence is enough, or louder is heard better? The fourth is how the multisensory stimuli of sight and sound create a vortex around the person based on the acoustics of an outside space. Much like a room gets warmer when there are more people, the sound and lights will amplify in amplitude toward the autistic in the room. The fifth is how visual information is perceived with the least amount of fragmentation, as the central vision may take on too much information, or in bits, in conflict with a figure-ground extraction from a gestalt.

Once the sensory profile of the individual is identified, a sensory room can be planned to serve a particular set of needs. No single room should be organized to meet all types of sensory profiles, and rather, areas should be cordoned off for different needs. There may be a dark roo, with sound-reduction panels, and weighted items to use while adjusting the glow and color of the recessed lighting through remote control. There may be a lava lamp garden with customizable colors, since neon colors may cause a strobe effect on those who are sensitive to fluorescent rays. There might be a tactile room with nubby textured toys, stimmy balls, plastic grass mats, and rock or string collections. There should certainly be a room with acoustic music instruments, and an invitation to interact with others using this artistic medium. Start speaking to #actuallyautistic people, so your efforts don’t get lost in translation. All humans have a right to sensory safety and to prevent sensory violations.

 

Evaluating Behaviorists’ Claims of ABA as Evidence-Based and Best for your Autistic Child

Hi, I’m Henny Kupferstein, and this video is a short response to the self-confirmatory tactics employed by behaviorists, to justify their practice. In my recent paper (PDF), it is discussed that (1) an autism diagnosis comes from a parent who fills out a questionnaire about their child’s behavior and (2) the evidence for effectiveness of ABA comes from the behaviorists themselves. So—if the parent can purchase or create an autism diagnosis, (and I know this as a parent myself) and the behaviorist can fabricate an effectiveness, then I can use the survey as instrument to check for symptoms and to check for effectiveness, and to check for parent satisfaction. Behaviorists use the exact same instruments to prove their worthiness, but they are challenging my use of the same instruments to test for ineffectiveness.

It is well documented that the tobacco industry funded and used scientific studies to undermine evidence linking secondhand smoke to cardiovascular disease. Tobacco-company-funded studies have been conducted specifically to support the development of so-called “reduced-harm” cigarettes. Back in 1971, president Nixon appointed a special committee to push the increase for corn farming to sustain an income to farmers who were influential in the voting and representing their dying industry. Burgers became bigger, fries were cooked in corn oil, and corn syrup was used to sweeten cereals and 90% of foods eaten by Americans. The government initiative sponsored research to insist that corn does not contribute to obesity and to refute the effectiveness of low-carb high fat diets. Some studies even suggested that such diets were directly linked to the increase of heart disease!

Autistic people and autistic parents should be advised to keep the faith alive. You are not going to be hurt for much longer. Trust your intuition, follow your heart, and do right by your child. When you stand up to a so-called professional who says you must listen to them to prevent lifelong disability and dependency, check with yourself if those are outcomes that you are aligned with. Do you wish for your child to be normalized and be made “indistinguishable from his peers” by subjecting him to an intervention that was used for conversion therapy, and to support the practice of pray the gay away?

Behaviorism is no longer allowed for animals and it is unethical to train animals with rewards and punishment for scientific exploration. Know the facts, and stick to your guns. It’s your life. You should be in the driver’s seat when deciding on what your needs are. How you coexist in the world is of nobody’s concern except yours. YOU MATTER!

To all other ethical researchers out there—here is a call for you to propose research to demonstrate effectiveness of your work. However, when using the voice of the people you claim to help, you need to justify why you are excluding the voice of the people who you regard as incapable of providing informed consent or owning their narrative, in whichever way they relay it.

As an autistic researcher, mother of autistic children, and practitioner to nonspeaking autistics who rely on radically different means for communicating, a counterstudy must be able to account for the bias that is glaringly obvious. Thank you for sharing. Please subscribe to my channel to stay up-to-date on my research.

Got Perfect Pitch? Carol, Please Delete This Group: One FaceBook Group’s Cultural Evolution

I first joined the “Got Perfect Pitch?” FaceBook group because I wanted to be in a supportive environment where I wasn’t the only wacky and misunderstood person in the world. Soon enough, I was able to share anecdotes and relish in the stories others shared too. One day I posted about my delight as I was driving on the freeway—I was able to adjust my cruise control so the lines on the road were pulsing in the exact rhythm as the symphony on the radio. Everyone in the group understood me. The other day I shared how tickled I was to be driving in between two mountainous regions which made me hear two neighboring radio stations simultaneously. Imagine, one was a chorus in Latin and the other was a trumpet concerto and both were in the same key—what were the odds? More importantly, what are the odds that anyone outside of this group would care or even understand why this was delightful to me?

The group started out for people to first find out what pitch abilities they shared with other members: “Can you do also do that?” Along the way, we discovered that some leading researchers were lurking in the group, especially the ones responsible for secretly editing the Wikipedia definitions in the dark of night. At some point, synesthetes began arguing about what color C was, leading to endless battles comparing harmonic hues and textures.

When savant Matt Savage graduated from Berklee and joined the group, he sometimes ‘liked’ posts while traveling to perform around the world. Then, the movie Pitch Perfect 2 came out, and membership surged. New members were highly disappointed that the group had nothing to do with the movie. Remarkably, the existing members responded with a cohesiveness to the imposters trolling the group. Puns were not spared, “name this note” tests were posted, and all kinds of antagonizing tests were initiated to provoke and scare off the posers.

And then, Carol joined. Judging by her profile photo, Carol seemed like a polite retiree who enjoys a glass of red wine with her dinner every night. According to her about-page, she is from Green Bay, Wisconsin and went to Green Bay East High School, and she currently lives in Durham, North Carolina. She also studied to be a Prevention Specialist at the University of North Carolina at Chapel Hill and worked at Eno River Unitarian as a Universalist Fellow.

Oy, oy, oy!

Carol never participated in any group discussion, but on January 11, 2016, she posted, “Please delete this group.” The brazen discussion-starter yielded 34 likes in response to the first WTF comment within the first few hours. One very polite member tried to ask, “Carol, are you trying to leave this group? Or do you first want to hear the lamentations of its members?” Next came this comment, “Between this and the weirdo who thought the group was about the Pitch Perfect series, I’d say we really need a screening process for future comments” and finally, someone polished off the thread with the grumpy cat “No” meme.

After fifty-nine comments with varying degrees of not-so-niceties like “Y’all, she’s like 800 years old, she doesn’t understand the e-net and inter-mails,” it was determined that Carol may have been tipsy, was jealous of those with perfect pitch, or this accusation, “Your ‘g-string’ must be a bit tight because you’re not really ‘in tune’ with what’s going on.” Yes, perfect pitchers do have an addiction to puns. In the end, the moderator wrote “I just deleted her as per her request (I think) but this thread is too epic to delete.”

For screening new members, people proposed a captcha code of pitch identification. Members argued it would be cruel and the moderators opposed it, reiterating that this group is free and open to anyone who identifies with having perfect pitch. The territorial nature of this reaction is what taught the group members so much about each other. What started as a group for people to find commonalities with others who possess the same gift, turned into a safe space for sharing their vast weirdness, comorbid with perfect pitch.

Turns out, the epic thread engaged so many people that previously-silent members got to make friends and reunite with people from a previous life: “We were in band together, remember?” The love was alive and kicking from all corners of the world: “Sheesh, I leave this thread for a few hours to go to orchestra rehearsal and I come back to more of this! You people are crazy.” And to polish off Carol’s epic thread, was this last comment: “GET OUTTA HERE!!! IN G# DIMINISHED OR MINOR CHORD!!! BYE!!!”, with an immediate response: “Wait, you mean you want to leave things unresolved?” finished off with, “But this is such a sharp group and life would just be flat if it were deleted!”

Today, most posts include the Carol treatment, which is an insider joke that newbies learn to quickly study or die trying to adapt. People will either be sent to their room if they create dissonance or get Carol’d and be threatened with deletion, please. As a trigger warning, people are known to add “and stay out of this, Carol,” or “Carol was here.” When the average person posts a cat meme with the tagline “please delete this group,” it can be expected to earn at least one comment of “OMFG WE NEED T- SHIRTS.” My favorite posts are the ones by members who already anticipate an avalanche when they share a video of a fart concerto, fully notated. Thus they self-flagellate by adding the tagline “Carol, I already went to my room, please.”

Today, January 15, 2018, is the second Caroliversary. It’s good to see her drinking in solidarity. L’chaim!

The Perfect Perch – US Patent 9775734 Hand support method and device for somatosensory input to the palm

I am very excited about the U.S. Patent which was issued for the Perfect Perch device. It is U.S. Patent Patent No. 9,775,734 B1, named “A Hand Support Method And Device For Somatosensory Input To The Palm”.

If you have a piano student who has a documented diagnosis of dyspraxia, please contact me for clinical trial recruitment. Please make sure to read all the information at DoogriIntsitute.com first.

Perfect Perch hand support device for piano students with dyspraxia [Photo credit: http://www.outoftheshadowsphotography.com ]

Perfect Perch hand support device for piano students with dyspraxia  

 

The Irony of Susceptibility to Manipulations: Grooming Neurotypicals for Social Ineptitude

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The stereotypes of autistic people perpetuate a myth that they are socially inept. Yet non-autistics, also known as neurotypicals, portray ineptitudes on the basis of their susceptibility to body language, communication, and perceptual manipulations. How we learn these signals opens the debate for nature versus nurture, and the acquisition of social skill aptitude. Who is more socially equipped? The one who is capable of surrounding himself with pretentious body language, or the one who is mindful of her full spectrum of awareness? A neurotypical who communicates with learned body gestures is currently considered evolved, while the acquisition of those skills are a direct result of the inability to survive otherwise. The autistic who remains authentic in order to adapt to the current environment is potentially most equipped to function in society.

The cycle of life requires attracting a mate, reproduction, and adaptations for exploitation to those who threaten survival. In a typical preparation for a possible sexual encounter, high muscle tone became evident, the stomach is automatically pulled in, the chest protrudes, the body assumes an erect posture, bagging around the face and eyes decreases, and the person appears to become more youthful overall (Scheflen, 1972). While some courtship signals are studied and deliberate, others are emitted entirely unconsciously. An atypical sexual encounter will lack all of these elements, but might still yield a reproduction component.

The social behaviors of the neurotypical population do not distract the laser focus of the autistic person’s communication. On a primal level, an autistic person’s empathy is unfiltered and unmarred by the layers of social manipulation to attract a mate with nonverbal gestures. Autistic people tend to be practical fixers and not huggers. In a crisis, the autistic person will approach with a novel corrective system for creating balance in the environment, while the neurotypical will approach with tears, and offer warm hugs. Neurotypicals who nurture their social skills ultimately attract a mate, and their survival is guaranteed by laws of evolution. In contrast, autistic individuals are born with high social aptitude, but are otherwise perceived as disabled and socially inept. Evolutionary adaptation is contingent on multiple realms of survival, and the ability to attract a mate in a conventional manner is not the only way to advance a species.

Some might argue that mindful social behavior may decrease reproduction of the autistic subgroup. Without any social reciprocity that is congruent with their communication style, there are few social distractions. As a result, innumerable hours are available to devote to inanimate subjects which do not demand communicative reciprocity. The expert-level skillsets achieved meet the 10,000-hour mark with each area of interest explored in isolation. Autistics who spend less time pursuing a mate have more time to devote to their special interests and nurture their innovative streak. Thus the autistic subgroup may be recognized as the evolved species adapted for a post hunter-gatherer society and more technology-oriented world where novel skillsets are highly desired for survival. In essence, we see autism on the rise not by way of autistics reproducing. Rather, the procreation of mates with high-empath and high-analytic traits result in more autistic offspring. Inevitably, autistics are in every community and in every family we know. Since autism is a conglomerate of high-empath/high-analytic traits, the attraction of like-minded mates for ad hoc reproduction circumvent any social requisites.

An encounter between unlike partners such as a neurotypical and an autistic person may turn into a highly volatile situation when communication differences abound. The neurotypical will approach with a handshake, firm eye contact, and rudimentary chit chat. Those are learned social skills to gauge the frequencies emitted by the other person, otherwise known as reading the person on the other side of the encounter. The autistic person will avoid the handshake, make no eye contact, and will read the frequencies directly from the sound spectrums. Without applying any superficial filters to measure the situation, the autistic person will already be aware of the other person’s intention to evaluate them, which will both annoy and frustrate them because of the delay in the heart of the conversation. The autistic person will try to correct the situation with a novel approach, and offer a direct observation, such as, “You seem to be in a hurry today because you put your hair in a ponytail. Am I bothering you?” A classic reaction from a neurotypical is to respond with, “Do you realize that you are being very rude? Look at me when you’re talking. You didn’t even shake my hand. Wow—what is wrong with you?!” The neurotypical, aghast at being found out, will project their humiliation onto the autistic person, and blame them for lacking social skills. These predatory practices persist when autistics are forced into social skills trainings and therapies designed to teach them how to conform into social norms which are based purely on nurtured fallacies.

Animal adaptations for exploitation “go back deep in evolutionary time. Capuchin meat thieves do not choose their victims randomly. Capuchin monkeys selectively target muggable victims—those whom they can menace, by virtue of their higher rank” (Buss et al., 2008). The higher order of predatory practices is dependent on who sees themselves as more higher ranking. Neurotypicals who are susceptible to perceptual and gestural manipulations consider themselves as the higher ranking order of the species, and target the ones who are immune to these manipulations.

The autistic person who sees right through these layers of perception is potentially existing on the planes of actuality. Autistic people are not susceptible to optical illusions (Chouinard et al., 2016) and are less likely to catch a contagious yawn from a peer (Senju et al., 2007). Both of these may be understood as markers of a specific disorder, or analyzed as higher order traits. Optical illusions tap into the manipulability of the typically-wired brain of the individual who is accustomed to nurturing their behavior and perceptions around an imagined norm. Catching a yawn from a friend is an imitation of a social gesture when you take a clue that fatigue is a behavior that should be practiced at the given moment. Psychologists pathologize this behavior as a disability, while autistics recognize their altered state as a strong ability to coexist in both friendly and hostile environments. In the worst case, an autistic person who expresses their ability to “see the energies” or “hear the frequencies” of others, may find themselves institutionalized or drugged into submission. Neurotypicals remain equipped to survive only when they nurture their social behaviors, while autistics can survive in both worlds using multiple skillsets.

A preference for gestures as a sign of higher ranking in social aptitude prevails. Early Cartesian influences are seen in emerging psychological perspectives which disregard the role of human gestures in physical, social and evolutionary mechanisms of human behavior (Hevern, 2008, p. 217). Body language is generally observed in the meeting of a potential mate, and is evidenced in specific gestures accompanying “I,” “me,” “we” and “us” pronouns matched by small movements of the head, eyes, hands, fingers or even the shoulders (Davis May, 1970). An excited mate would gather her hands inward to demonstrate “we” and display her wrists as a sign of submissiveness for the word “us.” Neurotypicals have relied on these gestures for so long, that the lines between what they have nurtured for reproduction and what they have been equipped with by nature has blurred. The nurtured skillsets may rob them of the ability to see more clearly what is available to them in the unmanipulated planes.

Autistics who alter their habitual performance find that their ability to read people with their innate tools are dulled. Without these skillsets, they are vulnerable and blind in a world that is full of manically gesturing people who seem to know what they are doing. The chaos is unbearable and the amount of time spent recovering from faking for a single encounter makes the attempt not worth the effort. Therefore autistics are not vulnerable to nurturing their social skills to manipulative levels. Neurotypicals are entrained from infancy to return their mother’s loving gaze, to coo in delight from their mother’s nonsensical babble, and to clap their hands to imitate adults. Autistic infants have been found to fixate on geometric shapes instead of facial features (Pierce et al., 2011), look away from extended parental gaze, have hyperlexia and communicate in full sentences without the expected babbling (Rapin et al., 1983). These early signs of inability to groom for social ineptness makes the autistic person prepared for a high-tech/low-manipulation world that seeks out their novel abilities.

The lack of acknowledgement that autistics are performing at a higher level stems from an initial dichotomy in perception of the other. The social condition is such that the majority creates the norm, and the hierarchy of control begins with those who put themselves there first. To elevate oneself onto the pedestal of that social order requires a significant amount of manipulation of others, a skill which autistics neither have the interest nor the desire to get involved with. Autistics will achieve civil rights when they go against the expectations of gathering in large numbers to advocate for their cause. By staying true to their neurology, the advancement of their acceptance will be promulgated by the cave-dwelling, keyboard-pecking, and truth-telling traits of this meta-species.

 

*Identity-First over person-first language—read disclaimer here.


References

  1. Buss, D. M., & Duntley, J. D. (2008). Adaptations for exploitation. Group dynamics: Theory, research, and practice, 12(1), 53.
  2. Chouinard, P. A., Unwin, K. L., Landry, O., & Sperandio, I. (2016). Susceptibility to optical illusions varies as a function of the autism-spectrum quotient but not in ways predicted by local–global biases. Journal of autism and developmental disorders, 46(6), 2224-2239.
  3. Davis May, F. (1970) The Way We Speak ‘Body Language’ New York Times. May 31, 1970
  4. Hevern, V. W. (2008). Why narrative psychology can’t afford to ignore the body. Journal of Social, Evolutionary, and Cultural Psychology, 2(4), 217.
  5. Pierce, K., Conant, D., Hazin, R., Stoner, R., & Desmond, J. (2011). Preference for geometric patterns early in life as a risk factor for autism. Archives of general psychiatry, 68(1), 101-109.
  6. Rapin, I., Allen, D., & Kirk, U. (1983). Developmental language disorders: Nosologic considerations. Neuropsychology of language, reading, and spelling, 155-184.
  7. Senju, A., Maeda, M., Kikuchi, Y., Hasegawa, T., Tojo, Y., & Osanai, H. (2007). Absence of contagious yawning in children with autism spectrum disorder. Biology letters, 3(6), 706-708.

Northern California Autism Symposium, CalState Chico 2017

The 2017 first annual Northern California Autism Symposium was hosted by the California State University, Chico. The keynote address was delivered by  John Elder Robison who spoke about his childhood and adult journey. Robison described how he dropped out of school at 15, joined a rock-n-roll band, and suddenly found himself a member of a tribe of weirdos where nobody questioned his differences. That desire to connect both empowered him and debilitated him, as he rose to fame with electrical engineering abilities. The idea that he was a dropout, loser, and a fraud and would soon be found out just gnawed at him and pushed him to walk away from one promising career after another.

It wasn’t until after he was diagnosed as autistic when he was 40 and later learned that he was admired as the one of the best engineers Milton-Bradley Games ever had on their team, years after he quit that position. The lesson he learned was that skill alone will never compensate for the social inability to recognize that one is a valuable resource to a team. In parenting his son, John spoke about the encouragement he offered to pursue his special interests, even if it meant dropping out of school to chase his dream. While this approach may be unconventional, the current narrowing of the school system also starves unconventional learners of their ability to nurture their hungry and creative brains. If autistic people insist on becoming experts on their areas of passion, their special interest is misunderstood as a manifestation of a disability. We need to collaborate with autistic adults to help change how we see these strengths and how we nurture them in a closed system, or the brightest will drop out to find the scenic routes to success.

https://rce.csuchico.edu/northern-california-autism-symposium

Kaegan – Nonverbal perfect pitch piano matching test

Kaegan (21) is able to demonstrate perfect pitch during his 3rd piano lesson, thanks to the piano matching test. Did you know that 97% of autistic people have perfect pitch? (Kupferstein & Walsh, 2015). One obvious clue that it was time to test him came when Kaegan was singing the notes just from reading it, even before he heard it played from the piano. Please read about the nonverbal paradigm research study and the Rancer Method book for teaching music to gifted students, titled Perfect Pitch in the Key of Autism.

Source:

Kupferstein, H., & Walsh, B. J. (2015). Non-Verbal Paradigm for Assessing Individuals for Absolute Pitch. World Futures72(7-8), 390-405.

ACCES-VR Communication Support – New Adjunct Service

Henny at Carlucci's office

Henny Kupferstein at Senator Carlucci’s office (top), and the definition of the new adjunct service per ACCES-VR (bottom)

Starting in January 2018, Acces-VR adult vocational rehabilitation department through State Ed will offer a new adjunct service “Coaching and Communication Supports for Post-Secondary Education and Employment” (Case Service Code 792x). Previously considered a soft-skill and widely overlooked as a disability-related need, this initiative was sparked by a proposal written for Kevin Smith, Deputy Commissioner in 2014 by Henny Kupferstein, M.A. & Rebecca Botta-Zalucki, MSW. Eventually, the proposal was drafted as Assembly Bill A05141 and Senate Bill No. S04256. The proposal earned letters of support from ASHA  on behalf of Speech TherapistsNYSACRA and NYSRA, NYSILC and NYAIL for Communication support in Vocational Rehabilitation Communication Support services, and NYSARC, Inc. 

  1. Per the original proposal, only a specialized practitioner who has a Masters level training in social pragmatic language disorders is eligible to apply to deliver the Communication Support service for Acces-VR consumers.
  2. The pay rate is competitive at $80 per unit.
  3. Request for Proposal (RFPs) are due October 18, 2017.
  4. Decisions will be made by January 2018.

Click here to download application

****The good folks at NYSRA are happy to help with your RFP, so please do contact Pat Dowse (pat@nyrehab.org, 518-928-2360) directly. Please contact me if you would like to participate in a free support webinar for completing your RFP, scheduled for Tuesday October 3rd and Saturday October 7th.****

Applying to Deliver Communication Support for Acces-VR

Please read the entire document carefully if you are interested in applying to be a provider or ACCES-VR Core Rehabilitation Services.  There are several new services including the Pre-Employment Transition Services for Students.  In addition, we have made adjustments to the definitions of certain services to better meet the needs of our consumers.

It is required that all non-profits must be pre-qualified by the application deadline in order to receive an award.    In addition, all vendors must meet the vendor responsibility requirements necessary for all NYS contracts. http://www.acces.nysed.gov/procurement

All vendors first need to be a part of the NY Grant Gateway before applying. Visit https://grantsreform.ny.gov/Grantees (“Getting Started”) for how-to videos and online registration. Proposals received from applicants that have not Registered and are not Prequalified in the Grants Gateway on the proposal due date cannot be evaluated. Such proposals will be disqualified from further consideration. Pre Qualification questions should be addressed to prequal@nysed.gov

Purpose of Funding

Provision of specific rehabilitation services from community rehabilitation programs and other service providers. These services include assessment, employment preparation, job placement, supported employment, assistive technology, pre-employment transition services, driver rehabilitation services and related adjunct services.

Eligible Applicants

Eligible applicants are not-for-profit organizations, community rehabilitation programs and independent living centers, Boards of Cooperative Educational Services (BOCES), and for-profit organizations who have experience providing vocational services, job placement, supported employment and/or other support services to individuals with disabilities, including youth with disabilities, to enable participants to achieve competitive integrated employment. Please review the Description of Services section of this RFP for organization capacity requirements prior to applying. Organizations which are current ACCES-VR CRS providers and who wish to continue to provide services, must apply to this RFP.

Bidders’ Conference

A Bidders’ Video/Audio Conference will be held on September 13th, 2017 to provide potential applicants with the details of the application process and allow an opportunity for questions and clarification on the RFP process.

Questions & Answers

All questions must be sent by E-Mail to CRS2@nysed.gov no later than September 15th, 2017. A complete list of all Questions and Answers will be posted to ACCES procurement page no later than September 27th, 2017.

Non-Mandatory Notice of Intent

The Notice of Intent (NOI) is not a requirement for submitting a complete application by the application date; however, NYSED strongly encourages all prospective applicants to submit an NOI to ensure a timely and thorough review and rating process. A non-profit applicant’s NOI will also help to facilitate timely review of their prequalification materials. The notice of intent is a simple email notice stating your organization’s (use the legal name) intent to submit an application for this grant. Please also include your organization’s NYS Vendor ID. The due date is September 29, 2017. Please send the NOI to CRS2@nysed.gov.

New Prequalification Requirement

The State of New York has implemented a statewide prequalification process (described on the Grants Reform website) designed to facilitate prompt contracting for not-for-profit vendors. All not-for-profit vendors are required to pre-qualify by the grant application deadline. This includes all currently funded not-for-profit institutions that have already received an award and are in the middle of the program cycle. The prequalification must be completed by all not-for-profit institutions by the application deadline in order to receive an award under this RFP. Please review the additional information regarding this requirement in the Prequalification for Individual Applications section below.

Date Due

Submit an electronic copy (Word or pdf) of the application by email to CRS2@nysed.gov (link sends e-mail) by the October 18, 2017 deadline. The subject line of the email should read as follows: RFP #GC18-004 and the legal name of provider organization or individual.

NYSED will deem the vendor to be “non-responsive” if required forms are not submitted. Only vendors that submit the Basic Information Form (Attachment 1) will be eligible for an award. Only vendors that submit the appropriate CRS Service Forms (Attachments 1-A through 1-H) and Capacity Summary (Attachment 2) will be eligible for an award for the service(s) applied for. These Attachments are posted with the RFP in separate files. Please thoroughly review submission instructions in Section 2. Vendor submissions of any of the above forms will not be accepted after the due date of October 18, 2017.

Executive Function Brainfarts of Adult Professional Autistic Women

As I was getting dressed this morning, I found myself running around my bedroom naked like a crazyhead. I was looking for my bra, only to realize I had already put it on. Undefeated, I continued to silently talk myself down from the emotional ledge my mind puts me on when I become aware of executive function fails. There may be a pink blush spreading across my cheeks. That is the private showings of shame which I have the power to talk myself out of. “You are smart. You are beautiful. You are accomplished. Einstein couldn’t tie his own shoelaces. Now get yourself together, because that conference presentation won’t wait for you.”

Neurotypicals often joke about feeling stupid when they are searching for their eyeglasses, only to find them perched atop their heads. It’s usually me fumbling in my purse, patting the small front pocket where I keep my phone, just to “check” if my phone is there because opening the zipper to check with my eyes if the phone was inside, would require my brain to compute an inaccessible level of sensory-integrated instruction. All the while, the pocket-patting is making me feel muscle memory of what the purse always feels like with the phone in there, so it’s not registering the “lack of phone”, causing the frantic patting to increase. It takes more than an agonizing minute to realize that I already put the phone into my purse. “You are gifted. Your hair is stunning today. Mozart had no friends and died penniless and alone. Now get it together and go to that concert hall to perform.”

I sat at a panel with leading experts in my field at a lavish San Francisco hotel. The event was historic, especially for its inclusion of autistic scholars in the lineup. While I was able to hold my own throughout the intellectual discourse, I needed several days to recover from the sensory assault on my system. A week later, I went through my camera roll to find a photograph of a slide from a presentation I attended. I wanted to check the citation of the study which the presenter had referenced. That’s when I saw the photograph of myself wearing two different colored sandals. Staring at my phone, my eyes filled with angry tears. Did I really spend an en entire weekend with colleagues who thought it best not to say anything?

Granted, I wear the same brand and own several pairs in different colors. In California, anything goes and eccentricity is the norm. I wondered if I pushed myself too hard or if I had became a successful product of my environment’s overlooking acceptance powers. Has society really grown this much, or have people just become more silent of their intolerance? After Nikola Tesla’s wireless electricity project was shut down and he was silenced by the government about the Hindenburg airship disaster, Tesla said, “Our virtues and our failings are inseparable, like force and matter. When they separate, man is no more”. I yam what I yam.

Teaching autistic piano students to self-talk and regulate the mind-body disconnect

How does the autism mind-body disconnect interfere with piano lessons?

In this video, the student is in his 20th week of instruction. He is playing his assigned piece which he has practiced and knows well. Suddenly, his body fails to comply and he appears to “fail” at the task. In my work, teaching the students about the science of movement is key to help them organize their chaotic bodies and take control of sensory dysregulation, dyspraxia, dystonia, and other motor movement issues. It is critical to help the students learn self awareness. I strive to build their self esteem as they advance in their music education but their hands cannot prove that they know how to play the material placed on front of them. Remind them that you will keep teaching, if they will stick with the plan of “talking” to their bodies. Make a “deal” and watch them flourish.

Why ABA Piano Students Struggle to Believe in Themselves, Despite Musical Gifts

I teach piano to non-verbal and autistic students every day. Most have perfect pitch and a very high degree of musical aptitude. Along with their diagnosis comes a trail of baggage from earlier teacher-student relationships. Students as young as five may display behaviors that can be interpreted as aggressive and harmful to themselves and others, behaviors that make them seem like they aren’t paying attention, or behaviors that make them appear as if they don’t understand the instructions of the task at hand. I experience ignorance and intolerance of sensory accommodations from ABA therapists and behaviorally-trained educators observing my piano lessons videos. Their focus is on the ABA-type treatment interventions. It is the majority and sadly not unusual.

VIDEO: Why ABA Piano Students Struggle to Believe in Themselves, Despite Musical Gifts

The distinct differences in the success of my students are directly linked to their early exposure to esteem-building teacher-student relationships, and whether ABA was a big part of their early intervention. It becomes apparent when a student has been exposed to ABA for more than 10% of their lifetime (e.g. 6 months for a five-year-old child). They become prompt dependent for minor tasks. They lose track of their inner awareness and become unable to take clues from their inside-body to self regulate. Dysregulations turn into complete brain-fry. These system shutdowns are neurological and not in their control anymore.

When a student is in a verbal loop, repeating the same word over and over, and their body is shaking, it becomes time to physically redirect the body into a different setting. I will advise the parent to turn their child on the piano bench so their back is to the piano. The loop instantly stops because he is now in a different environmental state. The student will automatically turn his body back to the piano, completely regulated, and ready to resume. It is a shame that we allow people to grow up with a mindset that they have to allow others to tell them how to function, how to be, what to work for, and when to take a break. We owe it to our students to teach them how to prevent overwhelm without physically prompting them into an environmental redirect. See this article for strategies: Teaching piano student to stim as overwhelm prevention  

Recommended reading:

Kupferstein, H. (2018) Evidence of Increased PTSD Symptoms in Autistics Exposed to Applied Behavior Analysis. Advances in Autism, 1(1), 19-29. DOI :10.1108/AIA-08-2017-0016 [PDF]

Kupferstein, H., & Walsh, B. J. (2016). Non-Verbal Paradigm for Assessing Individuals for Absolute Pitch. World Futures72(7-8), 390-405. [PDF]

“Can perfect pitch be a problem when teaching note-reading to piano students?” Interview with Dima Tahboub

In this interview with Dima Tahboub of DoReMeStudio.com, we discuss how the Rancer Method builds neurological pathways to have magnify the gift of perfect pitch. Instead of the gift being a problem, there are surprising byproducts of the neuroplastic changes and visual motor cohesion, changes in eye tracking, and explosions in speech and vocalization.

Henny Kupferstein is the co-author of Perfect Pitch in the Key of Autism, the book on the Rancer Method designed to teach note-reading for gifted students.

Stop Banning Autistic Stimming Because of Fidget Spinners

Are the new fidget spinners driving you crazy? Autistic stimming and fidget toys differ in purpose. An informed perspective offers an attitude shift for educators who want to become aware of the differences.

Fidgets are marketing as a toy to keep the fingers busy, specifically for a kid who has focusing issues. Focusing issues are consistent with a diagnosis of Attention Deficit Disorder (ADD) or ADHD. Focus-seeking fidgeting is a very different purpose than the need to stim in order to prevent sensory overwhelm. The two should not be confused. During sensory overload, an autistic person’s body will uncontrollably move in ways that will try to reboot their brain back to its original functional state. When you react to their reactions to their sensory world, you are irresponsibly causing more harm with your judgement.

Imagine you have a tuning wrench because you are piano technician. The wrench serves a very specific function, and you need your wrench to help keep pianos in tune for your educated clients. Piano teacher, Lili Koblentz in Colts Neck, New Jersey offers this analogy: Your friends see that you have a wrench. They think it is “cool” that you get to carry a tool with you everywhere. They want a wrench too, even though they don’t really need to tighten things as much as you do. Suddenly, you can find wrenches everywhere. Some are cheap, some are expensive, some are bright flashy colors, and some are more subdued colors. Your friends carry them everywhere and are constantly showing them off, and aren’t using them for their intended purpose.

Suddenly, no one is allowed to bring wrenches to class with them, because they are distracting people and keeping them from doing their work. You tell people that you need yours to do your work, because if the nuts and bolts around you are too loose, you won’t be able to do your work. You are told that your tool is just a toy, that you just need to focus on what you are doing and it’ll be easy to complete your work. Besides, when you had your wrench, you were such a distraction to everyone else—it was rude of you to keep your friends from learning.

You are now left with an angry client base, and hundreds of pianos that yowl like dying puppies and feverish kittens every time they are played. You can’t focus on your work because you’re too busy worrying about your livelihood and people’s judgement of your craft, and you aren’t allowed to fix anything because your tool is a toy to everyone else.

Discriminating against a person who legitimately needs a tool to function in their highest capacity is a human rights violation. Autistic people are gifted in many ways. Research showed that 97% of autistic people have perfect pitch1, and sure enough, all of my piano students have it. I would want them to be as skilled in their trade as the piano tuner wants to be. I need to make sure they have all their tools when I am hired to teach them. Therefore, I recognize that the autistic body must constantly be in motion in order to concentrate best. Please rethink your attitudes before you judge a child or adult who reaches for a tool that makes them be more attentive to what you are teaching them.

  1. Next, please read: Teaching piano student to stim as overwhelm prevention
  2. Also, please make use of stimming resources page with directions for use.

Sources:

Kupferstein, H., & Walsh, B. J. (2016). Non-Verbal Paradigm for Assessing Individuals for Absolute Pitch. World Futures, 72(7-8), 390-405.

Teaching piano student to stim as overwhelm prevention

me showing off my stim toys while student learned to use his sensory need as a overwhelm-preventative instead of a crash-erase.

Me showing off my stim toys while student learned to use his sensory need as a overwhelm-preventative instead of a crash-erase.

Two nonverbal preteens played the piano yesterday. They are my tough fighters, but also spell using RPM (Rapid Prompting Method) letterboards. They frequently type their complaints about their brain-body disconnect and how embarrassing it is that they can’t show through their fingers that they know the music.

Me: “Who else sees your body like this? In what other situation?” WHEN IM OVERWHELMED

“Do you know the difference between physical, emotional, and sensory overwhelm?” NO

And then the Henny-lecture began:

“Play one line, and then go back to the sink and play with the water. That’s what your body needs in order to erase the overwhelm. I don’t want you to wait until your body crashes and then you look like a person who is embaressed of yourself. Go back to the sink to prevent overwhelm. Do we have a deal?” YES

Perfect Pitch in the Key of Autism A Guide for Educators, Parents and the Musically Gifted

READ: Perfect Pitch in the Key of Autism
A Guide for Educators, Parents and the Musically Gifted

He then played three lines instead of 1, went to the sink. Returned. Played two more lines. Sink. Returned. Thanked me….

I teach awareness of self, so they can make choices. With other autism interventions (such as ABA), they are conditioned to be so prompt dependent, they they lose touch with internal functions. They forget to read their own body signals. In my work teaching piano to nonverbal and autistic students, I undo that damage. Each time they stim, I announce like a translator “you just did that with your fingers near your eyes because you wanted to erase the work of reading treble and bass clef together for the first time”.

As an autistic person, I live inside their sensory experience and can read them instantly. By offering these nuggets, they can learn to connect what they do with why they do it. Eventually, they can reach for those stims as preventative tools. For a list of stimming ideas, see my resources page.

Mah Nishtanah – Four Questions by the Autistic Son: Written from the perspective of a boy with Asperger’s Syndrome

Article by Henny Kupferstein. Published in: Spirit Magazine, and Inyan – Hamodia’s Weekly Magazine – Passover Edition, Spring 2011

Published in: Spirit Magazine, and Inyan – Hamodia’s Weekly Magazine – Passover Edition, Spring 2011

“Mommy, everybody is looking. I don’t want to say this out loud, can I go in the kitchen?”

“Tatte Layben, I… Ma! If Zeidy is here by the seder, then I think I should say Zeide Layben”.

“Zeide Layben… Ma! Zeidy is alive, and everybody can see that. Why do I have to announce it?”

“Zeide, ich vil bei dir fregen di fir kashes…

Mah Nishatana Halayla Hazeh… Why is this night different from all other nights? On all the other nights I can eat my rice cake that I eat every night, this time. But tonight, and on this night only… (Ma! We eat matzah the entire Pesach, why do I have to say on this night only?!)…more than any other night, why do we have to eat potato? You know it’s soft and mushy and I hate the way it feels in my mouth? And then when I do swallow it, I can’t drink again until after the next Kos, after saying mah nishtanah?

Why is this night different from all other nights? On all the other nights I can sit with my comfortable shabbos shirt, the one that is made to look like a shirt but is really a t-shirt, the one that has no seams or labels? Why on this night do I have to wear this itchy glittery shirt that I made with the O.T. by therapy? My fingers got all sticky from the glue and I had glitter on my eyelids for three days and three nights. And also, I think there are some rabbonim who hold that glue is chometz! And people might not know that glitter is made of very small, 1 mm pieces of paper, glass or plastic painted in metallic, neon and iridescent colors to reflect light in a sparkling spectrum. Glitter was invented by Henry Ruschmann. This is really very interesting! Which reminds me of the next question…

Why is this night different from all other nights? On all the other nights I keep my salad dry without dressing because I hate dressing and nobody forces me anymore. But tonight, and on this night only, and also tomorrow night at the second seder because we are in galus and in chutz l’aretz, not like the people who in Eretz Yisroel have only one seder each year. In America, we have two, and also if an American goes to Israel for Yom Tov, they must have two sedarim. That’s why I don’t want to go to Israel on Yom Tov because it would make me feel all mixed up inside and my brain would feel all funny and I would see everything in jumping zig-zags and I would get very upset and I would have to make that noise with my mouth because it feels better afterwards. I would much rather have two seders over here, as long as I can stay in the kitchen. And, also, if I can have my romaine lettuce dry, without being forced to dip it in the charoses, which is very old apples and are already brown, and brown is my worst color.

Why is this night different from all other nights? On all the other nights I can sit on my special chair by the wall in the kitchen, where nobody can touch me or breathe near my plate, but tonight, and also tomorrow night, we have to eat reclined, and that means I would be touching Ari’s chair. If I touch Ari’s chair, I will touch Ari’s right leg and I know he will kick me. Last year in Bubby’s house he kicked me after the third kos, and when I was third grade, I was leaning on cousin Chaim from Lakewood who was 14 then, and he almost kicked me but I hated touching him because I was worried that I would get too close to his beard. His beard looked like it would be prickly and it would make me feel like I need to run to my room and bang my head for a long long long time. And then my therapist will get upset that I didn’t do the brushing exercise.

Ma! When is this over? Can I stop saying Mah Nishtana and drink some grape juice now?”

Please do not reprint or photocopy without permission. 

Why I Teach Solfege—Why Build a House With a Hammer?

“Why do we build a house with a hammer?”

“Why do we build a house with a hammer?”

Today, I taught a very bright student and we used solfege to transpose to her favorite key. When we were done, and she approved of her work, she smiled and clapped her hands with sheer delight. I knew the feeling of pure joy, when it all comes together musically. I told her, “People ask me all the time why I teach solfege. So, tell me, why do we learn solfege?”  She responded: “Why do we build a house with a hammer?”

How clever. If we needed to build a house without a hammer, we would have to forage for just the right rock to fit the special nail for your bedroom walls. Then, we would have to go to an entirely different quarry and look for a differently angled rock which would work best for the bathroom wall nails. Lastly, for the kitchen cabinets, we would excavate the nails from someone else’s house, and re-use them for our kitchen cabinets, while the other person’s kitchen would fall apart.

A hammer is a universal tool that works once, and for everyone. Solfege, when taught correctly, is a marvelous party trick. It becomes a universal tool which empowers the musician along every step of their education. From basic note-reading and sight-singing, interval guesstimation and ear training, solfege pushes musicianship skills to infinite heights. Don’t deny your students this gift just because you were introduced to solfege the wrong way. Consider the Rancer Method, an evidence-based approach for gifted and special-needs learners.

“Oh God, I HATE doing solfege. I'm about as skilled at it as I am at massaging an electric eel” —Jason Madore, vocalist, Minneapolis, MN

“Oh God, I HATE doing solfege. I’m about as skilled at it as I am at massaging an electric eel” —Jason Madore, vocalist, Minneapolis, MN

Addressing Note-Reading Problems with ABA Conditioned Prompt-Dependent Piano Students

music-tutoring-071

Addressing Note-Reading Problems with ABA Conditioned Prompt-Dependent Piano Students

I just finished teaching a 6-year-old who has been resisting note-reading. Before finishing the first level, I moved back to the beginning of 2nds and 3rds for review rather than pushing past the songs at the end of the level.

It’s very important to recognize the real reason why this student is not looking in the book. In this case, I recognized that ABA (Applied Behavior Analysis) conditioning has made him become completely prompt-dependent and has no idea that he can actually read and execute the task independently with his own (brilliant) mind. Instead, he sits and waits for mom, or me, to say “is it going up or down?” or “how much? Seconds or thirds?” and he just guesses without actually looking at the notes. When prompted to look at the book, he gazes but doesn’t actually look for the purpose of reading, but rather just to follow directions. He does the same thing with his after-school math tutors.

Today, we had a breakthrough. I told the mother than I have experience in undoing this damage and that my technique requires that we overwrite the prompt dependency with vocal reflections of whenever he does execute any tasks independently, regardless of how small. The more feedback he receives, the more he will begin to recognize, “Oh, that’s how it feels when I’m doing it correctly. Let me do more of that.” For example, the first feedback he got was “aha! You knew that the treble clef was the right hand. Look how you put that right hand straight on to C position without anyone’s help.” He was pleasantly surprised at the recognition of his own accomplishments. Next, I repeated the same acknowledgement for the left hand: “Look! You knew that the bass clef was coming up in this measure, and you prepared your left hand in the C position. Awesome reading!”.

For the actual note-reading of the melody, he required constant prompting, but I refused to give anything away, nothing more than, “You tell me. You know how to read. You just played an E. You know if it’s going up or down, and you know if it’s seconds or thirds.” He responded with guessing, to which I then said “Use your fingers” and he promptly played the correct note. Immediately, I said, “Excellent reading”. In summary, the only two prompts should be “Excellent reading” for each and every note played, or “Fix it / clean it up”. Nothing more. Please share your feedback on this approach.
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Teaching V7 Chords Using Solfege for Perfect Pitch Students

First, captivate the ear-based learner who craves sound. Keep pushing the ear a bit more. Now, reinforce the sound with the note clusters on the page. You must validate the fact that V7 inversions are missing a note, because their ear will ‘go crazy’ and point out the value of chord inversions. Once you have integrated the eyes with the ears, tie it all up as ‘visual shapes’ and ‘sound shapes’. Finally, wrap up with theory work (chord labeling, etc.). Always give constant reminders of their gift, each week.

 

See more piano pedagogy videos: https://hennyk.com/piano-pedagogy-videos-how-to-teach/

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JOIN THE FAN CLUB! The Rancer Method – Teaching Piano to Gifted and Special Needs Students – FaceBook group for piano teachers and educators who are applying the Rancer Method in their practice.

 

 

 

Autism Motivation and Perfection Anxiety: Teaching to the Gift of the Perfect Pitch

“Perfect Pitch in the Key of Autism” Book interview with co-author Henny Kupferstein by Stacy McVay from Smiles and Symphonies in Memphis Tennessee.

“Perfect Pitch in the Key of Autism” Book interview with co-author Henny Kupferstein by Stacy McVay from Smiles and Symphonies in Memphis Tennessee.

  1. “How do we motivate autistic students in and outside of piano lessons?”
  2. “How does the gift of perfect pitch translate to other areas and skill-sets?”

More links:

 

Autistic kid’s bar-mitzvah prep unlocked his future

Ethan and Henny, November 5, 2016

Ethan and Henny, November 5, 2016

Words cannot describe how it feels to prep an autistic boy for his bar-mitzvah and then watch him journey into his own spiritual manhood with grace, dignity, and pure joy. This is a kid that everyone has given up on because he showed no academic potential until 18 months ago when I entered into his life.

Today, he is a transformed human being. With perfect pitch and ten years of piano lessons, memorizing his aliyah (torah portion chant) was ridiculously easy for him.  The bar-mitzvah was not the culmination of our work together, but rather the unlocking of the first 1% of his potential for the rest of his life. My speech is in the last two minutes of the video below.

“The Right to an Education”, Article Typed by Non-Verbal Autistic Piano Student with Dyspraxia

NICOLAS JONCOUR

NICOLAS JONCOUR

Article typed by Nicolas Joncour, Piano Student

[First appeared in ZOOM Autism Through Many Lenses magazine, Issue 9, p. 20]

A decent life in France is practically impossible for an autistic student, especially if you are nonverbal like me. In special schools there is no real education, and the psychiatric hospital remains the norm. As my mother encounters more and more difficulties to enroll me in a normal school, the only solution to an equal opportunity is maybe to leave France. I want to go to university to study the Holocaust as people with disabilities are still destined to horrific fates.

My hope is to study history and the Holocaust, a subject that has intrigued me for almost six years. Specifically, Operation T4, which is the eradication of the people with disabilities by the Nazis. Perhaps the Holocaust interests me because I feel the discrimination in relation to my disability. The eyes of others are like deportation camps without return for me.

Without my mother I would likely be in a psychiatric hospital. The right to education definitely remains the domain of utopia. The more I grow, the more I realize I do not have my place in society. I have to fight to deserve to dream. My disability, autism and dyspraxia, makes me look like a mentally-challenged person. People talk to me as if I am a small child, and they watch my gestures as if I am a monster.

The reality is that all their looks are like the slam of a cattle wagon door. My connections towards the victims of Operation T4 are very strong, and my reality joins their fatal destiny. I have faith that helps me, and God gives me so much love that I do not feel alone. I think I have the right to denounce my condition and my social discrimination as long as I would suffer of it. The right to a dignified life is my fight, and I recently joined the ENIL Youth Network to create change. Nonverbal autistic people demand recognition of their right to a real education.

My life would be rather simple if people would consider me as a person rather than a thing to eradicate. I want my intelligence to be recognized without having to meet the low expectations of people who doubt me. The peculiarity of my disability is that I understand very well what kind of people I have to deal with. The inability to defend myself makes me vulnerable to all attacks. Not being able to express oneself orally is a very hard way to live.

People do not consider my written prose without d